Would you like to inspect the original subtitles? These are the user uploaded subtitles that are being translated:
1
00:00:00,000 --> 00:00:03,080
The following program
me contains adult themes
2
00:00:03,120 --> 00:00:06,240
and scenes which some
viewers may find distressing.
3
00:00:40,560 --> 00:00:43,240
In the beginning when
I was first convicted,
4
00:00:43,280 --> 00:00:45,280
I felt like Alice In Wonderland.
5
00:00:47,040 --> 00:00:49,760
Down the rabbit hole
in this strange place
6
00:00:49,800 --> 00:00:53,320
that doesn't follow any rules that
I'm used to or anything like that.
7
00:00:59,520 --> 00:01:03,880
When I came out, I remember I
went to my hairstylist, and.
8
00:01:03,920 --> 00:01:05,960
I gave a big sigh,
9
00:01:06,000 --> 00:01:08,320
and I said, "OK, you're
gonna be my first experience
10
00:01:08,360 --> 00:01:12,200
with experimenting with
how much I say or don't say
11
00:01:12,240 --> 00:01:14,720
about where I've been the
past couple of years,"
12
00:01:14,760 --> 00:01:17,160
and where I've been
is - I was in prison.
13
00:01:26,760 --> 00:01:28,440
My inclination,
14
00:01:28,480 --> 00:01:32,000
you know, here I am
sitting here doing this, is
15
00:01:32,040 --> 00:01:35,520
you know, I don't mind
people knowing because
16
00:01:35,560 --> 00:01:38,240
you know, I'm not
guilty of a crime, so...
17
00:03:42,720 --> 00:03:44,720
Derrick, let's go.
18
00:03:47,760 --> 00:03:51,040
Are you ready to get up?
19
00:03:57,400 --> 00:03:58,640
Good morning.
20
00:04:00,720 --> 00:04:02,400
Come on.
21
00:04:02,600 --> 00:04:05,120
Come on.
22
00:04:07,280 --> 00:04:11,560
I remember when they brought
Derrick home from the hospital.
23
00:04:11,600 --> 00:04:15,160
And I was just disappointed. I was like, "I
got a baby brother. I wanted a little sister."
24
00:04:17,600 --> 00:04:20,440
And then when they brought him
in the house, and I saw him,
25
00:04:20,480 --> 00:04:22,640
it was like an
instant connection.
26
00:04:22,680 --> 00:04:26,440
Everything was fine, you know.
Nothing out of the ordinary.
27
00:04:29,360 --> 00:04:32,760
I just remember that a certain
point he became very listless,
28
00:04:32,800 --> 00:04:35,440
he didn't move much.
29
00:04:39,440 --> 00:04:42,680
He wouldn't wake up. You
know, he slept all the time.
30
00:04:44,560 --> 00:04:46,800
He wasn't doing what
he was supposed to do.
31
00:04:46,840 --> 00:04:49,720
Like he wasn't sucking, he
wasn't holding his bottle.
32
00:04:50,560 --> 00:04:52,560
And he couldn't hold his head.
33
00:04:53,440 --> 00:04:56,040
I would ask the doctor, "Well,
what's wrong with Derrick?"
34
00:04:56,080 --> 00:04:59,160
And he said, "Oh, you're
comparing him to your older son.
35
00:04:59,200 --> 00:05:00,680
He'll be alright."
36
00:05:00,720 --> 00:05:03,960
And I says, "No,
something's not right."
37
00:05:09,000 --> 00:05:12,480
Early on, Derrick had
a series of seizures.
38
00:05:16,720 --> 00:05:19,880
So then they took Derrick,
they put him in a sound room.
39
00:05:21,280 --> 00:05:25,560
And they would do the lights
for his eyes to follow, and
40
00:05:25,600 --> 00:05:27,480
he just wouldn't react,
41
00:05:27,520 --> 00:05:29,200
or couldn't.
42
00:05:30,040 --> 00:05:33,720
And that's when they told me
that he has cerebral palsy,
43
00:05:33,760 --> 00:05:36,360
mm-hm, and he would
never, you know,
44
00:05:36,400 --> 00:05:38,400
be able to
45
00:05:39,360 --> 00:05:42,480
do as normal children would do.
46
00:05:42,520 --> 00:05:43,680
Mm-hm.
47
00:05:45,680 --> 00:05:47,440
Derrick visited a
few psychologists.
48
00:05:47,480 --> 00:05:50,880
They deemed him, as the term
they used, mentally retarded,
49
00:05:50,920 --> 00:05:53,400
non-verbal with cerebral palsy.
50
00:05:54,200 --> 00:05:56,440
You know, then not knowing
what the heck that meant,
51
00:05:56,480 --> 00:05:58,720
it just meant Derrick can't
walk, Derrick can't talk.
52
00:05:58,760 --> 00:06:01,040
Yes.
53
00:06:01,080 --> 00:06:03,080
It's all gone.
54
00:06:07,240 --> 00:06:09,240
It's all gone. You're done.
55
00:06:10,120 --> 00:06:12,760
You're done, mm-hm.
56
00:06:13,600 --> 00:06:15,440
OK.
57
00:06:30,040 --> 00:06:32,240
Take your hands out your
ears. What you want?
58
00:06:32,280 --> 00:06:34,320
What's the problem?
59
00:06:34,360 --> 00:06:36,000
Hm?
60
00:07:07,720 --> 00:07:09,720
You know the routine.
61
00:07:11,040 --> 00:07:14,400
One finger. What's that?
Shh. You signing me?
62
00:07:15,480 --> 00:07:16,680
Hm?
63
00:07:30,400 --> 00:07:33,360
Eventually, the seizures
started to subside,
64
00:07:33,400 --> 00:07:35,800
but what his
cognitive level was,
65
00:07:35,840 --> 00:07:38,840
I didn't have a way
of assessing that.
66
00:07:40,080 --> 00:07:42,240
I know that he was listless
for a point in time,
67
00:07:42,280 --> 00:07:45,320
and then all of a sudden there
was an awakening of sorts,
68
00:07:45,360 --> 00:07:47,640
where he was in the world.
69
00:07:53,600 --> 00:07:57,360
Whenever we would lock eyes,
like, there was recognition there.
70
00:07:57,400 --> 00:07:59,200
I just began to see Derrick,
71
00:07:59,240 --> 00:08:01,680
you know, develop
his own personality
72
00:08:01,720 --> 00:08:03,600
and kind of come into his own.
73
00:08:03,640 --> 00:08:06,000
Oh! They were inseparable.
74
00:08:06,040 --> 00:08:08,640
Derrick would come
home after school.
75
00:08:08,680 --> 00:08:10,520
John would run home,
76
00:08:10,560 --> 00:08:12,240
meet Derrick's bus,
77
00:08:12,280 --> 00:08:16,120
get Derrick in the house, call
me, "Ma, we in the house."
78
00:08:16,160 --> 00:08:18,080
At a certain point, I
just threw him on my back.
79
00:08:18,120 --> 00:08:20,760
Play together, get
into mischief together.
80
00:08:20,800 --> 00:08:23,440
You know, wherever I
go, Derrick has to go.
81
00:08:29,040 --> 00:08:32,840
Derrick's a character. You
know, he loves to give hugs.
82
00:08:32,880 --> 00:08:34,960
He just loves to
smile a lot, you know.
83
00:08:35,000 --> 00:08:37,720
You know when he's happy.
84
00:08:37,760 --> 00:08:40,160
He used to do, we called it,
"the Stevie Wonder dance".
85
00:08:40,200 --> 00:08:42,440
You know, when Stevie Wonder
is playing on the piano
86
00:08:42,480 --> 00:08:45,280
and really feeling the music, and
his head would sway side to side.
87
00:08:45,320 --> 00:08:47,480
And so Derrick would do
that from time to time too,
88
00:08:47,520 --> 00:08:50,360
especially in church when he's,
like, really feeling the music.
89
00:08:57,960 --> 00:09:00,920
Sometimes he's self-abusive.
We can be somewhere,
90
00:09:00,960 --> 00:09:03,720
and then all of a sudden, "Ah,"
he'll put his hand in his mouth
91
00:09:03,760 --> 00:09:05,920
and start banging his
head and his knee.
92
00:09:05,960 --> 00:09:09,360
And I don't know why.
Maybe he's frustrated, um,
93
00:09:09,400 --> 00:09:11,440
but he can't communicate.
94
00:09:11,480 --> 00:09:14,240
So what is going on
in your head, Derrick?
95
00:09:14,280 --> 00:09:16,760
Like I really
96
00:09:16,800 --> 00:09:19,560
to me that was
the great mystery.
97
00:09:39,040 --> 00:09:41,360
- Camera's rolling.
- OK. Everything's fine.
98
00:09:43,000 --> 00:09:46,080
Tell me the story
of how you met.
99
00:09:49,520 --> 00:09:52,200
I'm pretty sure,
100
00:09:52,240 --> 00:09:56,080
or at least, I'm
hopeful that I haven't
101
00:09:56,120 --> 00:09:58,840
been rewriting
things in my head.
102
00:09:58,880 --> 00:10:01,680
I don't... didn't wanna do that.
103
00:10:01,720 --> 00:10:04,080
You know, I see how
easily it can happen.
104
00:10:12,600 --> 00:10:15,120
Our next speaker is
Anna Stubblefield,
105
00:10:15,160 --> 00:10:19,360
the Director of the Philosophy
Department at Rutgers.
106
00:10:19,400 --> 00:10:21,520
Thanks, David, is
that one working?
107
00:10:21,560 --> 00:10:23,560
This one? How's this one?
108
00:10:23,600 --> 00:10:25,360
Ah, that's better. OK.
109
00:10:25,400 --> 00:10:27,400
'I was teaching
110
00:10:27,440 --> 00:10:31,040
in the American Studies doctoral
program me at Rutgers Newark.'
111
00:10:31,080 --> 00:10:35,480
Race, class, gender, and sexual
orientation and disability
112
00:10:35,520 --> 00:10:37,880
are inextricably intertwined,
113
00:10:37,920 --> 00:10:40,840
such that none of these concepts
114
00:10:40,880 --> 00:10:43,240
would exist as it does
without the others.
115
00:10:43,280 --> 00:10:47,160
'And John was one
of my students.'
116
00:10:48,680 --> 00:10:50,920
When I was doing my
PhD at Rutgers...
117
00:10:52,080 --> 00:10:54,040
When a person cannot understand
118
00:10:54,080 --> 00:10:57,200
Anna Stubblefield was
a philosopher of race,
119
00:10:58,080 --> 00:11:01,440
and also had a class
about disability studies.
120
00:11:01,480 --> 00:11:05,080
Alongside theorising about
disability and ethics,
121
00:11:05,120 --> 00:11:06,760
I also provide support
122
00:11:06,800 --> 00:11:09,400
to people labelled with
developmental disabilities.
123
00:11:09,440 --> 00:11:12,680
I work with people who
cannot communicate vocally
124
00:11:12,720 --> 00:11:14,560
to provide them with access
125
00:11:14,600 --> 00:11:17,840
to alternative forms of verbal
expression and to literacy.
126
00:11:17,880 --> 00:11:20,480
You know, while I grew up
with a disabled brother,
127
00:11:20,520 --> 00:11:22,600
I was not familiar with
disability studies.
128
00:11:22,640 --> 00:11:25,960
And I think, as an
instructor, she was great.
129
00:11:26,000 --> 00:11:28,120
And as a scholar, she
was great as well.
130
00:11:31,080 --> 00:11:35,440
The course was
looking at the notion
131
00:11:35,480 --> 00:11:38,040
of intelligence as a concept.
132
00:11:39,880 --> 00:11:43,600
For example, the notion that if
somebody can't speak, it must be
133
00:11:43,640 --> 00:11:46,280
because they're too stupid, and
there's just nothing in their head.
134
00:11:46,320 --> 00:11:50,040
That just is not the case.
135
00:11:50,080 --> 00:11:51,600
It's not the case.
136
00:11:51,640 --> 00:11:55,440
Lacking speech doesn't mean that
you don't have anything to say.
137
00:11:55,480 --> 00:11:57,920
It doesn't mean that
you can't use language.
138
00:11:57,960 --> 00:12:00,680
If somebody can just get you
access to a way to do it.
139
00:12:02,880 --> 00:12:05,160
Can you describe what
your world was like
140
00:12:05,200 --> 00:12:07,840
before you were
able to communicate?
141
00:12:12,000 --> 00:12:14,000
Can you describe that for me?
142
00:12:17,640 --> 00:12:20,320
Somewhere along the course, we
ended up watching this video.
143
00:12:22,520 --> 00:12:24,840
The person who was in
the video had autism.
144
00:12:24,880 --> 00:12:27,320
Want to go to Grandma. You
want to go to Grandma's?
145
00:12:27,360 --> 00:12:30,280
Want to go to Grandma. Yeah,
Grandma is gonna come here...
146
00:12:30,320 --> 00:12:31,720
Sue Rubin,
147
00:12:31,760 --> 00:12:34,880
she's somebody who's perceived
by her parents and everybody
148
00:12:34,920 --> 00:12:39,600
as severely intellectually
impaired and just not there.
149
00:12:39,640 --> 00:12:42,120
Yeah. Yeah.
150
00:12:42,160 --> 00:12:46,280
But then she's given access
to a way to communicate.
151
00:12:46,320 --> 00:12:49,400
"When I was 13, my mother
said she had seen someone"
152
00:12:49,440 --> 00:12:52,240
start to communicate using
a keyboard and support.
153
00:12:53,640 --> 00:12:56,040
It's called facilitated
communication.
154
00:12:57,320 --> 00:13:00,960
"As I began to type, my
mind began to wake up."
155
00:13:02,400 --> 00:13:04,720
Bye-bye. 'The person
who was in the video'
156
00:13:04,760 --> 00:13:07,920
used a keyboard and eventually
became proficient enough
157
00:13:07,960 --> 00:13:11,120
to communicate the
complexities of her life.
158
00:13:12,080 --> 00:13:14,240
She was able to do
college-level work,
159
00:13:14,280 --> 00:13:17,760
and she graduated with a dual
major, etcetera, etcetera.
160
00:13:17,800 --> 00:13:19,440
And this was her story.
161
00:13:20,520 --> 00:13:23,640
"I think I was lost." W-A.
162
00:13:23,680 --> 00:13:25,960
"In some way.
163
00:13:26,000 --> 00:13:29,360
I... acted like my
worst nightmare."
164
00:13:29,400 --> 00:13:31,880
Y-E.
165
00:13:31,920 --> 00:13:33,920
"Yes."
166
00:13:35,040 --> 00:13:36,880
At that time, I had
never heard anything
167
00:13:36,920 --> 00:13:39,480
about this facilitated
communication.
168
00:13:43,760 --> 00:13:46,760
After that class, John, he said,
169
00:13:46,800 --> 00:13:50,160
"This woman in this film
reminds me a lot of my brother."
170
00:13:51,320 --> 00:13:53,480
How she moves, how
she looks, and then...
171
00:13:53,520 --> 00:13:56,680
I see her typing, and
she's going to college,
172
00:13:56,720 --> 00:13:58,680
and we've always been told
173
00:13:58,720 --> 00:14:01,600
that my brother, you know, basically,
he should be institutionalised.
174
00:14:01,640 --> 00:14:04,480
But we've always felt that maybe
175
00:14:04,520 --> 00:14:07,640
"there's something
more going on there."
176
00:14:07,680 --> 00:14:10,200
We recognised that
Derrick had a disability.
177
00:14:10,240 --> 00:14:12,560
But we never thought
that he was incapable
178
00:14:12,600 --> 00:14:14,440
of doing any number of things.
179
00:14:15,400 --> 00:14:18,440
I always knew that there
was something there.
180
00:14:19,680 --> 00:14:22,080
Like right on cue,
at certain points,
181
00:14:22,120 --> 00:14:25,040
Derrick would say, "Uh, uh, uh," you
know, Derrick was paying attention.
182
00:14:25,080 --> 00:14:27,480
Derrick wanted to weigh
in on this discussion.
183
00:14:27,520 --> 00:14:29,960
'When we would go
to get haircuts, '
184
00:14:30,000 --> 00:14:32,280
I would sit there and
read The Daily News.
185
00:14:32,320 --> 00:14:35,440
And Derrick would be sitting next
to me, and so every so often,
186
00:14:35,480 --> 00:14:38,480
Derrick would look over my
shoulder and look in the newspaper.
187
00:14:38,520 --> 00:14:42,040
And was it a mimicking
behaviour? Maybe.
188
00:14:42,080 --> 00:14:44,280
But he has this way of
189
00:14:44,320 --> 00:14:47,360
appearing to be
absorbing information.
190
00:14:47,400 --> 00:14:49,640
And so there were dozens
191
00:14:49,680 --> 00:14:52,760
of these kinds of moments
through our lifetime.
192
00:14:55,920 --> 00:14:57,720
I love my brother to death,
193
00:14:57,760 --> 00:15:01,720
and I always want nothing
but the best for him.
194
00:15:03,040 --> 00:15:05,520
And so I asked her, "I
would love to hear more
195
00:15:05,560 --> 00:15:09,200
about facilitated communication.
Who can I talk to?"
196
00:15:11,440 --> 00:15:14,080
I told him the nearest
place on the East Coast
197
00:15:14,120 --> 00:15:16,600
where there's support for
facilitated communication
198
00:15:16,640 --> 00:15:18,680
is Syracuse University.
199
00:15:18,720 --> 00:15:21,240
But it's gonna be too expensive.
200
00:15:21,280 --> 00:15:22,960
So I said to John,
201
00:15:23,000 --> 00:15:25,320
"If you wanted,
202
00:15:25,360 --> 00:15:27,840
I could at least just kind of
203
00:15:27,880 --> 00:15:30,880
do some initial stuff, kind
of see if it's working."
204
00:15:40,280 --> 00:15:43,560
She was Miss Anna.
205
00:15:43,600 --> 00:15:45,680
You know, she could
do great things.
206
00:15:45,720 --> 00:15:48,520
She was gonna move
mountains, and...
207
00:15:49,360 --> 00:15:53,640
I... accepted her at her word.
208
00:18:34,800 --> 00:18:38,440
When I was a child, I came
from an unusual family.
209
00:18:38,480 --> 00:18:41,080
My mom did work with people
210
00:18:41,120 --> 00:18:43,360
with a range of
physical disabilities,
211
00:18:43,400 --> 00:18:46,040
with intellectual disabilities,
who came to the house.
212
00:18:46,080 --> 00:18:48,800
My mom had a T-shirt
with the slogan,
213
00:18:48,840 --> 00:18:51,080
"Labels are for
jars, not people."
214
00:18:52,080 --> 00:18:55,320
I found disability interesting
215
00:18:55,360 --> 00:18:57,320
because of that exposure.
216
00:18:58,920 --> 00:19:02,440
And so I got my dad to, you
know, build me a pair of crutches
217
00:19:02,480 --> 00:19:04,800
so I could, you know,
pretend to be post-polio,
218
00:19:04,840 --> 00:19:07,360
or have cerebral palsy,
or something like that.
219
00:19:07,400 --> 00:19:11,080
I'd tie a blindfold on
and spend all afternoon...
220
00:19:11,920 --> 00:19:13,920
During her elementary years,
221
00:19:13,960 --> 00:19:16,200
I taught her how
to write Braille.
222
00:19:17,120 --> 00:19:19,400
At her request, I got
her a blind pen pal.
223
00:19:20,400 --> 00:19:22,600
She was interested
in sign language,
224
00:19:22,640 --> 00:19:24,960
and I think she may have
learned some of that.
225
00:19:25,000 --> 00:19:28,040
I was fascinated by
the way in which,
226
00:19:28,080 --> 00:19:30,600
you know, it's not
really the impairment,
227
00:19:30,640 --> 00:19:32,960
it's the environment
228
00:19:33,000 --> 00:19:35,680
that creates
impairments for people.
229
00:19:36,520 --> 00:19:41,080
Growing up, I got that message very
powerfully, how in our society,
230
00:19:41,120 --> 00:19:44,000
it's like we want everybody to
walk through the same-size door.
231
00:19:44,040 --> 00:19:47,280
And if you don't fit in that door,
there's something wrong with you,
232
00:19:47,320 --> 00:19:49,560
and that doesn't
have to be that way.
233
00:19:52,920 --> 00:19:56,400
Welcome to the 1993 Conference
234
00:19:56,440 --> 00:20:00,720
on Facilitated Communication
in Syracuse sponsored by
235
00:20:00,760 --> 00:20:04,680
the Facilitated Communication
Institute at Syracuse University.
236
00:20:05,680 --> 00:20:08,920
I learned about
facilitated communication
237
00:20:08,960 --> 00:20:11,440
in December of 1990
at a conference.
238
00:20:14,080 --> 00:20:19,120
Rosemary Crossley reported on
the work she'd done in Australia.
239
00:20:21,840 --> 00:20:23,520
I had done some work
240
00:20:23,560 --> 00:20:26,120
with a girl named Anne McDonald
241
00:20:26,160 --> 00:20:29,440
who had athetoid cerebral palsy.
242
00:20:29,480 --> 00:20:31,240
Couldn't move her hands.
243
00:20:31,280 --> 00:20:34,720
Couldn't speak.
There was nothing.
244
00:20:35,640 --> 00:20:37,960
We had a spelling board,
245
00:20:38,000 --> 00:20:40,600
but because she
had cerebral palsy,
246
00:20:40,640 --> 00:20:43,280
her hands would move so much
247
00:20:43,320 --> 00:20:46,880
that she couldn't
actually hit a target.
248
00:20:46,920 --> 00:20:49,440
I tried what would happen
249
00:20:49,480 --> 00:20:52,440
if I supported her, um
250
00:20:52,480 --> 00:20:54,800
under her upper arm.
251
00:20:54,840 --> 00:20:58,640
She could then
move from the elbow
252
00:20:58,680 --> 00:21:04,320
and do better in
selecting items.
253
00:21:05,880 --> 00:21:09,160
And it turned out
that she could spell.
254
00:21:10,240 --> 00:21:12,560
She was VERY smart.
255
00:21:12,600 --> 00:21:15,080
We gave her the page-turner
256
00:21:15,120 --> 00:21:17,920
so that every time
she hit a button,
257
00:21:17,960 --> 00:21:19,640
the page would turn,
258
00:21:19,680 --> 00:21:23,560
and suddenly she
could read books.
259
00:21:24,960 --> 00:21:27,400
As soon as I heard
their presentation,
260
00:21:27,440 --> 00:21:29,920
I knew that's what I needed.
261
00:21:29,960 --> 00:21:33,640
This is how to help all these
kids who I used to work with.
262
00:21:40,480 --> 00:21:42,720
My mother's one of the
first people in the country
263
00:21:42,760 --> 00:21:46,680
who started doing training workshops
in facilitated communication.
264
00:21:48,120 --> 00:21:50,240
When she came back
and started using it,
265
00:21:50,280 --> 00:21:52,440
she was videotaping everybody,
266
00:21:52,480 --> 00:21:54,640
and I ended up being the
one who ran the camera.
267
00:21:54,680 --> 00:21:57,440
So I was there when she
first started using it.
268
00:21:57,480 --> 00:21:59,600
I was part of that moment.
269
00:22:03,880 --> 00:22:06,400
To see people for the first time
270
00:22:06,440 --> 00:22:09,400
be able to type out something.
271
00:22:09,440 --> 00:22:13,960
Being part of that was,
you know... was amazing.
272
00:22:14,000 --> 00:22:16,360
We find that once we open
this world for the kids,
273
00:22:16,400 --> 00:22:19,040
they are social now,
they are appropriate.
274
00:22:19,080 --> 00:22:21,320
They do have language.
They do understand.
275
00:22:21,360 --> 00:22:23,080
I couldn't believe
what I was seeing.
276
00:22:23,120 --> 00:22:25,880
Cherise has typed 120
poems, nine short stories.
277
00:22:25,920 --> 00:22:28,360
She talks about
everything she feels.
278
00:22:30,680 --> 00:22:34,280
We understood that people knew
279
00:22:34,320 --> 00:22:37,440
what it was they
wanted to communicate.
280
00:22:37,480 --> 00:22:41,320
And we needed to just
provide some means
281
00:22:41,360 --> 00:22:43,960
to make that
possible physically.
282
00:22:53,920 --> 00:22:58,040
When I met Derrick, I'd been
told he had cerebral palsy,
283
00:22:58,080 --> 00:23:00,120
and that was all.
284
00:23:01,160 --> 00:23:03,920
He walks. He needs to
hold onto somebody's arm,
285
00:23:03,960 --> 00:23:06,480
have a little support.
286
00:23:06,520 --> 00:23:08,800
He can focus his gaze,
287
00:23:08,840 --> 00:23:11,480
but his eyes kind of
go off, his head turns.
288
00:23:11,520 --> 00:23:13,920
If you're not used to that,
289
00:23:13,960 --> 00:23:18,320
we see that as signs of
lack of intelligence.
290
00:23:18,360 --> 00:23:20,480
I've seen enough people
like that in my life
291
00:23:20,520 --> 00:23:22,280
to know that that's
simply not true.
292
00:23:22,320 --> 00:23:25,800
So I don't register
things that way.
293
00:23:28,560 --> 00:23:31,400
So I had just cut out some
pictures from magazines
294
00:23:31,440 --> 00:23:33,480
or drawn some pictures.
295
00:23:33,520 --> 00:23:35,280
John and Daisy were
in the room watching.
296
00:23:35,320 --> 00:23:37,920
And I said to Derrick,
297
00:23:37,960 --> 00:23:40,080
"I'm gonna ask you
some questions,
298
00:23:40,120 --> 00:23:42,360
and I'm not asking them
299
00:23:42,400 --> 00:23:45,160
because I don't think you're
smart enough or anything.
300
00:23:45,200 --> 00:23:48,360
I just want to see what happens
when you try to point to something."
301
00:23:51,080 --> 00:23:53,320
So I watched and he
302
00:23:53,360 --> 00:23:56,840
would kind of start moving his
arm. It would go a little ways.
303
00:23:56,880 --> 00:23:59,240
And then he'd have this kind
of muscle jerk reaction,
304
00:23:59,280 --> 00:24:01,640
which turned out
to be very typical.
305
00:24:01,680 --> 00:24:04,040
You can see how hard he works
306
00:24:04,080 --> 00:24:08,400
to try to have the least little
bit of control over his arm,
307
00:24:08,440 --> 00:24:10,440
and it's slow.
308
00:24:11,800 --> 00:24:15,720
If you've got cerebral palsy, you
might be able to get your hand
309
00:24:15,760 --> 00:24:18,720
to something you're pointing at,
but it might take you a minute.
310
00:24:18,760 --> 00:24:20,720
How do you have a
conversation like that?
311
00:24:22,960 --> 00:24:26,480
So I had started with just a
little support on his elbow.
312
00:24:26,520 --> 00:24:28,960
And that was it initially,
that freed him up enough,
313
00:24:29,000 --> 00:24:31,400
and then he could select
which picture he wanted.
314
00:24:36,920 --> 00:24:38,120
So, so far, so good.
315
00:24:40,280 --> 00:24:42,800
Then I said, "Now
what I want to do is
316
00:24:42,840 --> 00:24:45,760
see where you're
at with literacy."
317
00:24:45,800 --> 00:24:48,280
So I had cards that just
had letters on them,
318
00:24:48,320 --> 00:24:49,960
kind of like doing Boggle,
319
00:24:50,000 --> 00:24:53,280
so if you have A, B, C, and T,
320
00:24:53,320 --> 00:24:56,200
you can spell cat,
you can spell bat.
321
00:24:56,240 --> 00:25:00,080
And when I asked him to spell
as many words as he could
322
00:25:00,120 --> 00:25:04,960
using these four letters, he made
a very good showing with that.
323
00:25:06,640 --> 00:25:09,440
But it's one thing to
reach your whole hand
324
00:25:09,480 --> 00:25:12,160
toward a very large target.
325
00:25:12,200 --> 00:25:13,960
It's an entirely different thing
326
00:25:14,000 --> 00:25:17,240
to get one finger pushing a key.
327
00:25:17,280 --> 00:25:22,800
So I had this small, very
lightweight, portable keyboard
328
00:25:22,840 --> 00:25:26,400
with a small LED
display called the Neo.
329
00:25:26,440 --> 00:25:30,840
I ended up where I was keeping
his fingers folded down
330
00:25:30,880 --> 00:25:33,360
so that his index
finger was isolated.
331
00:25:35,120 --> 00:25:37,880
And the first thing
I asked him to do
332
00:25:37,920 --> 00:25:41,680
was point to the
letter H, the letter T.
333
00:25:41,720 --> 00:25:43,760
And he started making mistakes.
334
00:25:43,800 --> 00:25:46,560
So he mixed up the A and the H,
335
00:25:46,600 --> 00:25:48,640
and he mixed up the T and the F,
336
00:25:48,680 --> 00:25:51,040
and the U and the V.
337
00:25:51,080 --> 00:25:55,120
What I realised was that the
alphabetical-order letter board
338
00:25:55,160 --> 00:25:57,400
that I'd set up were
all lowercase letters
339
00:25:57,440 --> 00:26:00,560
and on the Neo is
capital letters.
340
00:26:00,600 --> 00:26:02,640
And so the difference
between the A and the H
341
00:26:02,680 --> 00:26:05,120
was one little line
across the top of the A,
342
00:26:05,160 --> 00:26:06,840
that sort of thing.
343
00:26:06,880 --> 00:26:10,000
When he was making those mistakes,
I just said, "No, no, you're wrong.
344
00:26:10,040 --> 00:26:13,240
I asked for the A, you hit
the H. Here's the A here."
345
00:26:13,280 --> 00:26:16,040
And then I went through some other
letters, and then I would go back.
346
00:26:16,080 --> 00:26:18,200
He didn't make the
same mistake twice.
347
00:26:20,680 --> 00:26:23,640
So he was a really fast learner.
348
00:26:23,680 --> 00:26:25,280
Tell him once, he's got it.
349
00:26:28,760 --> 00:26:32,680
It was like the
porch lights went on.
350
00:26:32,720 --> 00:26:34,760
And I was like, "Wow,
is he doing it?"
351
00:26:35,680 --> 00:26:39,160
And I felt very
excited about it.
352
00:26:40,920 --> 00:26:45,160
She said, "Don't forget
you're travelling with him",
353
00:26:45,200 --> 00:26:47,720
you're taking him places,
354
00:26:48,520 --> 00:26:50,720
and when you're taking him,
355
00:26:50,760 --> 00:26:52,840
"he's reading the signs."
356
00:26:52,880 --> 00:26:55,400
And, you know, I'm mama
357
00:26:57,080 --> 00:26:59,080
tell me what my sons can do.
358
00:27:03,200 --> 00:27:07,680
I was elated. I mean, I always knew
that there was something there.
359
00:27:07,720 --> 00:27:10,000
And so in a way,
360
00:27:10,040 --> 00:27:12,520
it somewhat confirmed
what I'd already knew.
361
00:27:13,480 --> 00:27:16,920
In the school that he attended, the
Essex County Day Training Programme,
362
00:27:16,960 --> 00:27:19,640
they had did some
remarkable things with him.
363
00:27:21,560 --> 00:27:23,576
They were able to get him
to the point where he can,
364
00:27:23,600 --> 00:27:26,080
you know, walk on his own.
365
00:27:26,120 --> 00:27:29,560
But there was this question
of intellectual capacity.
366
00:27:29,600 --> 00:27:32,920
And so to have this revelation
367
00:27:32,960 --> 00:27:36,880
that Derrick can do these
things, it was just like, "Wow."
368
00:27:36,920 --> 00:27:39,040
I knew it was there, and
I'm just happy for him.
369
00:28:04,200 --> 00:28:07,120
One day when Derrick came,
and I just asked him,
370
00:28:07,160 --> 00:28:09,880
"Did you do anything particularly
interesting this week?"
371
00:28:09,920 --> 00:28:11,920
And he typed "GM".
372
00:28:13,040 --> 00:28:16,360
His spelling was very, very
creative in the beginning.
373
00:28:16,400 --> 00:28:19,560
And I said, "Hm, you
know, did you play a game?
374
00:28:19,600 --> 00:28:21,880
"Was there some
kind of game?" No.
375
00:28:21,920 --> 00:28:24,440
"Gym, did you go
to the gym?" Yes.
376
00:28:24,480 --> 00:28:27,360
And then Daisy popped in with,
377
00:28:27,400 --> 00:28:30,640
"Oh, yeah, his day program
me had gone to a health club,
378
00:28:30,680 --> 00:28:33,960
and he had walked on a treadmill,
and he'd really enjoyed that."
379
00:28:35,440 --> 00:28:38,640
At that point, Daisy had
stepped outside the room.
380
00:28:39,760 --> 00:28:41,440
I said, "You know,
it's occurring to me
381
00:28:41,480 --> 00:28:44,840
that I never actually asked
you what you like to be called.
382
00:28:44,880 --> 00:28:48,320
Your brother told me your name was Derrick,
and I've been calling you, Derrick.
383
00:28:48,360 --> 00:28:51,040
Tell me what do you
want me to call you?"
384
00:28:53,920 --> 00:28:56,880
And he typed D-M-A-N.
385
00:28:58,600 --> 00:29:02,600
I was looking at that, and it didn't
look like any name that I recognised.
386
00:29:03,440 --> 00:29:05,640
Daisy came back in the
room at that point,
387
00:29:05,680 --> 00:29:08,680
and I said, "He typed D-M-A-N.
388
00:29:08,720 --> 00:29:11,720
Does that mean anything
to you? Does..."
389
00:29:11,760 --> 00:29:14,920
She said, "Oh! He had
this really great teacher,
390
00:29:14,960 --> 00:29:18,280
back when he was about 13 years
old, who used to call him DMan.
391
00:29:18,320 --> 00:29:20,920
That was the teacher who got
him out of the wheelchair
392
00:29:20,960 --> 00:29:22,400
and got him walking."
393
00:29:22,440 --> 00:29:24,480
So I said, "Is she right?"
394
00:29:24,520 --> 00:29:26,880
And he said, "Yes."
395
00:29:26,920 --> 00:29:30,040
So I called him DMan from there.
396
00:29:31,880 --> 00:29:34,240
That was a really
important moment.
397
00:29:34,280 --> 00:29:37,880
Being able to tell people
what you wanna be called
398
00:29:37,920 --> 00:29:41,520
is this important,
emotional aspect of life
399
00:29:41,560 --> 00:29:44,880
that we take away from
people when they can't speak.
400
00:30:04,680 --> 00:30:07,240
DMan and I saw each other
several hours a week.
401
00:30:08,400 --> 00:30:10,960
And over the course of the
year, as he speeded up,
402
00:30:11,000 --> 00:30:12,640
as his spelling
got a little better
403
00:30:13,640 --> 00:30:16,120
it went from a
couple-word answers
404
00:30:17,920 --> 00:30:20,080
to five-word answers
405
00:30:21,840 --> 00:30:24,360
to a whole sentence,
to a couple sentences.
406
00:30:26,880 --> 00:30:28,240
So by the end of a year,
407
00:30:28,280 --> 00:30:31,800
we could really have
a decent conversation.
408
00:30:33,080 --> 00:30:35,240
And he could then
be more expressive
409
00:30:35,280 --> 00:30:37,880
and more detailed about
what he had to say.
410
00:30:37,920 --> 00:30:41,040
And that was... that was
real progress. That's huge.
411
00:30:47,160 --> 00:30:50,120
I didn't really feel like I was
getting to know him as a person
412
00:30:50,160 --> 00:30:51,560
until he got to that stage.
413
00:31:02,040 --> 00:31:04,280
Somewhat early on,
Anna started saying
414
00:31:04,320 --> 00:31:07,800
Derrick had the intellectual
capacity to do high-level work
415
00:31:07,840 --> 00:31:11,920
and to put sentences together and
do all these different things.
416
00:31:11,960 --> 00:31:13,520
I was like, "Woah,
this is great."
417
00:31:13,560 --> 00:31:17,520
She told us, "Because Derrick was
hanging around you all for so long"
418
00:31:17,560 --> 00:31:21,240
and listened to your conversations,
and you went to movies,
419
00:31:21,280 --> 00:31:23,320
and you would watch TV,
420
00:31:23,360 --> 00:31:26,080
and so he's absorbing
all of these things,
421
00:31:26,120 --> 00:31:29,160
"and so that's how he built
his body of knowledge."
422
00:31:29,200 --> 00:31:32,480
Without, you know, going
through a peer-reviewed
423
00:31:32,520 --> 00:31:35,880
assessment of those assertions, I
was like, "OK, I buy that, cool."
424
00:31:42,520 --> 00:31:45,560
One of the things that
really bothered him was
425
00:31:45,600 --> 00:31:47,600
that he hadn't had
the opportunity
426
00:31:47,640 --> 00:31:50,760
to get a formal
education of any sort.
427
00:31:50,800 --> 00:31:52,920
His brother was getting
a doctoral degree,
428
00:31:52,960 --> 00:31:55,800
so he had watched his brother
and the whole process,
429
00:31:55,840 --> 00:31:59,720
and he really, really, really
wanted to have that also.
430
00:32:01,240 --> 00:32:02,960
So there was a course
431
00:32:03,000 --> 00:32:05,520
being offered on Saturday
mornings at Rutgers Newark.
432
00:32:05,560 --> 00:32:07,760
It was an African American
literature course,
433
00:32:07,800 --> 00:32:10,200
and that looked really
interesting to him.
434
00:32:18,680 --> 00:32:22,360
I guess the idea was for
Derrick to go to a class,
435
00:32:22,400 --> 00:32:25,320
possibly write papers, or at
least be able to show the work
436
00:32:25,360 --> 00:32:29,520
that may put him in line to
then go on and pursue a BA.
437
00:32:29,560 --> 00:32:31,760
I was getting towards the
end of my PhD program me,
438
00:32:31,800 --> 00:32:34,800
and so... you know, this
kind of thing, you know,
439
00:32:34,840 --> 00:32:37,640
Black scholar. My baby brother,
who was developmentally disabled,
440
00:32:37,680 --> 00:32:41,200
was gonna be a Black... could be
a Black scholar. I felt great.
441
00:32:44,160 --> 00:32:46,560
I sat in the class with him
442
00:32:46,600 --> 00:32:49,240
and provided communication
support for class.
443
00:33:00,800 --> 00:33:02,680
We ended up finding
him a student
444
00:33:02,720 --> 00:33:05,720
who would facilitate DMan for
doing part of the homework.
445
00:33:05,760 --> 00:33:07,640
Her name was Sheronda Jones.
446
00:33:07,680 --> 00:33:09,920
Sheronda met with
him outside of class
447
00:33:09,960 --> 00:33:12,320
for several hours a week
so he could read the book
448
00:33:12,360 --> 00:33:15,400
and then at least take a
crack at writing the essay.
449
00:33:15,440 --> 00:33:18,000
She had never taken this class.
450
00:33:18,040 --> 00:33:21,040
She never read the books. She
just provided the support.
451
00:33:36,680 --> 00:33:38,640
He wasn't doing
400-level writing,
452
00:33:39,480 --> 00:33:42,520
but he was correctly identifying
characters and plot elements.
453
00:33:42,560 --> 00:33:45,480
He clearly had read the book
and understood the book.
454
00:34:02,400 --> 00:34:04,240
From 1619,
455
00:34:04,280 --> 00:34:07,400
when 20 of us were sold by a
Dutch ship to the English...
456
00:34:07,440 --> 00:34:10,080
One day in class, the
professor started it out
457
00:34:10,120 --> 00:34:15,320
by showing a film on the
entire African diaspora.
458
00:34:17,440 --> 00:34:20,320
And DMan wrote something.
459
00:34:23,360 --> 00:34:25,000
He wasn't expressing himself
460
00:34:25,040 --> 00:34:28,160
as articulately as I
knew he was capable of,
461
00:34:28,200 --> 00:34:30,520
and I was typing back to him
because we were in class.
462
00:34:30,560 --> 00:34:32,200
So I typed back,
463
00:34:32,240 --> 00:34:35,840
"What if you said it this
way, wouldn't this be better?"
464
00:34:37,560 --> 00:34:40,520
And he typed, "I know
what you're saying,
465
00:34:40,560 --> 00:34:43,760
but just read it the way I wrote
it." And I said, "OK, fair enough."
466
00:34:43,800 --> 00:34:46,240
And then we got called
on right at that point.
467
00:34:47,400 --> 00:34:51,800
I couldn't resist. I was sort
of editing slightly as I read,
468
00:34:51,840 --> 00:34:54,680
which all it did
was make it worse.
469
00:34:54,720 --> 00:34:57,640
Screwed up the whole thing,
but I got to the end,
470
00:34:57,680 --> 00:35:00,200
and the discussion went on.
471
00:35:00,240 --> 00:35:02,160
He typed,
472
00:35:02,200 --> 00:35:06,720
"Never ever, ever, ever,
ever, ever do that again."
473
00:35:07,760 --> 00:35:10,160
I can tell DMan's mad.
474
00:35:10,200 --> 00:35:12,920
This was DMan furious.
475
00:35:12,960 --> 00:35:15,840
And I typed back,
"I'm so sorry."
476
00:35:15,880 --> 00:35:19,400
And he said, "I'm not mad,
but don't ever do that again."
477
00:35:19,440 --> 00:35:23,320
Because, you know, I did speak
for him and that was wrong.
478
00:35:24,160 --> 00:35:26,720
Needless to say, I
never did it before,
479
00:35:26,760 --> 00:35:28,720
and I never did it since.
480
00:35:28,760 --> 00:35:31,160
But he was pissed.
481
00:37:18,680 --> 00:37:21,640
About a year after
DMan started typing,
482
00:37:21,680 --> 00:37:25,520
my mother was organising this
panel with other FC users
483
00:37:25,560 --> 00:37:28,920
for the Society For
Disability Studies Conference,
484
00:37:28,960 --> 00:37:31,600
and she asked if he wanted
to be part of the panel.
485
00:37:33,480 --> 00:37:37,640
I like to arrange conferences
486
00:37:37,680 --> 00:37:40,280
that people with disabilities
487
00:37:40,320 --> 00:37:42,600
can actually do some presenting.
488
00:37:45,680 --> 00:37:49,200
What I had noticed was that,
in terms of the FC community,
489
00:37:49,240 --> 00:37:51,800
Derrick was the only African
American, and saw this
490
00:37:51,840 --> 00:37:55,080
as a very white space, and
in a way, Derrick was a
491
00:37:55,960 --> 00:37:58,240
a path breaker, a trailblazer.
492
00:37:58,280 --> 00:38:00,520
The Jackie Robinson of FC.
493
00:38:03,120 --> 00:38:06,000
The panel was on the right
to communication clause
494
00:38:06,040 --> 00:38:09,640
in the UN Convention
on Disability Rights.
495
00:38:09,680 --> 00:38:13,520
But I said to him, "Don't worry about
the official topic of the panel."
496
00:38:13,560 --> 00:38:16,920
Just write something about
the right to communicate,
497
00:38:16,960 --> 00:38:19,000
or what it means to you
to be able to communicate.
498
00:38:21,800 --> 00:38:24,640
He wanted to be able to refer
to some of the literature.
499
00:38:24,680 --> 00:38:27,960
I was getting books for him.
Steven Pinker, who's a neurologist,
500
00:38:28,000 --> 00:38:30,640
who's written about language
being very hardwired.
501
00:38:30,680 --> 00:38:33,160
I got him some Piaget.
502
00:38:33,200 --> 00:38:35,680
It wasn't much, but it
was to give him a taste.
503
00:38:36,840 --> 00:38:40,720
So he was reading the books,
we were talking about things.
504
00:38:40,760 --> 00:38:43,560
What he wrote for the panel
505
00:38:43,600 --> 00:38:45,960
was very impressive to me.
506
00:38:46,000 --> 00:38:48,240
It was less than a page,
507
00:38:48,280 --> 00:38:50,920
but he had a choice of words,
508
00:38:50,960 --> 00:38:53,640
a way of phrasing things.
It really struck me.
509
00:39:02,080 --> 00:39:06,840
I just became more and more aware
that, you know, this was a man
510
00:39:06,880 --> 00:39:10,560
who was very... insightful
and very thoughtful.
511
00:39:11,520 --> 00:39:13,480
He spent a lot of
time sitting around,
512
00:39:13,520 --> 00:39:15,280
and he was sitting
around thinking,
513
00:39:15,320 --> 00:39:18,600
and give him some ideas
and something to work with,
514
00:39:18,640 --> 00:39:22,800
and he was just digging
in and seeing stuff.
515
00:39:24,120 --> 00:39:27,880
That is what I... I mean, that's
what I like in my friends.
516
00:39:27,920 --> 00:39:30,440
That's honestly
what I like in men.
517
00:39:33,680 --> 00:39:36,080
You know, I'm the kind of
nerdy, intellectual girl
518
00:39:36,120 --> 00:39:38,680
who wants a nerdy,
intellectual guy.
519
00:39:41,920 --> 00:39:45,320
You know, you find you really
enjoy talking to them, and
520
00:39:45,360 --> 00:39:46,760
you know, you share tastes,
521
00:39:46,800 --> 00:39:49,560
but you also disagree on
things, but you learn from it.
522
00:39:49,600 --> 00:39:51,920
I mean, we were just having
those kinds of experiences.
523
00:39:53,480 --> 00:39:56,960
But, you know, I was married.
My marriage wasn't terrific,
524
00:39:57,000 --> 00:40:01,120
but I wasn't in any way thinking
about going outside the relationship.
525
00:40:01,160 --> 00:40:03,600
I wasn't shopping around.
It was nothing like that.
526
00:40:03,640 --> 00:40:05,760
At the time,
527
00:40:05,800 --> 00:40:08,600
if you'd asked me, you know,
"How do you feel about DMan?"
528
00:40:08,640 --> 00:40:10,640
It's, you know,
"He's my friend."
529
00:40:22,920 --> 00:40:25,920
I just really, really liked him, and
I really, really enjoyed his company,
530
00:40:25,960 --> 00:40:27,640
and I was really
impressed by him.
531
00:40:44,680 --> 00:40:47,320
In March of 2011,
532
00:40:47,360 --> 00:40:50,320
I invited DMan to speak
to an undergraduate class
533
00:40:50,360 --> 00:40:53,440
where we were talking
about disability issues.
534
00:40:53,480 --> 00:40:55,360
So students were
asking him questions,
535
00:40:55,400 --> 00:40:58,320
and somebody asked him about, you
know, what his hopes and dreams were.
536
00:40:58,360 --> 00:41:00,320
And he talked about
going to college
537
00:41:00,360 --> 00:41:02,560
and maybe being
a writer someday,
538
00:41:02,600 --> 00:41:04,800
which was kind of
where he was heading.
539
00:41:04,840 --> 00:41:09,440
And then somebody else
in the class said to him,
540
00:41:09,480 --> 00:41:12,480
you know, what about love?
What about relationships?
541
00:41:12,520 --> 00:41:14,920
Is that something
that you hope for?
542
00:41:16,920 --> 00:41:20,720
And he typed, "I want
that more than anything,
543
00:41:20,760 --> 00:41:24,640
but that doesn't happen for people
with disabilities like mine."
544
00:41:27,560 --> 00:41:29,360
And
545
00:41:29,400 --> 00:41:31,400
in that moment...
546
00:41:32,240 --> 00:41:34,200
I mean, what I
wanted to say was...
547
00:41:34,240 --> 00:41:36,560
I-I almost
548
00:41:36,600 --> 00:41:39,920
you know, y-y-you know,
you can have that with me.
549
00:41:46,800 --> 00:41:51,320
I started thinking about, "OK, well,
wow, if this is the way I'm feeling,
550
00:41:51,360 --> 00:41:53,200
OK, I've gotta
think about this."
551
00:41:53,240 --> 00:41:55,760
And I didn't... I still didn't
wanna say anything to him.
552
00:41:55,800 --> 00:41:58,160
I was like, "Look, I've gotta
figure this out." I mean...
553
00:41:58,200 --> 00:42:01,040
I had my husband and my kids.
554
00:42:02,400 --> 00:42:06,640
I-I... OK, I'm in love with
DMan. I realise this now, but...
555
00:42:06,680 --> 00:42:10,320
I'm not gonna say anything. I have to
sort all of this out. It was awkward.
556
00:42:13,120 --> 00:42:15,920
Then I saw him
about a week later,
557
00:42:15,960 --> 00:42:18,320
and I found myself saying
558
00:42:18,360 --> 00:42:21,920
that I help the other people that
I do facilitated communication with
559
00:42:21,960 --> 00:42:24,320
because I believe so strongly
560
00:42:24,360 --> 00:42:27,200
that everyone has a
right to communication.
561
00:42:28,640 --> 00:42:32,880
And then I said, "I do what I
do for you because I love you."
562
00:42:32,920 --> 00:42:35,120
And he typed,
563
00:42:35,160 --> 00:42:37,160
he said, "I know.
564
00:42:37,200 --> 00:42:39,200
I love you too."
565
00:42:40,120 --> 00:42:42,200
And I said, "I know."
566
00:42:44,840 --> 00:42:47,480
He asked me to kiss
him, and I did.
567
00:42:48,280 --> 00:42:50,360
And
568
00:42:50,400 --> 00:42:52,200
then he said, "Kiss me again."
569
00:42:52,240 --> 00:42:55,080
And I did, and
570
00:42:55,120 --> 00:42:57,160
he said, "So now what?"
571
00:43:23,880 --> 00:43:26,280
As things went along,
572
00:43:26,320 --> 00:43:28,640
Derrick started going
on the speaking circuit,
573
00:43:28,680 --> 00:43:30,560
I guess, going to these
conferences and all.
574
00:43:30,600 --> 00:43:33,520
And there started
to be some tension.
575
00:43:33,560 --> 00:43:36,720
♪ Can you see it No,
no, no, you can't see it
576
00:43:36,760 --> 00:43:38,120
♪ A man asked me...
577
00:43:38,160 --> 00:43:40,920
They were driving to this event
in suburban Trenton somewhere,
578
00:43:40,960 --> 00:43:42,880
and my mom was
playing gospel music.
579
00:43:44,280 --> 00:43:47,200
And Anna goes and
turns the station...
580
00:43:50,640 --> 00:43:52,200
and puts on classical music.
581
00:43:54,000 --> 00:43:55,720
"He doesn't wanna hear
this, he wants that."
582
00:43:55,760 --> 00:43:58,480
She had ejected my gospel music,
583
00:43:58,520 --> 00:44:01,800
so I hit it, and it
went back to playing.
584
00:44:01,840 --> 00:44:03,680
♪ ..be right at home... ♪
585
00:44:03,720 --> 00:44:07,080
Derrick loves gospel. He goes
to church. He hears the music.
586
00:44:07,120 --> 00:44:10,920
That assumption that he prefers
the high culture of classical music
587
00:44:10,960 --> 00:44:13,680
and not the low culture of
gospel, I mean, it was just
588
00:44:13,720 --> 00:44:15,880
uh... too much of a leap.
589
00:44:20,680 --> 00:44:22,680
Slow down.
590
00:44:27,760 --> 00:44:30,760
There were different
things, like one day,
591
00:44:30,800 --> 00:44:32,760
when we broke for lunch,
592
00:44:32,800 --> 00:44:34,760
I was cutting up his chicken,
593
00:44:34,800 --> 00:44:37,760
and she rolled over
to the table and said,
594
00:44:37,800 --> 00:44:41,880
"What are you doing giving
him meat?! He's a vegetarian."
595
00:44:41,920 --> 00:44:44,200
I said, "Nobody sent
me any friggin' memo."
596
00:44:45,480 --> 00:44:49,080
There was another time she's working
with Derrick on the computer.
597
00:44:49,120 --> 00:44:52,296
I said something to the effect to Derrick
jokingly, "I can't wait till we get home
598
00:44:52,320 --> 00:44:55,040
so we can kick... get a beer,
kick back and just relax."
599
00:44:55,080 --> 00:44:58,760
And then on the keyboard, it
said something to the effect of,
600
00:44:58,800 --> 00:45:01,800
"Well, I don't like
beer. I like red wine."
601
00:45:01,840 --> 00:45:04,440
And I just thought that
to be hell a peculiar.
602
00:45:04,480 --> 00:45:07,400
Derrick does not... He doesn't
even like communion wine.
603
00:45:12,880 --> 00:45:15,280
If you're in a "giving
care" frame of mind,
604
00:45:15,320 --> 00:45:17,400
you don't see the
person you're supporting
605
00:45:17,440 --> 00:45:22,360
as somebody who's in a position
to make their own decisions,
606
00:45:22,400 --> 00:45:25,400
who has their own ideas about
how they want things done.
607
00:45:25,440 --> 00:45:27,200
OK.
608
00:45:27,400 --> 00:45:29,400
OK.
609
00:45:30,280 --> 00:45:32,400
You wanna give them some control
610
00:45:32,440 --> 00:45:36,160
to develop into a person who
has a good sense of themselves.
611
00:45:36,200 --> 00:45:37,200
Come on.
612
00:45:37,240 --> 00:45:39,000
So that part is
613
00:45:40,160 --> 00:45:43,480
a hard adjustment for
parents or teachers
614
00:45:43,520 --> 00:45:45,880
who've been in a "I'm
taking care of you" mode.
615
00:45:45,920 --> 00:45:49,000
Turn your feet. Turn your body.
616
00:45:49,040 --> 00:45:51,480
Now step off. Thank you.
617
00:46:26,160 --> 00:46:29,040
My mom kept telling me oh, you
know, Anna was saying that,
618
00:46:29,080 --> 00:46:31,560
you know, she's too mothering,
she's smothering Derrick,
619
00:46:31,600 --> 00:46:35,000
Derrick doesn't want all
of this help from her,
620
00:46:35,040 --> 00:46:37,680
that, you know, you can't
be my mom all the time.
621
00:46:37,720 --> 00:46:41,240
All these different things, that it
seemed to be breaking my mom down.
622
00:46:41,280 --> 00:46:43,840
And... then to add to that,
623
00:46:43,880 --> 00:46:46,760
this idea that, oh, Derrick now
wants to live independently.
624
00:46:47,960 --> 00:46:52,400
DMan had wanted to look into a more
independent living arrangement,
625
00:46:52,440 --> 00:46:54,000
moving out of his mother's house
626
00:46:54,040 --> 00:46:57,040
and moving into a
supported living situation.
627
00:47:12,080 --> 00:47:13,600
There was an organisation
628
00:47:13,640 --> 00:47:16,800
that was able to provide
supervised housing for Derrick.
629
00:47:16,840 --> 00:47:20,720
Derrick would have individuals
looking out for him 24 hours a day.
630
00:47:20,760 --> 00:47:24,000
He would take classes.
He would get his degree.
631
00:47:24,040 --> 00:47:26,240
As my mom was telling
me this, I thought,
632
00:47:26,280 --> 00:47:29,080
"Where's this money gonna come from
for this? It's not gonna be free."
633
00:47:29,120 --> 00:47:31,400
And I just kind
of saw that as...
634
00:47:32,280 --> 00:47:34,920
"Alright, you're getting a
little too personal here.
635
00:47:34,960 --> 00:47:37,840
Now you're looking into
Derrick's support?"
636
00:47:37,880 --> 00:47:41,120
'And I just wasn't
comfortable with that.'
637
00:47:41,160 --> 00:47:43,080
I said, "Anna
638
00:47:43,120 --> 00:47:45,640
if he's gonna move in a place,
he's gonna move in the basement
639
00:47:45,680 --> 00:47:48,240
where John lived before
John got on his own.
640
00:47:48,280 --> 00:47:50,080
Derrick is not going anywhere."
641
00:47:51,560 --> 00:47:54,040
"You need to cut
the apron strings."
642
00:47:54,080 --> 00:47:56,960
I said, "How am I gonna
cut my apron strings
643
00:47:57,000 --> 00:48:00,960
when Derrick cannot walk, talk,
or do anything on his own?"
644
00:48:01,000 --> 00:48:04,320
"See, that's where you're
wrong. Derrick can do it."
645
00:48:05,840 --> 00:48:08,920
"You're opening up a
whole new world for him.'"
646
00:48:13,920 --> 00:48:16,240
The ways in which
she talked to my mom,
647
00:48:16,280 --> 00:48:18,680
you know, not mothering
the proper way,
648
00:48:18,720 --> 00:48:21,000
and saying that Derrick doesn't
like this and wants this,
649
00:48:21,040 --> 00:48:23,320
or "Daisy, you need
to let him be a MAN."
650
00:48:23,360 --> 00:48:26,760
It just kind of rubbed
me the wrong way.
651
00:48:26,800 --> 00:48:29,280
Part of it might be a level of
self-consciousness on my part
652
00:48:29,320 --> 00:48:32,720
because I remember growing up in
the late '80s, early '90s, and
653
00:48:32,760 --> 00:48:36,520
you know, when my mom and dad
separated and then divorced,
654
00:48:36,560 --> 00:48:39,560
the idea of single
parenthood was resonant.
655
00:48:40,960 --> 00:48:42,840
There was all these
studies about,
656
00:48:42,880 --> 00:48:46,880
you know, "Children of single-parent
households just don't do well".
657
00:48:46,920 --> 00:48:48,760
You know, invariably
it was framed around,
658
00:48:48,800 --> 00:48:51,400
you know, "Black women
aren't good parents",
659
00:48:51,440 --> 00:48:54,480
"there's things that Black women
can't teach their sons", and
660
00:48:54,520 --> 00:48:56,920
all of that was
kind of in my ear.
661
00:48:58,160 --> 00:49:00,080
Now, I think it's
important to recognise
662
00:49:00,120 --> 00:49:03,520
that my mom, prior to all
of this, was affiliated
663
00:49:03,560 --> 00:49:07,360
with a number of organisations that
were headed by women of colour,
664
00:49:07,400 --> 00:49:11,400
who were advocates for people
of colour with disabilities,
665
00:49:11,440 --> 00:49:13,440
who otherwise may
have been overlooked.
666
00:49:14,560 --> 00:49:16,480
For Anna to make
certain assumptions
667
00:49:16,520 --> 00:49:20,800
about my mom's expertise
or her decision-making
668
00:49:20,840 --> 00:49:22,560
and those kinds of things,
669
00:49:22,600 --> 00:49:25,440
it just has those racial
undertones and overtones.
670
00:49:25,480 --> 00:49:27,200
It wasn't like, you know,
671
00:49:27,240 --> 00:49:29,280
"Nigger, get in the back
of the bus" kind of racism.
672
00:49:29,320 --> 00:49:31,520
It wasn't that, but it was
more like making assumptions
673
00:49:31,560 --> 00:49:35,600
based on the idea certain people
might be inherently... deficient.
674
00:49:36,960 --> 00:49:39,720
Anna was just ignoring
the past 30-some-odd years
675
00:49:39,760 --> 00:49:43,360
and everything that my mom has done
to get us to this point, right?
676
00:49:45,760 --> 00:49:48,720
And so I had it in my mind,
677
00:49:48,760 --> 00:49:50,680
we're gonna have a
long conversation.
678
00:49:50,720 --> 00:49:53,280
We are gonna have to, like,
really set some hard, fast rules,
679
00:49:53,320 --> 00:49:56,720
or we may have to just kind
of begin to draw things down.
680
00:50:01,600 --> 00:50:04,720
DMan and I had debated
on several occasions
681
00:50:04,760 --> 00:50:07,320
whether we wanted
to say anything
682
00:50:07,360 --> 00:50:10,520
to Daisy and John about the
change in our relationship.
683
00:50:11,360 --> 00:50:13,160
We knew we were gonna
tell them eventually.
684
00:50:13,200 --> 00:50:15,080
So it was more just
685
00:50:15,120 --> 00:50:17,280
we were enjoying that
686
00:50:17,320 --> 00:50:19,960
kind of initial
beginning of a romance
687
00:50:20,000 --> 00:50:22,280
when it's very private,
and it's very intimate,
688
00:50:22,320 --> 00:50:25,440
and it's just the two
of you, and it changes
689
00:50:25,480 --> 00:50:27,280
when you start
sharing with family.
690
00:50:27,320 --> 00:50:30,560
'But we had started
figuring out'
691
00:50:30,600 --> 00:50:33,840
ways that we could, you know,
try to spend time together.
692
00:50:34,800 --> 00:50:37,280
And there was the Sunday.
693
00:50:37,320 --> 00:50:41,840
DMan and I had made plans to go
to a film festival in New York,
694
00:50:41,880 --> 00:50:44,040
where there was a
film being shown
695
00:50:44,080 --> 00:50:46,880
called Wretches And Jabberers,
which was about FC users.
696
00:50:46,920 --> 00:50:51,440
'Daisy wanted to go to
church that morning.'
697
00:50:51,480 --> 00:50:55,000
And in thinking about
locations and stuff
698
00:50:55,040 --> 00:50:57,800
for eventual
romantic rendezvous,
699
00:50:57,840 --> 00:51:00,120
we definitely
didn't want to use,
700
00:51:00,160 --> 00:51:02,120
you know, his mother's house.
701
00:51:02,960 --> 00:51:05,440
But, you know, here
we are at the house,
702
00:51:05,480 --> 00:51:08,880
and she's not there, and
703
00:51:08,920 --> 00:51:11,760
it's difficult for him to kiss,
704
00:51:11,800 --> 00:51:16,240
so we wanted to practise.
705
00:51:16,280 --> 00:51:20,040
Like anything else, it was a
physical challenge for him.
706
00:51:23,000 --> 00:51:25,600
I could tell that
he's very tense,
707
00:51:25,640 --> 00:51:28,160
and every time he
tried to sit back,
708
00:51:28,200 --> 00:51:30,200
he would kind of pop up again.
709
00:51:30,240 --> 00:51:32,360
And I said, like,
"Talk to me, you know,
710
00:51:32,400 --> 00:51:35,720
obviously, this is not working
for you. What's going on?"
711
00:51:35,760 --> 00:51:37,640
And he typed,
712
00:51:37,680 --> 00:51:41,640
"I really, really love being with
you, and I wanna be doing this,
713
00:51:41,680 --> 00:51:45,600
but I'm just really overwhelmed
right now, I need a minute."
714
00:51:45,640 --> 00:51:49,400
And I said, you know, "Fine, take
all the time you need, of course."
715
00:51:52,120 --> 00:51:55,240
So he excluded himself
down the hallway,
716
00:51:55,280 --> 00:51:58,400
and I got a glass of water. I
was just giving him some time.
717
00:51:59,480 --> 00:52:01,280
And I said to him,
"Look, you know",
718
00:52:01,320 --> 00:52:04,920
you're the one where this is
all a brand-new thing for you.
719
00:52:04,960 --> 00:52:07,440
You've gotta call the
shots. You've gotta
720
00:52:07,480 --> 00:52:10,560
you know, I don't wanna do anything
that makes you uncomfortable.
721
00:52:10,600 --> 00:52:13,080
I don't wanna push
anything faster.
722
00:52:13,120 --> 00:52:16,000
I don't know what's gonna work
for your body and what isn't,
723
00:52:16,040 --> 00:52:17,440
"so you tell me."
724
00:52:18,480 --> 00:52:20,800
I was figuring at that point
725
00:52:20,840 --> 00:52:23,760
that, like, the moment had
passed, and that was alright.
726
00:52:24,920 --> 00:52:26,640
And
727
00:52:26,680 --> 00:52:28,880
he typed, "May I
touch your breasts?"
728
00:52:30,120 --> 00:52:32,720
And I was like, "Wow, OK."
729
00:52:32,760 --> 00:52:36,320
I didn't know where that was...
That wasn't what I was expecting.
730
00:52:36,360 --> 00:52:38,000
OK.
731
00:52:38,040 --> 00:52:41,000
And then he typed,
732
00:52:41,040 --> 00:52:43,800
"Take your shirt
off all the way."
733
00:52:43,840 --> 00:52:46,320
I was like, "OK." So I did that.
734
00:52:46,360 --> 00:52:49,200
And then he said, "Take the
rest of your clothes off."
735
00:52:49,240 --> 00:52:52,360
And OK, so I did.
736
00:52:52,400 --> 00:52:54,840
And, um
737
00:52:54,880 --> 00:52:58,320
then he said, "You know,
I've dreamed about this."
738
00:52:58,360 --> 00:53:00,920
It seemed to me that
what he was doing
739
00:53:00,960 --> 00:53:04,400
was taking control
of the situation.
740
00:53:04,440 --> 00:53:07,000
He was, like, really
ordering me around and,
741
00:53:07,040 --> 00:53:11,000
but that was kind of cool because
I wasn't necessarily anticipating
742
00:53:11,040 --> 00:53:13,120
that element of
the relationship.
743
00:53:14,440 --> 00:53:16,600
He said,
744
00:53:16,640 --> 00:53:19,600
"I long to hold you
the way that men do."
745
00:53:21,480 --> 00:53:24,640
I said to him,
"Look, I feel held."
746
00:53:24,680 --> 00:53:26,360
He
747
00:53:26,400 --> 00:53:28,120
Said,
748
00:53:28,160 --> 00:53:30,920
"Do you think that it
would even be possible
749
00:53:30,960 --> 00:53:33,880
with my cerebral palsy
750
00:53:33,920 --> 00:53:35,920
for us to make love?"
751
00:53:35,960 --> 00:53:39,000
And I said, "You
know, I have no idea,
752
00:53:39,040 --> 00:53:42,200
but there's only... there's
only one way to find out."
753
00:54:06,880 --> 00:54:09,640
We had this meeting scheduled
for Memorial Day for DMan
754
00:54:09,680 --> 00:54:13,400
to talk to Daisy and John about
the independent living counsellor.
755
00:54:13,440 --> 00:54:16,960
And DMan brought up, or I brought
up, I don't even remember,
756
00:54:17,000 --> 00:54:19,520
you know, should we also
use this opportunity
757
00:54:19,560 --> 00:54:22,640
to tell them about the
change in our relationship?
758
00:54:23,520 --> 00:54:27,960
But I said to him, "Look, if Daisy
and John did get upset about this
759
00:54:28,000 --> 00:54:29,720
and chose to separate us,
760
00:54:29,760 --> 00:54:32,240
technically, that's a
violation of your rights,
761
00:54:32,280 --> 00:54:35,920
but it would be very hard
to challenge them on that."
762
00:54:38,960 --> 00:54:41,160
'He said to me...'
763
00:54:41,200 --> 00:54:44,400
"They would never do that to
me. They love me too much."
764
00:54:48,160 --> 00:54:50,080
We all sit down, and
765
00:54:50,120 --> 00:54:54,080
there just seemed to be this
awkwardness about it, you know?
766
00:54:54,120 --> 00:54:56,320
If we're gonna talk business,
let's talk business.
767
00:54:56,360 --> 00:54:58,560
But she seemed... She
looked at Derrick and said,
768
00:54:58,600 --> 00:55:00,240
"Do you want me to tell them?"
769
00:55:00,280 --> 00:55:02,120
And so...
770
00:55:02,160 --> 00:55:03,840
I'm like, "Tell us what?"
771
00:55:03,880 --> 00:55:06,360
And then she grabs
Derrick's hand,
772
00:55:06,400 --> 00:55:08,240
and on the keyboard comes up,
773
00:55:08,280 --> 00:55:09,560
"We are in love."
774
00:55:12,560 --> 00:55:15,800
So he typed, you know,
"Anna and I are in love,
775
00:55:15,840 --> 00:55:19,560
and we've, you know, we have
a physical relationship,"
776
00:55:19,600 --> 00:55:23,520
I think John said something about,
you know, "Did you use protection?"
777
00:55:23,560 --> 00:55:26,320
and DMan said, "Yes," and...
778
00:55:26,360 --> 00:55:29,760
She said, "Yes, we
have made love."
779
00:55:33,720 --> 00:55:36,760
And I was like, "What?"
780
00:55:36,800 --> 00:55:39,200
"Yes, we've made love.
781
00:55:39,240 --> 00:55:42,600
He's a man in every
sense of the word."
782
00:55:44,480 --> 00:55:48,280
And what I did, I
sat on my hands,
783
00:55:51,080 --> 00:55:53,240
and I said, "You did what?"
784
00:55:59,720 --> 00:56:01,480
You know, they asked me
785
00:56:01,520 --> 00:56:03,960
about where things were
at with my husband,
786
00:56:04,000 --> 00:56:06,120
and, you know, I told them
787
00:56:06,160 --> 00:56:09,920
I really did wanna, you know, be
with DMan permanently to marry him,
788
00:56:09,960 --> 00:56:12,440
that I hadn't talked
to my husband yet,
789
00:56:12,480 --> 00:56:16,000
but that I was going
to very soon, and...
790
00:56:16,040 --> 00:56:18,240
There was a moment as
part of the conversation
791
00:56:18,280 --> 00:56:22,240
where he asked me to kiss him,
I found that a little awkward.
792
00:56:22,280 --> 00:56:25,800
Like, I didn't really want to
in that moment, just like...
793
00:56:26,600 --> 00:56:28,720
You know, but he
insisted, so I did.
794
00:56:30,320 --> 00:56:31,960
I tried to be civil.
795
00:56:32,800 --> 00:56:35,440
John had gone somewhere, and I
think he went down and threw up.
796
00:56:36,680 --> 00:56:38,680
I was shocked.
797
00:56:38,720 --> 00:56:43,720
I didn't really know what to
make of it at the time, but...
798
00:56:43,760 --> 00:56:46,280
I felt myself getting so angry,
799
00:56:47,360 --> 00:56:50,680
and rage-filled that I left.
800
00:56:50,720 --> 00:56:53,960
I went downstairs. I paced
the floor a bunch of times.
801
00:56:54,000 --> 00:56:56,360
I looked at the cracks in
the wall. I remember...
802
00:56:56,400 --> 00:56:58,280
I had to
803
00:56:58,320 --> 00:57:01,200
let my anger subside.
804
00:57:02,560 --> 00:57:06,600
I said goodbye to DMan, and
Daisy was there, and she,
805
00:57:06,640 --> 00:57:08,400
you know, came and
gave me a big hug
806
00:57:08,440 --> 00:57:10,280
and said, "You know,
we'll get through this.
807
00:57:10,320 --> 00:57:12,240
We'll figure this out."
808
00:57:12,280 --> 00:57:15,160
I was heading out the door and
just saying goodbye to DMan.
809
00:57:15,200 --> 00:57:18,840
I said, you know, I said to him,
like, "Good call, love, hon.
810
00:57:18,880 --> 00:57:21,480
You know, hon, it was a
good choice to tell them."
811
00:57:21,520 --> 00:57:25,360
And then I left, and, you
know, I was feeling fine.
812
00:57:31,040 --> 00:57:33,200
John called me the next morning
813
00:57:33,240 --> 00:57:36,000
about 10 o'clock in
the morning, and...
814
00:57:36,040 --> 00:57:39,320
I think I knew something
was gonna be wrong
815
00:57:39,360 --> 00:57:41,360
when I saw he was calling.
816
00:57:42,680 --> 00:57:47,240
He said, "Daisy and I
don't want you to see DMan
817
00:57:47,280 --> 00:57:51,360
until you, and she and I have
a chance to sit down and talk."
818
00:57:52,440 --> 00:57:55,720
We sort of scheduled a
meeting, then she pulled out.
819
00:57:55,760 --> 00:57:58,960
Then John or Daisy
got back to me
820
00:57:59,000 --> 00:58:01,080
and said, "You know what?
We just don't wanna meet."
821
00:58:01,120 --> 00:58:04,640
That was when... Then I
started calling Daisy...
822
00:58:11,760 --> 00:58:14,120
She would talk to
me on the phone.
823
00:58:14,160 --> 00:58:18,120
I would kind of address her
concerns and talk about things.
824
00:58:43,320 --> 00:58:45,360
And then she stopped
returning my calls.
825
00:59:14,440 --> 00:59:18,320
One of the things that happened
with the facilitated communication
826
00:59:18,360 --> 00:59:22,080
was that part of the sessions
were for us, my mom and I,
827
00:59:22,120 --> 00:59:24,080
to also practise with him.
828
00:59:24,120 --> 00:59:27,400
And so Anna would
be there with him,
829
00:59:27,440 --> 00:59:30,320
and you know, a
sentence will come out.
830
00:59:30,360 --> 00:59:33,960
"Alright, John, you try." So I would
try to, and I would get nothing.
831
00:59:34,000 --> 00:59:36,120
You know, eventually he
would apply pressure.
832
00:59:36,160 --> 00:59:38,280
I may get two words, but
it wouldn't make sense.
833
00:59:38,320 --> 00:59:40,520
And then when my mama
tried, nothing would happen.
834
00:59:40,560 --> 00:59:44,080
See all these marks on my arm?
That was Derrick's facilitating.
835
00:59:44,880 --> 00:59:48,080
He would grab me
and pull my hand,
836
00:59:48,120 --> 00:59:50,200
you know, take my
hand away from his.
837
00:59:50,240 --> 00:59:52,880
The coaching from Anna was,
838
00:59:52,920 --> 00:59:55,760
"You have to keep trying.
You have to keep practising.
839
00:59:55,800 --> 00:59:59,840
You have to anticipate
what he's gonna say."
840
00:59:59,880 --> 01:00:02,200
That was one of
those like, "Hm?"
841
01:00:02,240 --> 01:00:06,040
That's when I guess my own
doubts started to creep in,
842
01:00:06,080 --> 01:00:07,960
and that's when
I started looking
843
01:00:08,000 --> 01:00:11,520
for the video that I
initially saw in the classroom
844
01:00:11,560 --> 01:00:15,560
to see, what in the world
am I doing wrong? Um...
845
01:00:15,600 --> 01:00:20,400
And that's when I stumbled upon
the Frontline Documentary on FC.
846
01:00:25,400 --> 01:00:29,360
Some people had doubts about
facilitated communication.
847
01:00:29,400 --> 01:00:31,400
Dr Howard Shane has
devoted his life
848
01:00:31,440 --> 01:00:34,840
to helping disabled non-verbal
people to communicate.
849
01:00:34,880 --> 01:00:37,280
You must be Dr Shane. How
are you? Great to meet you.
850
01:00:38,240 --> 01:00:40,280
In 1990, I got a call
851
01:00:40,320 --> 01:00:43,480
from a prosecutor in
Western Massachusetts
852
01:00:43,520 --> 01:00:45,800
because someone was
being facilitated,
853
01:00:45,840 --> 01:00:48,160
and while being facilitated,
854
01:00:48,200 --> 01:00:51,760
he mentioned that his aid
in his group residence
855
01:00:51,800 --> 01:00:53,880
was sexually abusing him.
856
01:00:55,640 --> 01:00:57,440
And the prosecutor
wanted to be sure
857
01:00:57,480 --> 01:01:01,840
that this individual was actually
independently communicating.
858
01:01:04,320 --> 01:01:06,280
When you have somebody
hold your hand,
859
01:01:06,320 --> 01:01:09,960
it obviously brings up
the question every time,
860
01:01:10,000 --> 01:01:12,600
"Well, are they
being influenced?"
861
01:01:12,640 --> 01:01:14,920
How can you be sure
that these individuals
862
01:01:14,960 --> 01:01:17,240
are actually, you know,
independently communicating?
863
01:01:17,280 --> 01:01:19,920
Or they aren't being facilitated
and really being influenced?
864
01:01:25,680 --> 01:01:28,560
I went on to design a protocol
865
01:01:28,600 --> 01:01:31,200
that would enable me
866
01:01:31,240 --> 01:01:33,320
to determine who was
authoring the message.
867
01:01:33,360 --> 01:01:35,680
OK, folks, what I'm
gonna be doing now...
868
01:01:35,720 --> 01:01:38,560
Shane had devised a
double-blind test like this.
869
01:01:38,600 --> 01:01:40,840
He showed both a
series of pictures
870
01:01:40,880 --> 01:01:43,000
and asked them to
type what they saw.
871
01:01:44,720 --> 01:01:46,360
Betsy, you sure
you're looking at...
872
01:01:46,400 --> 01:01:49,880
When both Betsy and her
facilitators saw a picture of a key
873
01:01:50,800 --> 01:01:55,000
the letters K-E-Y were typed.
874
01:01:55,920 --> 01:01:58,200
But Shane wanted to
discover what happened
875
01:01:58,240 --> 01:02:00,440
if each saw a different picture.
876
01:02:00,480 --> 01:02:02,360
When Betsy saw a cup,
877
01:02:02,400 --> 01:02:05,440
she didn't type "cup",
she typed "hat",
878
01:02:05,480 --> 01:02:08,080
what the facilitator saw.
879
01:02:08,120 --> 01:02:10,600
Now take a look at this one, OK?
880
01:02:12,280 --> 01:02:14,480
When Betsy was shown
a picture of a dog,
881
01:02:14,520 --> 01:02:18,200
she didn't type
"dog", but "sneakers",
882
01:02:18,240 --> 01:02:20,920
what the facilitator saw.
883
01:02:21,800 --> 01:02:23,200
OK, here's the next one.
884
01:02:23,240 --> 01:02:25,920
Later work that I did
and others have done
885
01:02:25,960 --> 01:02:29,760
seems to indicate that
facilitators were doing this
886
01:02:29,800 --> 01:02:33,280
thinking they were giving people the
ability to be able to communicate.
887
01:02:34,720 --> 01:02:37,360
I don't think that
they're intentionally
888
01:02:37,400 --> 01:02:39,640
trying to create
a false message.
889
01:02:39,680 --> 01:02:42,560
They believe that this
is coming from the person
890
01:02:42,600 --> 01:02:45,080
who's being facilitated.
891
01:02:45,120 --> 01:02:46,760
The scientific
evidence suggested
892
01:02:46,800 --> 01:02:49,840
that far from unlocking the
minds of autistic individuals,
893
01:02:49,880 --> 01:02:53,920
FC tapped the unconscious
thoughts of the facilitator.
894
01:02:57,480 --> 01:02:59,680
I just remember
thinking at the time,
895
01:02:59,720 --> 01:03:03,160
you know, Derrick was
writing those papers.
896
01:03:04,200 --> 01:03:06,160
What I find interesting,
in hindsight,
897
01:03:06,200 --> 01:03:09,480
is that a lot of it
revolved around this idea of
898
01:03:09,520 --> 01:03:13,040
you know, "Now I have a voice.
Now I can speak and talk,"
899
01:03:13,080 --> 01:03:14,840
and, uh...
900
01:03:14,880 --> 01:03:19,040
"Whereas I was trapped,
now I have this freedom."
901
01:03:19,080 --> 01:03:22,320
And a lot of it
revolved around things
902
01:03:22,360 --> 01:03:25,600
that just, in my
estimation, were not
903
01:03:26,960 --> 01:03:28,960
about Derrick.
904
01:03:29,000 --> 01:03:32,920
And so to me, it was just like
this whole FC thing is bogus.
905
01:03:35,960 --> 01:03:39,720
I never got any vibe
off of John or Daisy
906
01:03:39,760 --> 01:03:42,120
that they didn't 100% believe
907
01:03:42,160 --> 01:03:45,280
that what DMan said
was DMan's words.
908
01:03:46,200 --> 01:03:49,080
I had been careful
in the beginning
909
01:03:49,120 --> 01:03:52,000
to make sure that I
wasn't influencing him,
910
01:03:52,040 --> 01:03:56,120
but there were so many,
so many situations
911
01:03:56,160 --> 01:03:58,760
that he was telling me
information I didn't know.
912
01:03:58,800 --> 01:04:02,560
In the beginning, I was checking to
make sure that I wasn't influencing,
913
01:04:02,600 --> 01:04:05,840
and the fact that we had
arguments and disagreements,
914
01:04:05,880 --> 01:04:09,640
and so on, and so forth, I mean,
he very clearly had his own mind.
915
01:04:11,680 --> 01:04:13,200
He more than proved himself.
916
01:04:14,040 --> 01:04:16,800
The homework assignments
that DMan had typed
917
01:04:16,840 --> 01:04:18,760
with Sheronda, and she
hadn't read the books.
918
01:04:18,800 --> 01:04:23,320
I mean, had John come and talk
to me, I had all of this... proof
919
01:04:23,360 --> 01:04:25,640
that I could have shared
with him to reassure him.
920
01:05:37,560 --> 01:05:41,600
At the time, we weren't trying to
pursue any kind of legal thing.
921
01:05:41,640 --> 01:05:44,120
We just wanted to
leave us alone.
922
01:05:44,160 --> 01:05:45,920
But then one day,
923
01:05:45,960 --> 01:05:49,920
the Director of Derrick's Day
program me got an email from Anna.
924
01:05:49,960 --> 01:05:52,160
And the gist of it was,
925
01:05:52,200 --> 01:05:55,360
"Daisy and John have not
allowed me to see Derrick,
926
01:05:55,400 --> 01:05:58,040
but Daisy and John don't know
what's in Derrick's best interest,
927
01:05:58,080 --> 01:06:01,520
but we, as people who work with
people with disabilities, do."
928
01:06:10,360 --> 01:06:12,480
And at that point, I
thought, "You know what?"
929
01:06:12,520 --> 01:06:14,600
If she's gonna go
to these lengths to
930
01:06:14,640 --> 01:06:17,120
try to get to Derrick
behind our back,
931
01:06:17,160 --> 01:06:19,320
there's no telling
what she may do,
932
01:06:19,360 --> 01:06:22,080
"and I need to take steps
necessary to put an end to this."
933
01:06:23,120 --> 01:06:26,840
And so I made an appointment
to meet with the Dean.
934
01:06:26,880 --> 01:06:28,800
I remember going
into her office,
935
01:06:28,840 --> 01:06:32,880
and I started to tell
her what was going on.
936
01:06:32,920 --> 01:06:35,320
She kinda froze and was like
937
01:06:35,360 --> 01:06:38,360
took a deep breath and
was somewhat in disbelief.
938
01:06:41,080 --> 01:06:44,320
I don't think I had taken
the opportunity to kind of
939
01:06:45,160 --> 01:06:48,040
let myself release this emotion.
940
01:06:48,080 --> 01:06:50,960
I was just sat in that
office... ..and I don't think
941
01:06:51,000 --> 01:06:54,560
I ever cried in front of a white
woman before, but I just broke down.
942
01:06:54,600 --> 01:06:57,360
And she basically said to me,
943
01:06:57,400 --> 01:07:00,680
in so many words, "John,
make sure you get a lawyer."
944
01:07:23,360 --> 01:07:26,080
I got a phone call
one day from Daisy,
945
01:07:26,120 --> 01:07:28,120
and she said...
946
01:07:40,360 --> 01:07:43,720
She said, "He's been biting his hand
a lot more. He's really unhappy."
947
01:07:43,760 --> 01:07:46,800
So she said, "I'm just
trying to understand
948
01:07:46,840 --> 01:07:48,880
what happened between
the two of you."
949
01:08:08,720 --> 01:08:10,440
To me, it sounded like,
950
01:08:10,480 --> 01:08:13,880
"Oh, maybe this is an opening.
Maybe they're seeing he's unhappy,
951
01:08:13,920 --> 01:08:15,880
and they're reconsidering, and,"
952
01:08:15,920 --> 01:08:19,200
so I was happy to
answer her questions.
953
01:08:47,720 --> 01:08:50,280
You know, again, that feels
kinda weird to talk about with
954
01:08:50,320 --> 01:08:52,440
your lover's mother,
955
01:08:52,480 --> 01:08:54,240
but, you know, whatever.
956
01:08:54,280 --> 01:08:57,080
If it kept the conversation
going, and if she was listening...
957
01:09:18,000 --> 01:09:20,160
I found out later that that was
958
01:09:20,200 --> 01:09:22,280
that phone call had been
set up by the police,
959
01:09:22,320 --> 01:09:24,400
and they had coached
her on what to say,
960
01:09:24,440 --> 01:09:27,080
and it was being recorded.
961
01:09:42,800 --> 01:09:47,200
The crimes investigated are crimes
of the sexual assault nature.
962
01:09:54,440 --> 01:09:56,920
It was a Monday,
963
01:09:56,960 --> 01:10:00,360
and I was teaching
class in the afternoon,
964
01:10:00,400 --> 01:10:03,320
so I pulled into
the parking lot,
965
01:10:03,360 --> 01:10:08,280
and I was approached by two
people in plain clothes.
966
01:10:08,320 --> 01:10:11,640
And they said, "We're with the
Essex County Prosecutor's Office,
967
01:10:11,680 --> 01:10:13,560
and we need to ask
you some questions."
968
01:10:13,600 --> 01:10:17,960
And the only thing I could think
of was something about a student.
969
01:10:20,040 --> 01:10:22,600
You know, I'm wondering
what's going on.
970
01:10:22,640 --> 01:10:24,320
And then they said,
971
01:10:24,360 --> 01:10:27,280
"Do you know somebody
named Derrick Johnson?"
972
01:10:29,360 --> 01:10:30,600
I was like...
973
01:10:32,240 --> 01:10:34,400
"OK," you know? And that was...
974
01:10:34,440 --> 01:10:37,400
It's starting to
penetrate that, um...
975
01:10:37,440 --> 01:10:39,800
"Wow, OK, this is..."
976
01:10:44,360 --> 01:10:46,560
So then I had to make
a decision on the spot
977
01:10:46,600 --> 01:10:48,800
about how much do I say.
978
01:10:48,840 --> 01:10:51,640
But I figured, "You know what?
I didn't do anything wrong."
979
01:10:52,480 --> 01:10:56,800
I talked to them for about two hours,
and I told them the whole story.
980
01:10:56,840 --> 01:10:58,640
That we were in love
and all of that stuff.
981
01:10:58,680 --> 01:11:00,600
I just didn't actually
say the words,
982
01:11:00,640 --> 01:11:02,840
you know, "We consummated
the relationship."
983
01:11:04,520 --> 01:11:08,640
They drove me back to the
parking lot at Rutgers,
984
01:11:08,680 --> 01:11:11,920
and there was a
person I didn't know,
985
01:11:11,960 --> 01:11:16,920
who identified himself as a
representative of the Dean's Office.
986
01:11:16,960 --> 01:11:20,160
He handed me a letter,
and the letter informed me
987
01:11:20,200 --> 01:11:24,960
as of this moment, I was suspended
from my teaching duties at Rutgers,
988
01:11:25,000 --> 01:11:27,120
I was not allowed on campus.
989
01:11:43,760 --> 01:11:45,440
And while I was there,
990
01:11:45,480 --> 01:11:48,320
they had gone to my house
with a search warrant.
991
01:11:53,000 --> 01:11:56,000
My... now ex-husband was there,
992
01:11:56,040 --> 01:12:00,480
so he's found out that
I'm under investigation.
993
01:12:14,280 --> 01:12:16,320
This is Detective
Christine McKowski
994
01:12:16,360 --> 01:12:18,440
of the Essex County
Prosecutor's Office.
995
01:13:07,040 --> 01:13:11,240
Today, we're conducting an
interview with Ms Karen Moore. Um...
996
01:14:27,240 --> 01:14:29,000
I got a call from my assistant
997
01:14:29,040 --> 01:14:32,960
saying that the Special Victims
Unit in New Jersey was calling.
998
01:14:34,720 --> 01:14:36,440
Asked me if I would be willing
999
01:14:36,480 --> 01:14:38,720
provide some assistance
as an expert.
1000
01:14:45,240 --> 01:14:46,960
As it was described to me,
1001
01:14:47,000 --> 01:14:48,840
I'd never encountered any case
1002
01:14:48,880 --> 01:14:51,800
that mirrored these
particular circumstances.
1003
01:14:51,840 --> 01:14:53,360
I had never seen
anything like it.
1004
01:14:59,520 --> 01:15:01,680
In this case, the
question to me was,
1005
01:15:01,720 --> 01:15:04,120
"Could you evaluate
Derrick to understand
1006
01:15:04,160 --> 01:15:06,680
his best level of
communication?"
1007
01:15:08,160 --> 01:15:09,840
From everything that I read,
1008
01:15:09,880 --> 01:15:13,000
there was a consistency to
the extent of his disability,
1009
01:15:13,040 --> 01:15:15,360
but I went in with an open mind.
1010
01:15:16,200 --> 01:15:19,480
I met him when he was brought
to the prosecutor's office.
1011
01:15:19,520 --> 01:15:22,320
He was accompanied by his
brother and his mother.
1012
01:15:23,520 --> 01:15:26,640
'I already knew that
he had no speech.'
1013
01:15:26,680 --> 01:15:29,480
So I proceeded
1014
01:15:29,520 --> 01:15:32,040
to introduce different types
1015
01:15:32,080 --> 01:15:34,600
of materials for
him to indicate.
1016
01:15:34,640 --> 01:15:38,120
Pictures, photographs,
which are very realistic.
1017
01:15:38,160 --> 01:15:40,520
It was difficult
for him, you know,
1018
01:15:40,560 --> 01:15:42,800
I really didn't get
very much from that.
1019
01:15:42,840 --> 01:15:46,160
He was able to pick up some objects,
but not when I said, you know,
1020
01:15:46,200 --> 01:15:48,880
"Pick up the spoon,"
or, "Pick up the cup."
1021
01:15:48,920 --> 01:15:52,280
I did an interview
of his mother.
1022
01:15:52,320 --> 01:15:54,840
Based on everything
that she had observed,
1023
01:15:54,880 --> 01:15:56,840
and she certainly was
a very good observer,
1024
01:15:56,880 --> 01:16:00,400
I found that he was, you know,
functioning at a pretty low level.
1025
01:16:01,320 --> 01:16:04,040
His way of telling you that
he wanted something to eat
1026
01:16:04,080 --> 01:16:05,880
was he would scoot over
to the refrigerator
1027
01:16:05,920 --> 01:16:09,440
and tap on the refrigerator.
That's very functional.
1028
01:16:09,480 --> 01:16:13,080
But to move from that to pointing
to a picture of the refrigerator,
1029
01:16:13,120 --> 01:16:15,400
that's a greater
level of abstraction.
1030
01:16:15,440 --> 01:16:18,800
And in all the years he had been
in these different programmes,
1031
01:16:18,840 --> 01:16:20,840
he had never moved
from the physical
1032
01:16:20,880 --> 01:16:22,920
to that type of communication.
1033
01:16:27,720 --> 01:16:30,080
I spent two or three
hours with him.
1034
01:16:31,400 --> 01:16:34,640
He spent a lot of time just
moving around the room.
1035
01:16:34,680 --> 01:16:37,640
He liked coat hangers, so
if he saw a coat hanger,
1036
01:16:37,680 --> 01:16:40,000
he would go over, and
he recognised that.
1037
01:16:40,040 --> 01:16:42,720
He liked to slap
'em on the floor.
1038
01:16:47,600 --> 01:16:50,040
So I just basically
reported what I found.
1039
01:17:07,120 --> 01:17:11,240
I made a determination
that what I was observing
1040
01:17:11,280 --> 01:17:15,360
was consistent with what the
medical record had indicated
1041
01:17:15,400 --> 01:17:18,320
for, you know, over
20 years of his life.
1042
01:17:19,160 --> 01:17:21,560
There was no one in the 20 years
1043
01:17:21,600 --> 01:17:25,320
who saw some sparkling of,
you know, something different.
1044
01:19:06,960 --> 01:19:09,600
I was actually looking
forward to the trial
1045
01:19:09,640 --> 01:19:12,120
as finally, this nightmare
is gonna be over.
1046
01:19:12,160 --> 01:19:16,160
I knew she was not
guilty of anything.
1047
01:19:21,600 --> 01:19:24,200
I'm not guilty
1048
01:19:24,240 --> 01:19:27,880
of what they were
accusing me of.
1049
01:19:27,920 --> 01:19:30,400
If the accusation is
1050
01:19:30,440 --> 01:19:34,320
I have some weird
perversion that makes me
1051
01:19:34,360 --> 01:19:37,880
want to molest helpless,
intellectually impaired people.
1052
01:19:37,920 --> 01:19:40,640
'that's simply not the case.'
1053
01:19:43,560 --> 01:19:46,040
This whole thing is framed
1054
01:19:46,080 --> 01:19:48,600
in terms of consent and
his ability to consent
1055
01:19:48,640 --> 01:19:51,160
because I'm the one
who's accused of assault.
1056
01:19:51,200 --> 01:19:54,800
It's all as if it was
all coming from me,
1057
01:19:54,840 --> 01:19:56,920
which is really not fair to him
1058
01:19:56,960 --> 01:19:59,120
because he seduced me,
1059
01:19:59,160 --> 01:20:02,080
and he deserves some
credit for that.
1060
01:20:02,120 --> 01:20:05,280
Here's this guy who's
so physically impaired,
1061
01:20:05,320 --> 01:20:07,680
and he
1062
01:20:07,720 --> 01:20:11,920
he got me to fall in love
with him, and with his words.
1063
01:20:24,800 --> 01:20:27,240
The judge kept
taking things away
1064
01:20:27,280 --> 01:20:30,160
and taking things away
in terms of evidence.
1065
01:20:30,200 --> 01:20:33,200
I knew that DMan was the
author of what he typed.
1066
01:20:33,240 --> 01:20:37,000
I wasn't influencing him,
but at the end of the day,
1067
01:20:37,040 --> 01:20:39,520
I didn't have anything
except my word for that.
1068
01:20:45,440 --> 01:20:48,000
There was a morning,
the prosecutor said,
1069
01:20:48,040 --> 01:20:50,520
"We're gonna bring DMan
into the courtroom."
1070
01:20:52,000 --> 01:20:54,480
It was Daisy who walked him in.
1071
01:20:56,480 --> 01:20:58,920
I had to say who he was.
1072
01:20:58,960 --> 01:21:01,400
And, you know, I was his mother.
1073
01:21:01,440 --> 01:21:05,680
And the fact that he could not
walk by himself independently,
1074
01:21:05,720 --> 01:21:07,440
I just walked him
1075
01:21:07,480 --> 01:21:11,160
in front of the judge and
then around by the jury stand.
1076
01:21:12,360 --> 01:21:15,000
It was horrifying to me
1077
01:21:15,040 --> 01:21:19,560
that a human being had been
basically made an exhibit.
1078
01:21:20,760 --> 01:21:24,720
I know with DMan, there are
ways of walking with him
1079
01:21:24,760 --> 01:21:27,680
in which he looks
less handicapped,
1080
01:21:27,720 --> 01:21:29,760
and his mother walked him in
1081
01:21:29,800 --> 01:21:33,440
in a way that made him
look as handicapped
1082
01:21:33,480 --> 01:21:37,600
and incapable as one
could possibly manage.
1083
01:21:37,640 --> 01:21:39,720
She turned around
again, and she turned
1084
01:21:39,760 --> 01:21:43,200
always putting her body
in between him and... me,
1085
01:21:43,240 --> 01:21:45,800
and walked him out.
1086
01:22:51,400 --> 01:22:53,520
What we didn't have
on the jury was anyone
1087
01:22:53,560 --> 01:22:58,000
with significant physical
disabilities or that understanding
1088
01:22:58,040 --> 01:23:00,920
of a disability rights
perspective on the whole case.
1089
01:23:02,840 --> 01:23:05,560
At the end of the
day, it was just
1090
01:23:05,600 --> 01:23:09,280
be myself and tell my story, and
1091
01:23:09,320 --> 01:23:12,720
hopefully, the jury would
see that guy over there
1092
01:23:12,760 --> 01:23:16,760
is this wonderful, intelligent
man who I was in love with.
1093
01:24:14,880 --> 01:24:18,960
Was there any moment, either
during your time with Derrick,
1094
01:24:19,000 --> 01:24:21,200
or during the trial, or now,
1095
01:24:21,240 --> 01:24:24,360
where you had doubts about what
might have occurred between you two?
1096
01:24:24,400 --> 01:24:26,800
Never.
1097
01:24:38,880 --> 01:24:43,200
Her attorney came, and he was
making me to be the villain.
1098
01:24:44,320 --> 01:24:47,280
And he said, "Well,
how do you feel
1099
01:24:47,320 --> 01:24:50,080
about her being his lover?"
1100
01:24:50,120 --> 01:24:53,960
I said, "No." I said,
"She's not his lover."
1101
01:24:56,880 --> 01:25:00,120
This whore done laid
down, raped my son,
1102
01:25:00,160 --> 01:25:04,080
and I had to compose
myself because
1103
01:25:07,400 --> 01:25:09,400
that's my son.
1104
01:25:13,720 --> 01:25:17,640
Days and nights, I walked
through hospital corridors
1105
01:25:17,680 --> 01:25:20,760
not knowing what was
wrong with my son,
1106
01:25:20,800 --> 01:25:23,120
not knowing his
medical condition,
1107
01:25:23,160 --> 01:25:25,240
him having seizures.
1108
01:25:25,280 --> 01:25:27,560
And for that moment,
1109
01:25:27,600 --> 01:25:30,160
I almost lost it.
1110
01:25:30,200 --> 01:25:32,200
I did.
1111
01:25:33,360 --> 01:25:35,360
I really did.
1112
01:25:38,120 --> 01:25:40,240
Because who does that?
1113
01:25:43,840 --> 01:25:45,840
Who does that?
1114
01:25:48,400 --> 01:25:50,400
And then go criticise me.
1115
01:25:53,560 --> 01:25:56,360
Make me look like
I'm... I'm nobody,
1116
01:25:56,400 --> 01:25:58,400
I don't understand.
1117
01:25:59,920 --> 01:26:01,920
Who does that?
1118
01:26:06,680 --> 01:26:11,160
I don't think that Anna
Stubblefield truly recognised
1119
01:26:11,200 --> 01:26:13,760
how she devalued my brother
1120
01:26:13,800 --> 01:26:15,800
and also devalued my family.
1121
01:26:17,080 --> 01:26:19,080
It's one thing to
1122
01:26:21,360 --> 01:26:24,400
hear Anna Stubblefield say,
"Derrick and I love each other."
1123
01:26:24,440 --> 01:26:26,600
Just like...
1124
01:26:26,640 --> 01:26:31,320
But as the details of what
actually transpired unfold,
1125
01:26:31,360 --> 01:26:33,760
that she was in her office,
1126
01:26:33,800 --> 01:26:35,760
she had this mat on the floor.
1127
01:26:35,800 --> 01:26:38,800
And then you recall
that moment or that day
1128
01:26:38,840 --> 01:26:40,800
where I was changing
Derrick's diaper,
1129
01:26:40,840 --> 01:26:43,040
and I saw these
abrasions on his back.
1130
01:26:44,400 --> 01:26:48,120
Strawberries, like somebody's
dragging you across the floor.
1131
01:26:48,160 --> 01:26:52,640
And we couldn't figure out where
the heck these things came from.
1132
01:26:52,680 --> 01:26:55,120
We called the school.
"Did Derrick fall down?
1133
01:26:55,160 --> 01:26:57,840
Did something happen at the school?
Did somebody hit my brother?"
1134
01:26:57,880 --> 01:27:00,360
They're like, "No, nothing
happened. We don't know."
1135
01:27:00,400 --> 01:27:03,400
Prosecutor's trying to figure out what
happened. The story comes out, "Oh!
1136
01:27:03,440 --> 01:27:05,600
Something happened
in the office."
1137
01:27:05,640 --> 01:27:09,360
And, I mean, this
woman, 140, 150 pounds,
1138
01:27:09,400 --> 01:27:12,240
I don't know how much she weighed,
but she's much heavier than him.
1139
01:27:12,280 --> 01:27:14,720
Derrick is slight.
He's 5'3 ", 5'4".
1140
01:27:14,760 --> 01:27:17,440
And she was exerting
so much force on him
1141
01:27:17,480 --> 01:27:21,000
that his back was being
drug across this mat,
1142
01:27:21,040 --> 01:27:23,040
and it was leaving scars.
1143
01:27:41,920 --> 01:27:44,520
That woman did not give
a damn about my brother.
1144
01:27:54,640 --> 01:27:57,440
I didn't think I was
gonna be convicted,
1145
01:27:57,480 --> 01:27:59,640
but I wear contacts,
1146
01:27:59,680 --> 01:28:02,680
and that morning when
the jury came back,
1147
01:28:02,720 --> 01:28:08,000
I did put my
glasses in my purse.
1148
01:28:08,040 --> 01:28:10,800
It was my one little
concession to.
1149
01:28:10,840 --> 01:28:14,680
If I ended up in prison,
I needed my glasses.
1150
01:28:17,240 --> 01:28:19,400
I think by the time
1151
01:28:19,440 --> 01:28:21,440
the verdict actually came.
1152
01:28:23,120 --> 01:28:25,120
I was expecting it.
1153
01:28:27,880 --> 01:28:30,920
When the jury read
the conviction,
1154
01:28:30,960 --> 01:28:33,120
I started saying out
loud to the judge,
1155
01:28:33,160 --> 01:28:36,000
"Just please let me take
care of my daughter.
1156
01:28:36,040 --> 01:28:39,200
Just please let me take
care of my daughter."
1157
01:29:15,440 --> 01:29:17,720
Never doubted her.
1158
01:29:17,760 --> 01:29:20,120
No, not for an instant.
1159
01:29:21,840 --> 01:29:26,840
I mean, I watched her interact
with people her whole life,
1160
01:29:26,880 --> 01:29:28,880
and she is
1161
01:29:31,760 --> 01:29:34,560
as compassionate a person
as I've ever known.
1162
01:29:36,400 --> 01:29:40,120
And there's no way, I mean,
she's never harmed anybody.
1163
01:29:41,640 --> 01:29:44,840
And there's certainly no way
she would've harmed a man.
1164
01:29:45,760 --> 01:29:49,360
Do you think she believed
that he was typing?
1165
01:29:49,400 --> 01:29:51,720
Yeah, in her wicked mind.
1166
01:29:52,640 --> 01:29:54,320
In her wicked mind.
1167
01:30:08,000 --> 01:30:10,640
State versus Marjorie
Anna Stubblefield,
1168
01:30:10,680 --> 01:30:13,800
indictment number 13-1-44.
1169
01:30:14,680 --> 01:30:17,960
We are here today for the sentencing
of Marjorie Anna Stubblefield.
1170
01:30:21,560 --> 01:30:23,760
Yes, Your Honour. The victim's
brother, John Johnson,
1171
01:30:23,800 --> 01:30:26,440
would like to address the court,
his mother would like to approach
1172
01:30:26,480 --> 01:30:28,400
and stand with him while
he addresses the court.
1173
01:30:28,440 --> 01:30:30,440
That's fine.
1174
01:30:33,400 --> 01:30:35,160
Good afternoon, Your Honour.
1175
01:30:35,200 --> 01:30:37,400
Good afternoon.
1176
01:30:37,440 --> 01:30:39,320
Thirty-four years
ago, doctors said
1177
01:30:39,360 --> 01:30:42,240
my brother would not live
to see his third birthday.
1178
01:30:42,280 --> 01:30:45,920
Those doctors and
the devil are liars.
1179
01:30:45,960 --> 01:30:49,200
My brother since then has grown
to become a loving person.
1180
01:30:49,240 --> 01:30:53,040
He is a beautiful brother,
and he is a beautiful son.
1181
01:30:53,080 --> 01:30:56,800
I don't think Anna understood the
depth of pain she caused my family.
1182
01:30:56,840 --> 01:30:59,280
She tried to lay claim
to him and rename him.
1183
01:31:00,440 --> 01:31:02,920
She tried to supplant
Derrick's life,
1184
01:31:02,960 --> 01:31:05,040
a life steeped...
1185
01:31:05,080 --> 01:31:07,320
Go ahead.
1186
01:31:11,360 --> 01:31:13,600
Take your time.
1187
01:31:13,800 --> 01:31:15,720
Take your time.
1188
01:31:15,760 --> 01:31:17,560
A life steeped in the
history and culture
1189
01:31:17,600 --> 01:31:22,520
of his God-fearing, southern-rooted
African-American family.
1190
01:31:22,560 --> 01:31:24,760
She tried to supplant that
with some version of life
1191
01:31:24,800 --> 01:31:26,640
she thought was better.
1192
01:31:26,680 --> 01:31:29,280
We need to disenchant
ourselves from the notion
1193
01:31:29,320 --> 01:31:32,080
that Anna Stubblefield
is some tragic "shero".
1194
01:31:32,120 --> 01:31:35,520
Anna is not Sandra Bullock,
and this is not The Blind Side.
1195
01:31:35,560 --> 01:31:37,880
Derrick is not some poor
Black kid from the ghetto
1196
01:31:37,920 --> 01:31:39,920
that needs someone to save him.
1197
01:31:40,720 --> 01:31:43,960
An able-bodied woman
raped a disabled young man
1198
01:31:44,000 --> 01:31:46,080
that could not consent to sex.
1199
01:31:46,120 --> 01:31:48,680
You were wrong, Anna.
You committed a crime.
1200
01:31:48,720 --> 01:31:51,080
There is no grey
area. In closing,
1201
01:31:51,120 --> 01:31:54,360
thank Your Honour for helping
bring this ordeal to a close.
1202
01:32:00,960 --> 01:32:02,680
I have read and
received letters
1203
01:32:02,720 --> 01:32:05,160
from the former husband
of the defendant,
1204
01:32:05,200 --> 01:32:09,360
who wrote a very compelling
impact statement.
1205
01:32:09,400 --> 01:32:13,640
"I believe that Anna is a
pathological liar and narcissist."
1206
01:32:13,680 --> 01:32:18,040
She will stop at nothing to fool
the court and seek vindication
1207
01:32:18,080 --> 01:32:21,000
regardless of the emotional
and financial expense
1208
01:32:21,040 --> 01:32:24,280
to her family or the
primary victim's family.
1209
01:32:24,320 --> 01:32:26,080
Clearly, I am distraught,
1210
01:32:26,120 --> 01:32:29,120
but this and the impact
on my immediate family,
1211
01:32:29,160 --> 01:32:32,800
"I leave it to the wisdom of the
court to determine a just sentence."
1212
01:32:36,000 --> 01:32:38,000
Ms Stubblefield, please stand.
1213
01:32:43,360 --> 01:32:45,360
As to count one,
1214
01:32:45,400 --> 01:32:48,000
first-degree aggravated
sexual assault,
1215
01:32:48,040 --> 01:32:52,080
where the victim was physically
helpless or mentally incapacitated,
1216
01:32:52,120 --> 01:32:55,520
I sentence you to 12 years
in New Jersey State Prison.
1217
01:32:56,320 --> 01:32:59,040
As to count two, I sentence you
1218
01:32:59,080 --> 01:33:03,200
to 12 years New Jersey State
Prison concurrent with count one.
1219
01:33:04,040 --> 01:33:05,800
After you are
released from prison,
1220
01:33:05,840 --> 01:33:09,280
you are placed on parole
supervision for life.
1221
01:33:35,480 --> 01:33:37,800
I never thought that
she was a predator.
1222
01:33:39,320 --> 01:33:41,800
She truly believed
that what she was doing
1223
01:33:41,840 --> 01:33:44,360
was in Derrick's best interest.
1224
01:33:45,240 --> 01:33:48,080
She thought that he
deserves the opportunity
1225
01:33:48,120 --> 01:33:51,560
to have a life outside of, you
know, living with his mother.
1226
01:33:52,560 --> 01:33:55,280
But I think that
given what I observed,
1227
01:33:55,320 --> 01:33:57,200
and what I learned
from his record,
1228
01:33:57,240 --> 01:34:00,400
I think that it would've
been a false life with Anna.
1229
01:34:02,240 --> 01:34:04,920
I think that she was
a unfortunate victim
1230
01:34:04,960 --> 01:34:08,480
of methodology that's
very problematic.
1231
01:34:10,520 --> 01:34:13,120
However, she interpreted
what was going on,
1232
01:34:13,160 --> 01:34:15,840
whether she actually had
those conversations with him,
1233
01:34:15,880 --> 01:34:18,480
I don't know. But she... you
know, from my perspective,
1234
01:34:18,520 --> 01:34:21,440
she was having
conversations with herself.
1235
01:34:21,480 --> 01:34:23,760
Um, and, you know...
1236
01:34:23,800 --> 01:34:26,960
I don't know where
to even go with that.
1237
01:35:28,080 --> 01:35:30,960
When I first came
out of prison,
1238
01:35:31,000 --> 01:35:33,200
I managed to pick up
a waitressing job,
1239
01:35:33,240 --> 01:35:36,520
and then there was some publicity
around when I did the plea bargain
1240
01:35:36,560 --> 01:35:38,280
and I was sentenced, and
1241
01:35:38,320 --> 01:35:42,080
one of their customers
complained, and so they let me go.
1242
01:35:42,120 --> 01:35:44,760
So I was doing
that kind of thing
1243
01:35:44,800 --> 01:35:47,120
for the first year.
1244
01:35:47,160 --> 01:35:50,240
And then I do have,
1245
01:35:50,280 --> 01:35:53,920
you know, what's now
kind of part-time work.
1246
01:35:53,960 --> 01:35:57,000
I'm working at home,
nobody knows me.
1247
01:35:57,040 --> 01:36:00,160
And so, you know, that's OK,
1248
01:36:00,200 --> 01:36:02,200
but it's not teaching.
1249
01:36:03,480 --> 01:36:06,360
That was my whole identity.
That was everything.
1250
01:36:13,440 --> 01:36:17,680
I don't know what DMan's
life is like now, um...
1251
01:36:18,720 --> 01:36:20,560
As far as his
mother and brother,
1252
01:36:20,600 --> 01:36:23,120
I think they had
to really decide
1253
01:36:23,160 --> 01:36:25,240
that he wasn't intelligent,
1254
01:36:25,280 --> 01:36:28,720
and he wasn't typing, and it
was all a fraud and a hoax.
1255
01:36:30,600 --> 01:36:33,800
A friend of mine, who is
another... somebody else
1256
01:36:33,840 --> 01:36:35,680
who uses facilitated
communication,
1257
01:36:35,720 --> 01:36:39,640
who knew DMan and was
friends with DMan, um...
1258
01:36:39,680 --> 01:36:42,680
He said, "Look, if I was DMan,
1259
01:36:42,720 --> 01:36:45,080
I would rather have
1260
01:36:45,120 --> 01:36:49,000
had the relationship
with you and lost it
1261
01:36:49,040 --> 01:36:52,080
than never to have had
it in the first place."
1262
01:36:52,120 --> 01:36:54,440
So I hope that he's right.
1263
01:36:54,480 --> 01:36:56,840
You know, um, but...
1264
01:36:58,160 --> 01:37:00,160
Yeah.
1265
01:37:11,320 --> 01:37:13,960
People don't think that
there was damage done.
1266
01:37:14,000 --> 01:37:16,560
Yes, there was.
1267
01:37:16,600 --> 01:37:18,600
And it's still going on.
1268
01:37:20,440 --> 01:37:22,440
I had to put him on medication.
1269
01:37:23,560 --> 01:37:25,560
Because he
1270
01:37:26,360 --> 01:37:28,360
masturbates.
1271
01:37:29,360 --> 01:37:31,000
He has this urge,
1272
01:37:31,040 --> 01:37:34,240
and, you know, it's like a
itch that he can't scratch.
1273
01:37:34,280 --> 01:37:36,920
And it's hard enough to give him
1274
01:37:36,960 --> 01:37:38,720
a life
1275
01:37:38,760 --> 01:37:40,800
without him going through that.
1276
01:37:41,640 --> 01:37:43,640
And she did that.
1277
01:37:45,000 --> 01:37:49,000
Because if you don't ever strike
that match or do whatever,
1278
01:37:49,040 --> 01:37:50,840
how will you ever know?
1279
01:37:50,880 --> 01:37:52,840
There we go.
1280
01:37:56,400 --> 01:37:58,800
Showing all your muscles, huh?
1281
01:37:58,840 --> 01:38:00,840
You good?
1282
01:38:01,960 --> 01:38:04,480
Ready?
1283
01:38:04,520 --> 01:38:06,800
'One of the tough things
about this whole process
1284
01:38:06,840 --> 01:38:09,240
is that there was this idea
1285
01:38:09,280 --> 01:38:12,320
that, "Oh, he can do all
these wonderful things."
1286
01:38:15,560 --> 01:38:17,760
And then to have to...
1287
01:38:17,800 --> 01:38:20,080
Looking at everything
that was taking place,
1288
01:38:20,120 --> 01:38:23,120
then say... that he can't.'
1289
01:38:23,160 --> 01:38:25,040
You got the walk right
there, haven't you?
1290
01:38:27,200 --> 01:38:29,080
Alright.
1291
01:38:29,120 --> 01:38:30,760
In a sense I kinda
felt as though
1292
01:38:30,800 --> 01:38:33,720
I was diminishing his value.
"Yeah, Derrick can't do that."
1293
01:38:33,760 --> 01:38:35,960
Pick 'em up and put 'em down.
1294
01:38:36,000 --> 01:38:37,800
Pick 'em up.
1295
01:38:37,840 --> 01:38:41,320
'Going through that process
of having to recognise that,
1296
01:38:41,360 --> 01:38:44,600
"Damn, yeah, he is really
disabled." And that's fine.'
1297
01:38:45,960 --> 01:38:49,280
He can't do all other things
that other people can do.
1298
01:38:49,320 --> 01:38:52,880
And that's perfectly fine because
we're gonna be alright regardless.
1299
01:38:54,360 --> 01:38:57,160
OK.
1300
01:38:59,200 --> 01:39:01,200
Oh, you gonna show
them that smile?
1301
01:39:02,880 --> 01:39:05,520
Yeah, say, "Here I am."
1302
01:39:05,560 --> 01:39:09,640
The psychiatrist determined
that Derrick was deemed
1303
01:39:09,680 --> 01:39:13,840
incapable and incompetent
of taking care of himself.
1304
01:39:13,880 --> 01:39:15,880
Well, I knew.
1305
01:39:16,880 --> 01:39:18,520
I knew.
1306
01:39:18,560 --> 01:39:22,480
And knowing and accepting it,
1307
01:39:22,520 --> 01:39:26,400
and just embrace him. Just
love him for who he is.
1308
01:39:27,440 --> 01:39:29,680
No matter what or how
1309
01:39:31,720 --> 01:39:34,360
strong he gets,
he's still my child.
1310
01:39:34,400 --> 01:39:38,080
He will always have
that younger mindset.
1311
01:39:38,120 --> 01:39:40,520
And I, you know,
he's 40 years old,
1312
01:39:40,560 --> 01:39:43,840
and that's where we are.
1313
01:39:54,120 --> 01:39:56,920
You OK?
1314
01:39:57,720 --> 01:40:00,840
And I don't love him no less,
and I don't love him no more.
1315
01:40:00,880 --> 01:40:02,640
He's my baby.
1316
01:40:02,680 --> 01:40:06,160
He... is my baby.
1317
01:40:09,760 --> 01:40:11,760
Go ahead.
1318
01:40:55,960 --> 01:40:58,960
AccessibleCustomerService@sky.uk
106914
Can't find what you're looking for?
Get subtitles in any language from opensubtitles.com, and translate them here.