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00:00
[Music]
00:00
[Laughter]
00:03
[Music]
00:18
[Music]
00:21
the Centers for Disease Control released
00:25
new statistics on their autism
00:27
surveillance in 2015 which stated that
00:32
one in 68 children born in the United
00:35
States today is somewhere on the autism
00:38
spectrum
00:38
[Music]
00:46
[Music]
00:58
however a new government survey of
01:01
parents conducted in 2014 by the
01:05
National Center of Health Statistics
01:08
suggests that actually it's 1 in 45
01:12
children ages 3 years old to 17 years
01:17
old born in America today is diagnosed
01:20
with an autism spectrum disorder or an
01:24
ASD
01:25
moreover the CDC insists that the rates
01:30
of autism in America have stabilized to
01:34
one in 68 and does not recognize the
01:38
results of any other independent
01:40
surveillance study
01:42
I believe that the CDC is one of the
01:45
most corrupt entities on planet earth
01:48
therefore I am more inclined to trust
01:50
the research conducted by a non
01:53
federally funded organization regardless
01:57
of whichever studies you agree with the
02:01
fact still remains that we must solve
02:05
the autism puzzle for those individuals
02:08
currently living with autism the
02:11
American mainstream media federal
02:13
government CDC and the NIH have all
02:17
failed the American public over the last
02:20
40 years by refusing to appropriately
02:23
and aggressively educate the general
02:26
public on autism related topics
02:30
[Music]
02:34
I often hear autism described as a
02:40
gigantic puzzle and in order to figure
02:44
it out we have to find all the pieces
02:46
and how they fit together I read a quote
02:50
on a student's t-shirt one day that said
02:54
the best part about puzzles is that
02:57
there's always a solution I think of
03:00
each child with autism as a separate
03:05
puzzle to be solved and there's always a
03:07
solution you just have to look for it
03:10
and the solution is to try and figure
03:13
out what works for them it's important
03:17
to understand how they see the world
03:20
people with autism see the world and
03:23
pictures instead of words or text this
03:26
is the world told in pictures or this is
03:29
the world seen through pictures
03:37
[Music]
03:44
[Music]
03:46
once you find all these pieces and you
03:51
start seeing how they fed and you start
03:55
putting them together you can see that
03:58
the unresolved is something really
04:01
fantastic it's it's important to
04:03
remember that people are not their
04:06
disability they are a person first who
04:09
happens to have a disability regardless
04:11
of what that disability is if that
04:13
happens to be autism Asperger's and your
04:16
own sensory processing disorder whatever
04:20
the person's not their disability so it
04:22
is really important to stress that
04:24
because once we can kind of get over
04:28
that hump and we can just see the
04:30
individual for who they are and be able
04:34
to slowly put the pieces together to
04:37
solve this person as a puzzle as a whole
04:39
and
04:41
you know they have a lot of potential
04:43
that they can contribute and we just
04:46
need to be more positive and supportive
04:50
of that and that's why our society is
04:53
when you have to start embracing this
04:56
population now that we're going to start
04:59
having these larger waves of students
05:01
graduating from high school that are on
05:04
the autism spectrum they're going to be
05:05
entering our society and we need to
05:14
[Music]
05:37
my name is Chani Ziebarth and I'm a
05:41
full-time paraprofessional at an autism
05:45
therapeutic day school which means that
05:48
all the kids that attend our school have
05:51
a primary diagnosis of autism we do not
05:56
have any neurotypical general
05:59
educational students at our school and
06:02
the population that I work with are
06:06
teens and young adults
06:08
prior to this I worked in the Chicago
06:11
Public Schools where I worked with
06:13
students that were on the spectrum
06:16
primarily elementary and middle
06:21
schoolers so this is quite a change for
06:23
me to put it briefly autism is a
06:28
developmental disorder that impairs a
06:32
person's cognition communication and
06:36
social interactions pencil
06:42
[Music]
06:45
hey she gave you this this to wipe the
06:48
table off Roberto the robot all right
06:51
what's nice is what wears us
06:56
[Music]
07:00
looks like a purple stars tonight that's
07:07
what we're around are not well guys do
07:09
over mini-dress
07:11
[Music]
07:20
the severity it depends on where the
07:24
weary the individual is on the spectrum
07:26
and right now the autism spectrum is
07:29
pretty large they have so much potential
07:33
and they have so much to contribute in
07:35
this world and they teach other people
07:38
you know the adults around them a lot
07:41
how to be patient how to be less
07:46
self-centered how to be more
07:51
compassionate
07:53
[Music]
08:22
[Music]
08:33
I want to preface by saying I'm not an
08:36
expert I'm not claiming to be an expert
08:38
or anything I'm not a medical doctor a
08:41
scientific researcher or some you know
08:44
Ivy League scholar ok I'm not I just
08:50
wanted I just consider myself just a
08:51
regular person I've had experience for
08:54
several years not working with kids with
08:55
autism and I've learned a lot I learned
08:58
a lot from them and so I think that if I
09:01
can share what I learned with other
09:03
people to increase their level of
09:06
understanding of what autism is and how
09:09
these kids see the world it could make a
09:12
difference maybe not a very big
09:15
difference but if I can reach some
09:17
people and let them know that like if
09:22
your child your son of your daughter has
09:24
autism
09:25
more receive that diagnosis in the
09:27
future it's not the end of the world
09:31
there's a lot that can be done there are
09:34
so many early intervention programs that
09:36
are outlined now new and evolving
09:38
therapies medications that have come
09:40
along you know there are therapeutic Day
09:44
schools there are autism classrooms and
09:47
schools provide visual answers create
09:54
visual work and include visual answers
09:57
answers and pictures
10:09
[Music]
10:14
[Music]
10:26
all right ready what are your healthy
10:34
habits I know I can what what is he
10:37
doing sleep I know I can sleep all right
10:47
now what
10:57
I know I can I know I can what what are
11:06
our choices this is I know I can't brush
11:15
my teeth
11:15
that's our healthy habit all right let's
11:17
turn the page oh I don't know here we go
11:22
I know I can what do we do we after we
11:29
won after it's over here
11:32
[Music]
11:36
come on what do we do what are our
11:43
choices over here
11:48
[Music]
11:56
I know I can wash my hands
12:00
[Applause]
12:02
mm-hmm we always wash our hands all
12:05
right
12:05
what's another healthy habit what is he
12:07
doing in the picture I don't know I know
12:11
I can I can't what
12:16
[Music]
12:26
I know I can what I don't know what are
12:33
we doing I know I can I know I can what
12:46
is he doing what is he doing
12:51
does he exercising busy flossing his
12:54
teeth taking a shower
12:55
Washington space or shampoo in his hair
12:59
oh is that what he's doing
13:03
shampooing is here what is he doing I
13:08
know I can wash my face floss floss my
13:20
teeth I can shower every day right we
13:26
take showers every day what else and
13:29
what do we do in the shower what do we
13:33
do in the show or we shampoo our hair
13:42
excellent
13:44
what is he doing I know I can exercise
13:50
looks like he's doing a jumping jack
13:52
[Music]
13:58
all right vennett applied behavior
14:01
analysis using task analysis task
14:05
analysis is basically a way to break
14:08
down more complex tasks into a sequence
14:13
of much smaller steps or actions in
14:18
order to complete the whole for example
14:21
washing your hands teaching a child with
14:30
autism to wash their hands appropriately
14:32
from beginning middle to end requires
14:35
breaking down each step into much
14:38
smaller parts until they complete the
14:41
whole entire action at one time
14:43
[Music]
15:17
[Music]
15:33
[Music]
15:41
we have to go through life skills
15:44
because obviously life skills are very
15:46
important such as hygiene toileting you
15:49
know not all students or children with
15:52
autism are potty-trained many of them
15:54
still wear diapers then have to be
15:56
changed regularly
16:04
[Music]
16:12
[Music]
16:22
[Music]
17:52
[Music]
17:59
[Music]
18:07
[Music]
18:12
structure visual daily schedules it's
18:16
very important for people with autism to
18:20
have a daily schedule that's visual and
18:25
that it's easy to understand these can
18:29
be smaller portable schedules or they
18:33
could be large stationary schedules that
18:36
are mounted on a wall in a classroom
18:38
bathroom a drum etc
18:41
[Music]
19:29
it's important to learn to break down
19:32
schedule into small parts for example
19:35
hygiene is very important so waking up
19:39
every day brushing your teeth being able
19:42
to get dressed combing your hair putting
19:45
on deodorant if you're a teenager
19:48
washing your hands all of those things
19:53
are very important to be done on a daily
19:54
basis showering making sure you're clean
19:58
and then going on to whatever it is that
20:04
is asked for you next what is the next
20:06
task in the day if they have a class
20:08
like whether it's raining or Cyan's
20:11
then they have recess or lunch snack
20:15
period a leisure break and then some
20:19
sort of job responsibilities whether
20:22
it's team the garbage or learning to
20:24
table or laundry on your own before
20:27
packing up and going home routines would
20:34
have to be every day for no matter where
20:37
you live or where you go to school all
20:39
of those things are important so to have
20:41
a schedule that's on the wall that's
20:43
visual that has pictures but having that
20:46
picture or the symbol if they understand
20:48
they can look at the schedule follow it
20:50
as they see fit and
20:52
to hopefully at some point complete that
20:56
daily routine as independently as
20:58
possible so they can grow up to be more
21:03
independent adults
21:07
[Music]
22:08
daily routines it's important for people
22:13
with autism to conduct their day around
22:17
a daily routine where there are very
22:23
small subtle changes that can occur
22:26
within that daily routine or schedule
22:28
but for the most part it is important to
22:31
go through the routine step-by-step
22:33
throughout the day
22:39
[Music]
22:47
[Music]
22:55
[Music]
23:03
[Music]
23:48
communication how to use pecs pecs P EC
23:53
s stands for picture exchange
23:56
communication system the pictures
24:02
substitute words instead of showing a
24:06
printed word or speaking a word in any
24:11
language substitute that with a small
24:15
picture for example we have pictures of
24:19
kids at recess or a bus to point to
24:22
showing a picture of lunch could be a
24:26
way to communicate that the child or a
24:29
person with autism is hungry and is
24:32
ready for lunch
24:33
[Music]
25:36
creating your own choice boards or
25:39
choice binders these are really cool
25:42
because they are portable and you can
25:45
take them places you can create your own
25:48
choices by selecting your own packs for
25:53
example we have computer lunge and for
25:58
the bathroom also clothing items
26:00
depending on the weather outside do they
26:03
need to wear gloves a heavy jacket in
26:06
addition to that we have for be quiet
26:09
I'm sorry
26:11
snack time goals put a hat on etc you
26:17
can also create packs using small
26:19
pictures or thumbnail pictures of actual
26:23
places places that somebody would like
26:27
to go or things that the person would
26:30
like to use or what a person may need
26:34
whichever key symbols or items that are
26:40
important to you or the person who is
26:42
using the choice board or choice binder
26:44
can be tailored to their specific
26:47
interests
26:50
[Music]
28:06
create labels using pictures and symbols
28:11
instead of words or text
30:11
visual aids are so important by
30:14
exchanging small pictures instead of
30:15
words the child whether verbal or
30:18
nonverbal can communicate what it is
30:21
they want what they need how they feel
30:25
emotional expressions how do I feel
30:31
[Music]
30:42
[Applause]
30:48
you
30:58
[Applause]
31:54
communication what am I saying or what
31:56
am i trying to say how do I communicate
32:00
well if a child or person with autism
32:05
has the ability to speak they can use
32:09
their words and speak in any language
32:13
that is conducive for them another form
32:17
of communication is American Sign
32:20
Language this is very popular in a lot
32:23
of public schools then we have the
32:27
electronic speech devices which will
32:30
speak for the child or a person with
32:32
autism that is not able to speak or
32:35
speak well by tapping on a key or a
32:39
picture that will then speak the word
32:41
and then of course we have pecs which is
32:44
the picture exchange communication
32:45
system of course there is always written
32:49
text not all children with autism are
32:53
able to write and spell well enough to
32:56
communicate by writing everything down
32:58
but that's also an option
33:06
you
33:33
these individuals have rights you know
33:36
they may have disabilities but they have
33:38
rights and those rights need to be
33:40
accommodated and it really starts in the
33:44
public school system when you're sending
33:46
your kids to school there has to be a
33:49
place for them there has to be a program
33:51
for them to get better for them to learn
33:56
and grow just like their peers and then
34:00
you have to have adults that are well
34:02
staffed that can accommodate these
34:06
individuals people with autism also have
34:13
the same rights as everyone else in
34:15
America they have the right to be heard
34:18
to have their own opinion and to
34:22
exercise their First Amendment right of
34:24
freedom of speech electronic speech
34:35
[Music]
34:47
there are a lot of students that are
34:50
technologically savvy enough to be able
34:52
to use an electronic speech device they
34:56
can actually speak for them so they can
34:58
press the small symbols or icons and be
35:03
able to have the device speak what it is
35:06
that they are trying to communicate
35:08
whatever it is I want a glass of water
35:11
I'm thirsty
35:12
I feel sad there are plenty of
35:25
electronic speech devices available for
35:29
pretty much any ability level in
35:31
addition to that there are also several
35:34
different types of software applications
35:37
or apps that are available to be
35:41
downloaded or installed on these
35:43
electronic speech devices each app has a
36:05
variety of different choices and
36:07
features you can self program to include
36:10
the choices or the items or interests
36:16
that are specific to each person so no
36:19
device will look the same because each
36:22
person will program it differently to
36:24
make choices specific to their own life
36:27
and what their likes are dislikes etc
36:37
[Music]
37:41
[Music]
37:53
[Music]
37:59
although
38:02
good morning how are you
38:06
type Pele
38:09
all
38:13
[Music]
38:22
forehead
38:28
our
38:32
to walk
38:38
cartoons
38:44
[Music]
38:47
what
38:50
steps
38:53
Wow
38:58
cookie
39:24
sure
39:53
[Music]
40:03
what
40:17
Eddie
40:20
cookie
40:24
[Music]
40:26
yes okay I don't know sorry
40:44
you get white bread
40:55
[Music]
41:11
[Music]
41:18
[Music]
41:34
electronic speech devices vary by
41:37
ability level so you can change the
41:40
amount of choices by either increasing
41:43
or decreasing them to make the device a
41:46
little more simpler to use or for
41:50
someone that's more advanced you can
41:51
give them more categories more menu
41:54
items etc perhaps the user of this
41:58
device only needs five choices for
42:00
beverages water orange juice apple juice
42:03
milk or coconut water
42:09
[Music]
42:26
I feel
42:35
I feel I feel excited
43:01
banana pop for waffle
43:15
the bottle chewy
43:23
[Music]
43:24
[Laughter]
43:26
[Music]
43:32
[Laughter]
43:33
[Music]
43:39
[Laughter]
43:39
[Music]
43:42
[Laughter]
43:47
[Music]
43:54
[Laughter]
43:56
[Music]
43:57
[Laughter]
43:59
[Music]
44:00
[Laughter]
44:04
those eventually can graduate to an
44:07
electronic speech device but then again
44:09
those are also expensive the school
44:11
district may provide them and others
44:14
don't
44:14
parents can purchase them on their own
44:17
their personal budget and others can't
44:20
afford it so regardless if you can get
44:23
to that level or not cognitively there's
44:25
that financial aspect so if that's not a
44:29
possibility and the students not verbal
44:31
the child is not verbal then the picture
44:34
change system is probably the most
44:36
helpful way to communicate other than
44:40
American sign language American Sign
44:42
Language is another fantastic way to
44:44
communicate but when you go out into
44:46
public or you're in a social environment
44:48
other people there may not know American
44:50
Sign Language or be able to communicate
44:54
those signs hand signals and symbols to
44:58
those people
44:59
now the pec system is a little more
45:01
specific and has words on it as well as
45:04
a symbol so that could help other people
45:07
within that social setting be able to
45:10
communicate with that individual a lot
45:12
easier social skills interactions with
45:16
others kids with autism or people with
45:23
autism are generally because they see
45:26
with old pictures they are more visual
45:30
learners so the more that they can do
45:35
with visual aids such as social stories
45:38
they can use that to help understand and
45:41
process what it is that you are trying
45:43
to communicate
45:45
social stories are very helpful because
45:47
you can cheat you can teach very
45:50
important lessons to be learned about
45:55
how to use something appropriately or
45:57
how to conduct yourself appropriately
45:58
and they can see it not just through the
46:01
word but through the small pictures so
46:04
it is easier to understand when I need a
46:12
break
46:15
[Music]
46:16
in the basement
46:21
[Music]
46:22
I can ask a teacher sometimes I may have
46:37
to wait to go in the basement this is
46:52
okay I will get my break
46:59
[Music]
47:07
if I leave the room early I will not get
47:23
my break
47:27
[Music]
47:43
should people ask you if they may look
47:51
in your things no of course not now
47:56
without a warrant or probable cause
48:01
[Music]
48:04
socialization is very important - it's
48:07
definitely something that a neurotypical
48:08
person takes for granted we will go out
48:11
into the community and be able to
48:16
socialize in a very socially acceptable
48:21
manner
48:22
[Music]
50:21
you
50:21
[Music]
50:35
you
50:37
[Music]
51:03
a list of classroom rules in social
51:06
norms is also helpful keep a calm quiet
51:09
voice respect classroom materials follow
51:13
directions use your words and have kind
51:19
actions hands to self this becomes very
51:40
important once a child is late teens
51:43
because it is entering early adulthood
51:46
there are a lot of social norms that
51:48
need to be communicated so when they go
51:51
out into public and other people are not
51:55
aware and that this person has a
51:56
disability or a disability like autism
52:00
they need to be able to conduct
52:05
themselves and it's still safe for them
52:07
but also appropriate for example they
52:09
can't just start masturbating at public
52:11
playground where there are kids present
52:13
ok it has a bit of a problem when they
52:17
go into a grocery store they have to
52:18
remember that you have to pay for what
52:21
it is you want you have to take out
52:23
money or credit card or debit card etc
52:25
and pay for it taking something off the
52:28
shelf because you want it and walk and
52:30
help the door is when you get you
52:31
arrested
52:34
cooking what can I make having kids
52:50
prepare themselves a meal something as
52:55
simple as a peanut butter and jelly
52:57
sandwich can be done by using visual
53:01
instructions using verbal instructions
53:05
and trying to explain or articulate the
53:08
steps and gathering the ingredients et
53:12
cetera is not always possible for
53:15
somebody to understand if they have
53:18
autism but by seeing the visual pictures
53:24
that they understand which represent the
53:27
items that they need and the steps they
53:30
must do in order to complete the task of
53:33
making the peanut butter and jelly
53:35
sandwich can be easily done something as
53:38
easy as making a grilled cheese sandwich
53:40
can also be done by simplifying the
53:44
steps into into pictures in order and
53:51
showing the steps of how to complete the
53:56
task in a very safe but very specific
54:01
manner can be done and by using visual
54:06
instructions not just with cooking but
54:08
with completing other tasks can help a
54:13
child or individual with autism become
54:16
more independent
54:18
[Music]
55:15
I mean a stone mud hot chocolate packet
55:29
microwave whipped cream how to make hot
55:34
chocolate wash hands get a mom go to
55:39
school tear open hot chocolate packet
55:42
pour hot chocolate in mug pour water
55:50
into mud stir put mug in microwave set
56:00
the microwave for one minute please wait
56:04
get mug out of my Chloe put whipped
56:11
cream chocolate it's time to drink hot
56:16
chocolate time to clean up when you are
56:20
finished white hands right now
56:24
[Music]
56:26
clear the table wipe the table dry the
56:30
table learning goals and objectives
56:37
students will be able to do what exactly
56:42
[Music]
57:26
[Music]
57:39
[Music]
57:45
[Music]
58:08
[Music]
58:47
putting it all together it's a stressful
58:53
job I'm not gonna lie I mean it's it's
58:56
draining I come home and I am I'm really
58:58
tired I just want to take a hot shower
59:00
and light up and just hide under my
59:04
covers for like two hours
59:05
I'm ready to go out and face the world
59:06
again but it's a rewarding job I mean I
59:09
enjoy going there enjoy working with the
59:11
kids I learned something new every
59:13
single day about myself about them the
59:17
world and trying to be able to put
59:23
yourself in that their perspective and
59:25
how they see the world is it's really
59:27
fascinating the world of autism is
59:30
something that
59:33
we don't fully understand perhaps if I
59:38
had my own kids at home I would I don't
59:40
know
59:42
but each child is just marrying Inc and
59:46
has their own unique challenges of some
59:48
quirks and personality traits that
59:56
really makes them special they are
60:00
really special in their parot their
60:04
positive that's that's definitely away
60:07
some of the negative behaviors or
60:10
stereotypes that people associate with
60:12
autism or people with autism
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I work everyday with these kids and I
60:44
get to go home to the environment where
60:46
there is no autism and they are two
60:50
totally different universes and it's
60:53
really hard to sometimes they articulate
60:55
with other adults in my life you know
60:58
what my daily life is like what we go
61:02
through every day at work
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[Applause]
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she was house different the world of
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autism image you know repeating
61:41
something 150 to 200 times a day to the
61:44
same kid because he doesn't remember
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being aware of all these sensory issues
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making sure that you know the volume in
61:55
the room is not too loud so waiting in
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the room is not too bright all of these
62:00
little accommodations and then we in
62:02
that world and you go out into the
62:04
public it's difficult to go from such a
62:10
modified setting to the outside world
62:13
where nobody has awareness
62:15
nobody is accommodating to these
62:17
individuals what is happening in America
62:21
in 2018 the California Department of
62:26
Education has released a study showing
62:29
that the california public school
62:31
students that are diagnosed with autism
62:32
has dramatically increased from 2001 to
62:37
2016
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however the autism rates in America vary
63:08
slightly by state for example Alabama
63:12
has the lowest reported rate of autism
63:17
in the nation with one out of every 175
63:23
children
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now compare this to a state like New
63:38
Jersey which has a reported autism rate
63:41
of one out of every 46 children
63:46
classrooms are filling up schools all
63:49
across America in self-contained autism
63:52
classrooms autism therapeutic Day
63:54
schools are running out of space they're
63:57
running out of money
63:58
and they don't have adequate staff to be
64:01
able to support these individuals - the
64:03
best - they're the best of their
64:06
abilities
64:21
while on the train commuting I often
64:24
think about what our public education
64:26
system will look like by 2025 or 2030
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2030 what is the bigger picture there is
64:41
one organization called talked about
64:44
curing autism which often releases
64:47
information on current studies recently
64:50
they published an article about the
64:54
annual costs of autism on our society
64:58
along with the rising rates of autism
65:02
comes the rising costs in autism related
65:06
expenses their study has projected the
65:10
new cost on our society by 2025 to reach
65:15
one trillion dollars annually
65:22
that's only if the autism rates continue
65:25
to stabilize at 168 if they are at 145
65:30
or get higher these costs will also get
65:34
higher
65:58
what is the solution well the solution
66:00
is going to be more funding and more
66:02
understanding and it's just an overall
66:04
societal change
66:06
starting with probably pop culture in
66:10
the mainstream media we need to start
66:12
having more programs and more television
66:15
shows talking about autism related
66:18
topics whether it's having TV shows with
66:24
characters that have disabilities such
66:27
as autism that may be not verbal and
66:31
Sesame Street actually has a character
66:34
with autism named Julia which is a start
66:37
but it took 40 years to get here Sesame
66:41
Street's on the right right track but
66:43
what about all the other networks that
66:47
could have shows cable networks regular
66:51
television networks they too should be
66:55
broadcasting more shows and having more
66:59
news broadcasts and information about
67:04
autism and autism related topics
67:07
especially those that are more positive
67:09
and staying away from you know that
67:13
negativity some of the stereotypes or
67:17
you know some of that fatalism kind of
67:19
mentality that if you have a child with
67:22
autism that's it your family's ruined at
67:24
you or ruined the child ruin know
67:27
everyone has potential and it's just a
67:30
matter of unlocking that potential
67:38
I think about how long is it going to
67:42
take our society to wake up and make the
67:45
appropriate adjustments to accommodate
67:47
this rapidly growing population of kids
67:50
with autism
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[Music]
67:59
these kids are going to become teenagers
68:01
which are then going to become adults
68:03
which are then eventually going to be in
68:06
the adult population so we have to help
68:10
them with their skills with these early
68:12
intervention program now while the
68:15
younger they are younger so they can use
68:18
those skills that have a higher quality
68:19
of life because regardless if that
68:22
doesn't happen the public's support
68:25
safety nets are going to have to kick in
68:27
to support them for 22 or 23 until age
68:31
60 70 or 80 whether it be in a group
68:36
home or large residential facility
68:38
nursing homes etc that's something we're
68:42
going to have to or won't have to think
68:44
about that and then of course you know
68:47
on the state local and federal level
68:49
there needs to be funding
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