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1
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I always liken the AIDS pandemic to war.
2
00:00:08,860 --> 00:00:14,080
There was a relentless quality to the
destruction and death around us.
3
00:00:20,300 --> 00:00:25,980
Everybody who we lost to the pandemic,
we owe it to their memory to keep them
4
00:00:25,980 --> 00:00:26,980
alive.
5
00:00:32,430 --> 00:00:37,090
the lonely deaths that they died, to
take it out of that and to replace them
6
00:00:37,090 --> 00:00:39,490
somewhere better and brighter. I think
that's really important.
7
00:00:42,750 --> 00:00:46,570
The Department of the Taoiseach has
announced plans to unveil a national
8
00:00:46,570 --> 00:00:50,770
monument in the Phoenix Park to
commemorate 40 years of HIV AIDS in
9
00:00:52,610 --> 00:00:58,870
The HIV AIDS memorial that is due to be
unveiled in Phoenix Park,
10
00:00:59,090 --> 00:01:01,670
it's long overdue.
11
00:01:04,010 --> 00:01:07,830
It's great to have a place where you can
go and reflect.
12
00:01:12,050 --> 00:01:18,110
I think it's very necessary to remember
those who died from this pernicious
13
00:01:18,110 --> 00:01:19,130
disease in Ireland.
14
00:01:23,170 --> 00:01:24,550
This is the AIDS virus.
15
00:01:24,850 --> 00:01:28,450
The bubonic plague of the 80s called the
TB of this generation.
16
00:01:28,870 --> 00:01:32,950
Incurable, an epidemic and potentially
as disastrous for Ireland as the famine
17
00:01:32,950 --> 00:01:33,950
was.
18
00:01:46,700 --> 00:01:48,000
Good evening and welcome.
19
00:01:48,260 --> 00:01:52,120
If you're tired of hearing about AIDS,
maybe it's because you think it'll never
20
00:01:52,120 --> 00:01:54,800
affect you or yours. Don't be so sure.
21
00:01:59,600 --> 00:02:04,880
The assurance of no change in the status
of Northern Ireland. If you obey the
22
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Ten Commandments, you won't get AIDS.
23
00:02:09,000 --> 00:02:12,600
Drug addicts are the biggest problem
facing the AIDS campaign in this
24
00:02:12,780 --> 00:02:16,280
We can't really say they died a peaceful
death. The problem is now acute in
25
00:02:16,280 --> 00:02:20,320
certain geographical areas of the city.
Those areas whose poor conditions gave
26
00:02:20,320 --> 00:02:21,880
rise to drug abuse in the first place.
27
00:02:23,020 --> 00:02:24,860
AIDS ruined everything for me.
28
00:02:25,820 --> 00:02:26,820
Everything.
29
00:02:27,520 --> 00:02:32,200
One third of the 350 haemophiliacs in
the Republic have been infected with the
30
00:02:32,200 --> 00:02:32,978
AIDS virus.
31
00:02:32,980 --> 00:02:35,360
Their ages ranging from 60 down to 10.
32
00:02:36,200 --> 00:02:40,460
Some of the mums say that they're
literally, they're watching their child.
33
00:02:40,680 --> 00:02:43,200
A lot of them, I think, are literally
waiting for death.
34
00:02:43,800 --> 00:02:46,900
There really was a lack of compassion
and empathy throughout the party.
35
00:02:47,220 --> 00:02:49,260
He died last night in the Mater
Hospital.
36
00:02:49,540 --> 00:02:53,060
Sick prisoners in this block are not
HIV.
37
00:02:55,340 --> 00:02:57,640
The basic message seems to be just don't
fool around.
38
00:02:58,440 --> 00:03:00,540
Casual sex spreads AIDS.
39
00:03:00,840 --> 00:03:05,240
Looking at the different clips of all
that went on at that time.
40
00:03:05,660 --> 00:03:07,240
Like, or there didn't really happen.
41
00:03:08,200 --> 00:03:11,220
We were all trying to grapple what this
was about.
42
00:03:20,700 --> 00:03:22,760
Irish -related publications.
43
00:03:24,100 --> 00:03:29,720
Because you know what, when you start
looking at newspapers, you can really
44
00:03:29,720 --> 00:03:31,380
a sense of, like...
45
00:03:31,920 --> 00:03:37,080
The tone of the public discourse, I
mean, the levels of fear and hysteria
46
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were actually also being encouraged by
some of the sleazier elements, the red
47
00:03:43,600 --> 00:03:45,480
tops, for example, were shocking.
48
00:03:46,100 --> 00:03:48,920
It's documenting a really important and
traumatic period.
49
00:03:49,140 --> 00:03:55,340
And I'm standing here as a 62 -year -old
gay man, and I think I'm emblematic of
50
00:03:55,340 --> 00:03:58,900
a generation of gay men who will, for
better or worse...
51
00:03:59,310 --> 00:04:03,350
our lives will be defined by AIDS, will
be defined by the pandemic.
52
00:04:03,830 --> 00:04:05,990
It's just, it's inescapable.
53
00:04:21,410 --> 00:04:26,730
Once we dive into it, not only are we
excavating the past,
54
00:04:27,600 --> 00:04:32,400
But we're actually learning something
that we can apply to the place we find
55
00:04:32,400 --> 00:04:33,400
ourselves in today.
56
00:04:42,000 --> 00:04:45,680
The media response to HIV and AIDS was
stark.
57
00:04:46,220 --> 00:04:48,940
Driven by fear. It was driven by
misinformation.
58
00:04:49,580 --> 00:04:51,560
It was driven by a reaction.
59
00:04:52,250 --> 00:04:56,630
to something that people probably didn't
understand well enough to be reporting
60
00:04:56,630 --> 00:04:57,990
on and to be discussing.
61
00:05:00,290 --> 00:05:07,130
The subject matter is so shrouded in
mystique, in worry. The ignorance
62
00:05:07,130 --> 00:05:09,770
and fear was just so palpable. It was
enormous.
63
00:05:22,240 --> 00:05:28,400
metropolitan cultural elite, gained by
sexual men and then IV drug users. And
64
00:05:28,400 --> 00:05:30,400
sure, they're not really important, are
they?
65
00:05:30,960 --> 00:05:37,300
The other train of thought was that
Ireland was setting itself up for a very
66
00:05:37,300 --> 00:05:38,300
large problem.
67
00:05:39,320 --> 00:05:46,120
We were a small island society with
almost zero public
68
00:05:46,120 --> 00:05:48,600
sexual health education and culture.
69
00:05:49,440 --> 00:05:53,340
One facet of the Irish government's
strategy to combat the disease is that
70
00:05:53,340 --> 00:05:56,780
child should leave school without
knowing the facts about AIDS. But there
71
00:05:56,780 --> 00:06:00,420
been complaints that some principals
won't allow this educational programme
72
00:06:00,420 --> 00:06:01,239
their schools.
73
00:06:01,240 --> 00:06:06,960
We're still bent down by really suspect
Roman Catholic ideology and morality.
74
00:06:08,650 --> 00:06:12,310
The bishops at their spring meeting in
Maynooth complained that they only
75
00:06:12,310 --> 00:06:16,170
received a copy of the pilot project on
AIDS from the Department of Education a
76
00:06:16,170 --> 00:06:17,170
couple of weeks ago.
77
00:06:17,410 --> 00:06:21,430
Already the bishops' commissions for
education and catechetics have submitted
78
00:06:21,430 --> 00:06:25,830
detailed comments on the project to the
department, outlining what they see as
79
00:06:25,830 --> 00:06:26,749
its weaknesses.
80
00:06:26,750 --> 00:06:29,150
The fundamental issue here is not
conduct.
81
00:06:29,470 --> 00:06:33,830
It's something much deeper than that.
It's the formation and promotion of
82
00:06:33,830 --> 00:06:37,530
attitudes. We had all of the perfect
conditions.
83
00:06:38,220 --> 00:06:40,440
Were they conditioned to rampage?
84
00:06:44,140 --> 00:06:51,040
It was a privilege and a misfortune at
the same time working with people in
85
00:06:51,040 --> 00:06:56,140
St James' Hospital who were living and
dying with AIDS in the early to mid
86
00:06:56,140 --> 00:06:57,140
-1980s.
87
00:06:57,860 --> 00:06:59,540
I'd never seen a plague before.
88
00:07:01,099 --> 00:07:05,420
Unfortunately, we learned, as we were
learning, we weren't even sure then how
89
00:07:05,420 --> 00:07:10,800
HIV was transmitted, but it was killing
everybody on the AIDS unit.
90
00:07:11,800 --> 00:07:17,600
As a nurse and a midwife, I'd been used
to helping people get better, and
91
00:07:17,600 --> 00:07:23,240
certainly not young people my own age,
in my early 20s, and just a bit older,
92
00:07:23,360 --> 00:07:25,000
getting sick and dying.
93
00:07:25,540 --> 00:07:29,380
Looking back now, I almost think we
really needed counselling ourselves.
94
00:07:30,600 --> 00:07:37,400
because you try to do the best, you try
to lift the mood, and
95
00:07:37,400 --> 00:07:44,240
yet in that part of the three -unit war,
top of one, everybody there at that
96
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time died, and it was hard to take.
97
00:07:52,900 --> 00:07:56,960
It's just beginning to move into the
heterosexual population.
98
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Just one act of intercourse may give you
AIDS and lead to death.
99
00:08:01,840 --> 00:08:08,460
I was introduced to a substance called
crystal meth, and this was delivered
100
00:08:08,460 --> 00:08:13,120
intravenously. How far down the road are
you in the HIV? I'm in what's known as
101
00:08:13,120 --> 00:08:17,100
stage three. That's to say that my
immune system has been significantly
102
00:08:17,500 --> 00:08:21,560
When I do reach stage four, I will be
considered to have full -blown AIDS.
103
00:08:22,010 --> 00:08:23,890
I know I'm dead, honestly.
104
00:08:24,970 --> 00:08:27,930
That's the only way I can take that.
105
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But it's my family.
106
00:08:33,570 --> 00:08:36,650
How are they going to survive without me
gone?
107
00:08:54,890 --> 00:09:01,390
I remember my friend Barry's wake up in
Capra Downs in a lovely leafy Victorian
108
00:09:01,390 --> 00:09:02,410
suburb of Dublin.
109
00:09:04,890 --> 00:09:10,790
And less than a dozen of his closest men
and women friends sitting around the
110
00:09:10,790 --> 00:09:17,630
bed and Barry laid out in the bed, my
age, 27, laid out in the bed, thick
111
00:09:17,630 --> 00:09:18,630
tin.
112
00:09:20,470 --> 00:09:22,710
Every part of that wake.
113
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I remember very clearly.
114
00:09:25,440 --> 00:09:28,820
I remember the music that was played. I
remember smoking spliffs.
115
00:09:30,720 --> 00:09:34,840
I remember sitting around sharing
stories about Barry while he's there.
116
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I remember wanting to go over, feeling
the urge to go over and shake him and
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00:09:41,080 --> 00:09:42,760
wake up, wake up, wake up.
118
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And now, when I think back on it now,
and as I'm saying it to you, I realize
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that that was me trying to...
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process and modulate my grief and just
the sheer fucking horror you
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00:09:56,780 --> 00:09:59,100
know that we were surrounded with
122
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so
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far over 500 people have the virus Over
300 are drug users.
124
00:10:15,540 --> 00:10:19,800
What we're facing now is a doubling of
AIDS cases in a nine -month period and
125
00:10:19,800 --> 00:10:24,060
it's ravaging those communities least
equipped to resist it or to contain it.
126
00:10:24,720 --> 00:10:29,940
I had been living in Dublin and I wasn't
in a very good relationship.
127
00:10:30,320 --> 00:10:34,500
The relationship was very volatile.
There was a lot of violence.
128
00:10:36,240 --> 00:10:39,860
I was only 15 and he was two years
older.
129
00:10:40,620 --> 00:10:42,840
Heroin had come to Dublin.
130
00:10:43,930 --> 00:10:46,350
And he got swept up in that.
131
00:10:47,690 --> 00:10:51,370
In order for me to live, it was to get
out of this relationship.
132
00:10:52,810 --> 00:10:55,610
The violence was quite horrific at
times.
133
00:10:56,730 --> 00:10:59,670
And when I walked out of the house, I
didn't know where I was going.
134
00:11:00,990 --> 00:11:04,710
I had the children, and I knew I was
getting on the fourth bus.
135
00:11:05,290 --> 00:11:09,970
But where, I didn't know. And I was very
conscious of, I'm still in Dublin here.
136
00:11:10,390 --> 00:11:12,170
You know, he's going to find me.
137
00:11:12,810 --> 00:11:15,390
He always said he would find me no
matter where I went.
138
00:11:16,530 --> 00:11:18,050
So I knew I couldn't stay.
139
00:11:19,590 --> 00:11:22,870
And I ended up in a tiny little village
in Galway.
140
00:11:26,650 --> 00:11:31,370
I knew my partner had tested positive.
And I was starting to get a bit sick
141
00:11:31,370 --> 00:11:32,370
myself.
142
00:11:32,590 --> 00:11:35,350
And I wanted a test for myself.
143
00:11:35,810 --> 00:11:38,670
The test was sent off to Galway City.
144
00:11:40,750 --> 00:11:45,630
I was waiting and waiting and waiting
and it felt like forever.
145
00:11:47,090 --> 00:11:53,550
I went up and sat in the surgery and I
could hear him and his wife talking in
146
00:11:53,550 --> 00:11:58,910
the background, chatting and like, how
am I supposed to go out and tell this
147
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woman? How am I to tell her she has four
small children? How am I to tell her
148
00:12:03,990 --> 00:12:04,829
this news?
149
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So I already knew the news before I
even...
150
00:12:08,350 --> 00:12:14,130
got into his little surgery room and he
said, well, Elizabeth, I'm very, very
151
00:12:14,130 --> 00:12:18,350
sorry that I had to tell you that your
results came back and you're positive.
152
00:12:24,370 --> 00:12:28,370
Ireland now has the highest number of
babies born with AIDS antibodies per
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of population than any other European
country. This is due to the prevalence
154
00:12:32,450 --> 00:12:33,970
the disease among drug abusers.
155
00:12:35,450 --> 00:12:37,130
I had just had my...
156
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my son that August.
157
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The doctor said, you know, we really do
need to do this test to see he had been
158
00:12:46,300 --> 00:12:48,820
ill and he wasn't responding to
antibiotics.
159
00:12:51,460 --> 00:12:54,560
And the doctor said, you know, like,
we'll...
160
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we'll do this together i'll completely
support you you know and the test came
161
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back and uh it was negative and i
remember uh my mother being so overjoyed
162
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was doing a little dance in the surgery
and saying it's a miracle you know yeah
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it was a miracle my ex -partner died
164
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20 years ago it was a decision that he
had made
165
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He doesn't want to start treatment.
166
00:13:27,660 --> 00:13:31,260
And I do believe that I made the right
decision because if I didn't, I wouldn't
167
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be here.
168
00:13:51,310 --> 00:13:57,110
I always feel really weird walking
around the streets of Dublin because
169
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alive with ghosts.
170
00:14:12,130 --> 00:14:16,130
I made a mental note of all the people I
lost.
171
00:14:18,480 --> 00:14:23,440
And at one point, I was able to count to
43 the number of people I knew who died
172
00:14:23,440 --> 00:14:24,440
of AIDS.
173
00:14:27,800 --> 00:14:29,780
What's shocking is actually there have
been more since.
174
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All you can think of is having some
bright future together with your friends
175
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only to discover that bright future
snuffed out.
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The friends you imagined you were going
to have a lifetime of memories not being
177
00:14:50,520 --> 00:14:51,520
with you.
178
00:14:54,840 --> 00:14:58,920
And actually there's a few of them, I
think about them every single day.
179
00:14:59,120 --> 00:15:04,920
Part of that's a determination to offset
the anger I felt that society had
180
00:15:04,920 --> 00:15:05,920
forgotten them.
181
00:15:07,960 --> 00:15:12,360
That Ireland hadn't done enough to
remember the people we lost from AIDS.
182
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We were delighted to be invited onto the
Oversight Committee, which was formed
183
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and led by the PSOC's office to bring a
monument to reality.
184
00:15:36,020 --> 00:15:40,720
The Oversight Committee had two
functions. One was to ensure that the
185
00:15:40,720 --> 00:15:45,160
project came to fruition, but also to
select the actual winning design.
186
00:15:46,560 --> 00:15:52,120
What was chosen, I think, is the most
stunning, the most appropriate, the most
187
00:15:52,120 --> 00:15:53,460
impactful design.
188
00:15:54,040 --> 00:15:56,520
that was put before the jury and the
oversight committee.
189
00:16:20,860 --> 00:16:26,500
something else than just look at it. So
if you can create a seat or a monument
190
00:16:26,500 --> 00:16:32,760
that people can walk or climb or
interact somehow, it has become
191
00:16:32,760 --> 00:16:35,360
and it gets much more interest.
192
00:16:35,780 --> 00:16:40,080
I first draw the red ribbon and then I
close it in a shape and then it was
193
00:16:40,080 --> 00:16:44,440
something like this that is an embraced
loop and people sitting there.
194
00:16:44,760 --> 00:16:49,120
And then I put these lines in the
computer and then I start doing some
195
00:16:49,120 --> 00:16:50,120
experiments.
196
00:16:51,280 --> 00:16:58,020
I'm trying to do a composition that will
focus on the shape of this
197
00:16:58,020 --> 00:16:59,020
ribbon.
198
00:16:59,660 --> 00:17:06,260
This symbol of awareness would connect
so much the community and bring people
199
00:17:06,260 --> 00:17:10,319
together and then they will talk about
the HIV and the memories.
200
00:17:19,790 --> 00:17:26,670
It's great that they choose the location
of the park because it's silent, you
201
00:17:26,670 --> 00:17:28,210
can feel the nature around.
202
00:17:29,870 --> 00:17:35,070
You have a much better experience when
you have this type of surrounding.
203
00:17:44,330 --> 00:17:48,310
My vision was to get everything in this.
204
00:17:48,730 --> 00:17:54,570
In this color palette that where the the
curtain steel is the is the heavy color
205
00:17:54,570 --> 00:17:59,850
the dark color That's the loop and and
then we do the entrance from here and
206
00:17:59,850 --> 00:18:02,830
then we can grow This entrance here.
207
00:18:03,090 --> 00:18:10,090
Yeah And then people will enter here so
it's really nice to imagine how
208
00:18:10,090 --> 00:18:16,150
the concept of the Ribbon bring this
community together and that the people
209
00:18:16,150 --> 00:18:18,770
the city can enjoy it It's really nice
to imagine.
210
00:18:19,090 --> 00:18:21,790
You've got to be careful too as well,
and this is what I was saying earlier on
211
00:18:21,790 --> 00:18:22,790
in the week.
212
00:18:22,850 --> 00:18:27,250
We need the size of the toil for the
timber, because you've got to agree to
213
00:18:27,250 --> 00:18:30,230
that. Haemophiliacs' blood doesn't clot
in the normal way.
214
00:18:30,650 --> 00:18:34,730
Bleeding damages muscles and joints, or
it can be life -threatening. To avoid
215
00:18:34,730 --> 00:18:38,110
this, patients must have transfusions to
make their blood clot.
216
00:18:38,930 --> 00:18:43,430
100 of the 350 haemophiliacs in the
Republic have been infected with the
217
00:18:43,430 --> 00:18:45,990
virus after getting contaminated
transfusions.
218
00:19:11,590 --> 00:19:17,190
What we can see from here is the big
Elysian straight in front
219
00:19:17,190 --> 00:19:24,050
Into Cork Over to the right
220
00:19:24,050 --> 00:19:30,090
hand side the white building the white
structure. That's Parkey Cove I've the
221
00:19:30,090 --> 00:19:36,290
green here and that's the city. You
can't go wrong Ten minutes I'm in
222
00:19:36,290 --> 00:19:38,010
Street traffic defending.
223
00:19:38,770 --> 00:19:40,530
Yeah, and I love it
224
00:19:41,520 --> 00:19:42,920
lovely part of the world.
225
00:19:45,340 --> 00:19:46,820
My name is Colm Wall.
226
00:19:47,660 --> 00:19:48,660
I'm 48.
227
00:19:49,860 --> 00:19:56,720
I am a severe factor IX deficiency
haemophiliac, and I live life to the
228
00:19:56,720 --> 00:19:57,720
full.
229
00:20:04,100 --> 00:20:06,320
Here are the family.
230
00:20:06,820 --> 00:20:08,640
That's my mother and father.
231
00:20:09,660 --> 00:20:10,660
That's Brendan.
232
00:20:11,580 --> 00:20:14,180
That's me, and that's my sister Susan.
233
00:20:15,220 --> 00:20:18,940
Brendan was a big man. He was like me.
234
00:20:19,700 --> 00:20:23,020
To look at us, you wouldn't think we
were haemophiliacs.
235
00:20:23,300 --> 00:20:25,820
He travelled, he had a girlfriend.
236
00:20:26,500 --> 00:20:27,500
He lived life.
237
00:20:28,280 --> 00:20:31,260
And at the same time, he was always
looking out for me as well.
238
00:20:32,540 --> 00:20:37,140
This doctor is preparing the
concentrated blood plasma, which is the
239
00:20:37,140 --> 00:20:38,660
treatment for all haemophiliacs.
240
00:20:39,320 --> 00:20:43,900
It is called Factor VIII and is produced
from a large quantity of blood given by
241
00:20:43,900 --> 00:20:45,260
a large number of blood donors.
242
00:20:45,780 --> 00:20:52,300
Every Wednesday after school, I remember
distinctly, up to the hospital in the
243
00:20:52,300 --> 00:20:56,080
mini, we'd go down to the blood bank and
then pray that there was a doctor
244
00:20:56,080 --> 00:20:58,040
around that could infuse us.
245
00:20:58,920 --> 00:21:05,640
So that was our life for a good portion
of it. We didn't know where
246
00:21:05,640 --> 00:21:08,600
the product was coming from. We were
just there.
247
00:21:08,990 --> 00:21:11,550
giving me freedom, giving me
independence.
248
00:21:13,970 --> 00:21:18,410
Since the 1960s, haemophiliacs have
depended on plasma to keep them alive.
249
00:21:18,770 --> 00:21:22,650
As knowledge and technology improved,
they began to look forward to a better
250
00:21:22,650 --> 00:21:24,390
lifestyle and a longer lifespan.
251
00:21:25,550 --> 00:21:30,010
In the 1980s and up to the mid -90s, the
treatments used for haemophilia were
252
00:21:30,010 --> 00:21:34,450
factor VIII or factor IX concentrate,
made from vast pools of human plasma.
253
00:21:34,750 --> 00:21:39,010
Now, thousands and thousands of
donations would... would be pooled
254
00:21:39,010 --> 00:21:42,510
then they'd make batches of factor VIII
or factor IX from this. The problem was
255
00:21:42,510 --> 00:21:48,870
if one or two of the donors had HIV or
hepatitis C or hepatitis B, then the
256
00:21:48,870 --> 00:21:50,110
entire pool would be contaminated.
257
00:21:50,510 --> 00:21:53,870
It was basically a lottery of death.
258
00:21:57,190 --> 00:22:04,030
It was our normal injection, our normal
259
00:22:04,030 --> 00:22:05,170
routine injection.
260
00:22:06,170 --> 00:22:13,090
up to a few hits, went up that day, got
the doses we were supposed,
261
00:22:13,330 --> 00:22:20,110
got the amounts we were supposed to get
and Brendan got HIV, I didn't,
262
00:22:20,110 --> 00:22:26,290
I got Hepatitis C. We took the same dose
on the same day and Brendan got the HIV
263
00:22:26,290 --> 00:22:27,710
and I didn't.
264
00:22:27,990 --> 00:22:33,150
And that's a bit tough and I still get
the lump in my throat because
265
00:22:34,610 --> 00:22:40,570
what after happened then, it kind of
determined a lot for our lives.
266
00:22:45,110 --> 00:22:50,630
To put it in perspective, in the 1980s,
you probably had about 240 people with
267
00:22:50,630 --> 00:22:51,650
serohemophilia in Ireland.
268
00:22:51,930 --> 00:22:53,790
103 got HIV.
269
00:22:54,560 --> 00:22:57,940
to blood and blood products and the vast
majority of those were also
270
00:22:57,940 --> 00:23:02,340
subsequently infected with hepatitis C.
So it devastated the community and to
271
00:23:02,340 --> 00:23:06,720
the extent that if you look at all
deaths of people with haemophilia in
272
00:23:06,720 --> 00:23:11,900
from 1983 to now, I think there were 124
deaths, 120 of those were due to the
273
00:23:11,900 --> 00:23:12,900
treatment.
274
00:23:21,740 --> 00:23:26,860
He was okay. He was getting migraines,
and they were bad migraines, but he was
275
00:23:26,860 --> 00:23:30,600
still as big as ever. There was never
any issue with him losing weight or
276
00:23:30,600 --> 00:23:34,280
anything like that. He was still going
on holidays. He was still working.
277
00:23:35,420 --> 00:23:41,760
But then, all of a sudden, the migraines
started progressing, getting worse and
278
00:23:41,760 --> 00:23:42,760
worse and worse.
279
00:23:43,740 --> 00:23:46,580
And we did not know.
280
00:23:46,860 --> 00:23:49,800
We had no idea what was going on.
281
00:23:50,170 --> 00:23:54,050
He went into hospital on a Friday.
282
00:23:54,410 --> 00:23:59,570
He was a good enough arm. And I was
there, come on, get up, you're OK. I
283
00:23:59,570 --> 00:24:00,570
help.
284
00:24:02,130 --> 00:24:05,390
I remember Mum and Dad going up to him
on a Wednesday.
285
00:24:08,050 --> 00:24:09,250
Things were not good.
286
00:24:10,770 --> 00:24:14,850
He was after deteriorating fast.
287
00:24:20,960 --> 00:24:25,740
And... I remember
288
00:24:25,740 --> 00:24:32,540
that it was a Friday morning and my
parents coming home
289
00:24:32,540 --> 00:24:34,940
and my father just going like that.
290
00:24:35,660 --> 00:24:37,060
My mother was in bed.
291
00:24:39,500 --> 00:24:43,800
Susan ran down to her bedroom like it
was just a mess.
292
00:24:44,340 --> 00:24:45,580
My brother had passed.
293
00:24:46,200 --> 00:24:47,800
And the thing was...
294
00:24:48,190 --> 00:24:54,910
we didn't know the reason behind this
and that was his
295
00:24:54,910 --> 00:25:01,870
wish and you know something I respect
that Brendan obviously he
296
00:25:01,870 --> 00:25:05,730
was so strong he took it on the chin and
297
00:25:05,730 --> 00:25:09,470
for
298
00:25:09,470 --> 00:25:14,990
that I said thank you
299
00:25:14,990 --> 00:25:18,350
but It must have been horrific.
300
00:25:21,430 --> 00:25:26,390
He didn't want to tell people with the
stigma around it because people did not
301
00:25:26,390 --> 00:25:29,410
know the facts, the full story.
302
00:25:30,670 --> 00:25:34,850
That pressure on Brendan back then must
have been enormous.
303
00:25:36,830 --> 00:25:40,090
When I remember starting getting ill
with HIV and AIDS,
304
00:25:42,380 --> 00:25:45,700
There really was a lack of compassion
and empathy throughout society.
305
00:25:46,100 --> 00:25:49,000
It was very, very difficult. These were
dark, dark days.
306
00:25:49,420 --> 00:25:53,960
There were major deficits in the actions
of doctors and hospitals and the entire
307
00:25:53,960 --> 00:25:57,500
health care system. There was a
paternalistic culture. You didn't
308
00:25:57,500 --> 00:25:58,500
doctors.
309
00:25:59,020 --> 00:26:04,300
We were importing factor concentrates
from the USA right from the late 70s. In
310
00:26:04,300 --> 00:26:09,100
looking back, in fact, at the files
afterwards, I found notes from 1980,
311
00:26:09,260 --> 00:26:13,680
where they kept talking about self
-sufficiency and we would start
312
00:26:13,680 --> 00:26:17,240
enough plasma to make factorate from
Irish plasma and they talked about this
313
00:26:17,240 --> 00:26:20,100
talked about this and there were all
sorts of issues of production and
314
00:26:20,100 --> 00:26:22,560
from the Department of Health and it
never happened.
315
00:26:23,460 --> 00:26:28,360
We started making factor from Irish
plasma in 1986, which was...
316
00:26:29,200 --> 00:26:32,860
far, far too late. At that stage, if
they had started as they were supposed
317
00:26:32,860 --> 00:26:36,040
do in 1980, 81, a lot of the deaths
might have been avoided.
318
00:26:37,360 --> 00:26:40,740
To this day, the effect it has on my mum
and dad is unreal.
319
00:26:42,420 --> 00:26:43,500
Susan, the same.
320
00:26:45,060 --> 00:26:52,000
I'm... I take it one day at a time, but
that was then. I'm
321
00:26:52,000 --> 00:26:55,600
after living my own life as best I can.
322
00:27:04,110 --> 00:27:08,170
Patients were told the problem would be
investigated by the Findlay inquiry, but
323
00:27:08,170 --> 00:27:12,570
Haemophiliacs withdrew, saying that
terms of reference didn't allow the
324
00:27:12,570 --> 00:27:14,330
to scrutinise their grievances.
325
00:27:14,590 --> 00:27:17,970
In the last 11 months, we've had three
financial tribunals being set up and one
326
00:27:17,970 --> 00:27:21,830
of them completed, and yet this
tribunal, which is dealing with people's
327
00:27:21,830 --> 00:27:25,670
and not with funds, has been very slow
in getting anywhere.
328
00:27:27,090 --> 00:27:30,890
Haemophiliacs were assured there would
be ongoing consultation about the terms
329
00:27:30,890 --> 00:27:32,510
of reference for the new inquiry.
330
00:27:37,360 --> 00:27:40,600
The recommendations of the Lindsay
Tribunal were somewhat general, but we
331
00:27:40,600 --> 00:27:43,860
able to use those to put in place
specific measures to make sure that this
332
00:27:43,860 --> 00:27:46,420
of tragedy could not happen to the
community again.
333
00:27:51,300 --> 00:27:57,640
Let's concentrate on the future and what
we can do to make sure that
334
00:27:57,640 --> 00:28:01,260
nothing like that ever happens again.
335
00:28:03,620 --> 00:28:05,860
And quite frankly, we won't accept.
336
00:28:06,620 --> 00:28:10,940
unsafe products now or in the future. We
won't accept not being consulted.
337
00:28:11,180 --> 00:28:12,480
That's the change that's come.
338
00:28:18,180 --> 00:28:23,640
The monument that they're making at the
moment is just a fitting tribute to them
339
00:28:23,640 --> 00:28:25,080
and I think it will be lovely.
340
00:28:39,470 --> 00:28:43,450
We were approached by Anasia and Michael
to work on the project.
341
00:28:43,650 --> 00:28:49,590
What they perceived was the emblem for
the AIDS and HIV, which I remember
342
00:28:49,590 --> 00:28:51,730
greatly through the 80s and the 90s.
343
00:28:54,750 --> 00:28:57,630
This looks much more black than this
one.
344
00:28:57,850 --> 00:29:02,370
Yeah, but that's at the 80s stages and
after about three or four years it will
345
00:29:02,370 --> 00:29:03,370
come down to that colour.
346
00:29:04,190 --> 00:29:05,190
Yeah,
347
00:29:06,670 --> 00:29:08,070
I think this one is more like this.
348
00:29:08,510 --> 00:29:12,170
We've a couple of weeks, probably the
guts of about six to eight weeks in
349
00:29:12,170 --> 00:29:13,170
of us.
350
00:29:14,350 --> 00:29:17,890
And look, it's a privilege to work on it
because it's a very sad story.
351
00:29:26,370 --> 00:29:27,370
Children,
352
00:29:32,290 --> 00:29:37,010
adults, they'll all want to feel it and
touch, get that sensitivity of the piece
353
00:29:37,010 --> 00:29:41,350
out. As you can see, there's rust on my
hand, but this will, after a while, that
354
00:29:41,350 --> 00:29:43,670
will seal itself and it will fade out
with the cortex.
355
00:29:43,990 --> 00:29:48,870
But most importantly, you can see that
I'm not afraid to rub it really hard so
356
00:29:48,870 --> 00:29:49,870
there's no sharp edges.
357
00:29:50,810 --> 00:29:54,470
This actually is the gateway into the
private area.
358
00:29:54,690 --> 00:29:58,530
And it's an area where people who want a
bit of solace and they just want to
359
00:29:58,530 --> 00:30:04,050
meditate, think about all the people,
all the misfortunates and unfortunates
360
00:30:04,050 --> 00:30:07,130
that, you know, were affected by these
horrible diseases.
361
00:30:07,760 --> 00:30:12,020
over the last two or three generations
that just want to spend a bit of
362
00:30:12,020 --> 00:30:18,900
time in the park what can i say there
was some
363
00:30:18,900 --> 00:30:22,760
horrific scenes all around the country
with people that were badly affected by
364
00:30:22,760 --> 00:30:23,620
it people
365
00:30:23,620 --> 00:30:33,600
that
366
00:30:33,600 --> 00:30:38,350
you knew two years ago were find solid
people and then you meet them and
367
00:30:38,350 --> 00:30:39,470
just a shadow of what they were.
368
00:30:41,870 --> 00:30:45,290
You could see the haunting look on them
and you could see them wasting away.
369
00:30:47,890 --> 00:30:51,250
Just to see somebody waste away is
haunting.
370
00:31:06,250 --> 00:31:10,930
It's just marking an era that was just
like COVID will be marked in a few
371
00:31:11,050 --> 00:31:13,130
time. It's just to say that I lived
through it.
372
00:31:16,270 --> 00:31:20,630
Last year, 60 ,000 people left the
country of their birth to find the one
373
00:31:20,630 --> 00:31:23,630
that Ireland could not give them, work
and a new life elsewhere.
374
00:31:24,230 --> 00:31:28,270
And once again, Ireland loses its best
asset, its youth, who are voting with
375
00:31:28,270 --> 00:31:29,950
their feet and heading towards London.
376
00:31:41,770 --> 00:31:47,870
So I was having my gender reassignment
surgery and it was compulsory to have an
377
00:31:47,870 --> 00:31:48,589
AIDS test.
378
00:31:48,590 --> 00:31:53,890
And I will use the word AIDS because of
time and when it happened.
379
00:31:54,750 --> 00:32:00,730
I genuinely thought absolutely nothing
of it because what I'd heard on the
380
00:32:00,730 --> 00:32:05,330
streets really was it either came from
darkest Africa. These were the words
381
00:32:05,330 --> 00:32:06,350
we're using of mine.
382
00:32:06,630 --> 00:32:08,410
It either came from darkest Africa.
383
00:32:09,070 --> 00:32:14,230
or you had to be gay and into like
really heavy rough trade as we would
384
00:32:14,230 --> 00:32:19,950
called it back in the day and i thought
well that couldn't be me you know
385
00:32:19,950 --> 00:32:25,110
i come from ranelagh things like that
don't happen to people like me
386
00:32:25,110 --> 00:32:36,230
the
387
00:32:36,230 --> 00:32:42,840
minute i was told by the doctor. He sat
me down. He was very cold, very
388
00:32:42,840 --> 00:32:48,100
matter of fact, and said, you've tested
positive for AIDS.
389
00:32:49,940 --> 00:32:54,280
When somebody tells you that, your world
ends there and then.
390
00:32:55,120 --> 00:32:56,700
My whole world stopped.
391
00:32:58,360 --> 00:33:03,360
And I remember flirting out the only
words I could think of to say were, can
392
00:33:03,360 --> 00:33:04,360
still have my surgery?
393
00:33:05,480 --> 00:33:08,160
And he went, Most definitely not.
394
00:33:08,640 --> 00:33:12,720
My world stopped that day.
395
00:33:18,440 --> 00:33:22,280
Something that I thought in my childhood
was just something in my head.
396
00:33:24,680 --> 00:33:29,580
And because I'm Catholic, that it was
probably evil, you know, to think that I
397
00:33:29,580 --> 00:33:30,580
could be a girl.
398
00:33:32,600 --> 00:33:37,540
And then when I find out that it's
possible, and I go to every length to be
399
00:33:37,540 --> 00:33:44,200
person, me, the real me, to then feeling
some form of
400
00:33:44,200 --> 00:33:49,360
freedom, or that freedom was on the way,
and I would go and have my surgery.
401
00:33:50,860 --> 00:33:53,620
And then this fucking AIDS came in.
402
00:33:57,800 --> 00:33:59,680
AIDS ruined everything for me.
403
00:34:00,500 --> 00:34:02,360
So I'm fighting with my gender.
404
00:34:03,720 --> 00:34:05,240
And I'm fighting with my life.
405
00:34:09,620 --> 00:34:12,840
At this stage, I'm trying to change my
name by depot.
406
00:34:14,300 --> 00:34:15,860
I can't have a bank account.
407
00:34:17,199 --> 00:34:18,440
Nobody would give me one.
408
00:34:21,659 --> 00:34:23,679
And I ended up on the streets of Soho.
409
00:34:25,780 --> 00:34:29,880
You just think to yourself, fuck this.
410
00:34:32,590 --> 00:34:35,650
Somebody rang me and said, have you ever
thought about writing a book? I said,
411
00:34:35,830 --> 00:34:41,650
yeah. And I wrote the book, and I
mentioned all the stuff I'd done, sex
412
00:34:41,989 --> 00:34:45,850
heroin, crack, running a brothel in
Amsterdam.
413
00:34:47,510 --> 00:34:50,210
But there was no way I would put in HIV.
414
00:34:50,969 --> 00:34:56,230
Them reading about me running a brothel
or being a heroin addict was, yeah, a
415
00:34:56,230 --> 00:34:58,070
job for even being a sex worker.
416
00:34:59,250 --> 00:35:01,690
But for kids, that's somewhere along the
line.
417
00:35:02,920 --> 00:35:03,940
But not the HIV.
418
00:35:05,800 --> 00:35:07,660
I thought Ireland wouldn't forgive that.
419
00:35:21,820 --> 00:35:24,960
John, I'm over here with the lad
spittering down at the minute on the
420
00:35:24,960 --> 00:35:28,940
documentary. Any chance to comb your
hair down and come over here quickly
421
00:35:28,940 --> 00:35:29,940
the light's fast?
422
00:35:30,190 --> 00:35:32,670
They're looking for a really good
looking guy to be in the snapshot.
423
00:35:33,850 --> 00:35:37,610
I'm happy with the lines, the way that
they wanted the lines. You can see the
424
00:35:37,610 --> 00:35:38,610
vertical lines.
425
00:35:39,090 --> 00:35:41,850
I'm happy with that. You? Yeah, I'm
really happy, Brian, yeah.
426
00:35:43,290 --> 00:35:46,750
All of that shape now, just tack
everything in. Now we need to get that
427
00:35:46,750 --> 00:35:48,950
and get a twist on it. Yeah.
428
00:35:52,110 --> 00:35:56,150
Our T -shirt clear for that is due to
open, I think, on the 3rd of December.
429
00:35:56,970 --> 00:36:00,830
So there's a mad scramble, obviously, to
get it finished for that date.
430
00:36:03,850 --> 00:36:05,990
It has to be split now for transport.
431
00:36:07,050 --> 00:36:11,410
Ideally, I want to leave the loop on it,
so I've got to see what way I've got to
432
00:36:11,410 --> 00:36:15,430
strengthen it and put it all together
for transportation and splitting it.
433
00:36:17,070 --> 00:36:22,490
It's like lifting maybe 10 or 12 dozen
eggs in one go because of its
434
00:36:22,490 --> 00:36:25,690
irregularity in size and shape.
435
00:36:26,299 --> 00:36:27,640
It's not a proven science.
436
00:36:28,060 --> 00:36:33,660
And at the end of the day, it'll be down
to skill, knowledge, and a bit of good
437
00:36:33,660 --> 00:36:35,320
luck. A lot of good luck.
438
00:36:38,100 --> 00:36:41,080
No matter what happens, I have to get it
across the world.
439
00:36:46,760 --> 00:36:50,020
The first medications that came out, I
was on them, AZT.
440
00:36:51,960 --> 00:36:54,360
We used to, like, have a dark joke
between ourselves.
441
00:36:55,120 --> 00:36:59,040
We used to say, if AIDS doesn't kill
you, the meds will.
442
00:36:59,980 --> 00:37:04,280
Up until now, a drug known as AZT was
reckoned to be the best treatment to
443
00:37:04,280 --> 00:37:05,300
down the spread of AIDS.
444
00:37:05,560 --> 00:37:09,440
It's not a cure, and one of the
drawbacks is that it can kill healthy
445
00:37:09,440 --> 00:37:10,399
well as the virus.
446
00:37:10,400 --> 00:37:14,220
I don't want to get into an argument
about AZT. What I want is a drug, any
447
00:37:14,240 --> 00:37:17,060
I don't care. A hundred drugs will be
given that will stop AIDS.
448
00:37:18,480 --> 00:37:21,020
One colleague recalls a bucket.
449
00:37:21,420 --> 00:37:25,340
being put in the corners of rooms so
people who are working here and
450
00:37:25,340 --> 00:37:29,680
the community would have a place to
throw up because the impact of being on
451
00:37:29,680 --> 00:37:34,060
medication like AZT in the early years
was really, really, really difficult.
452
00:37:34,580 --> 00:37:37,980
Millions of dollars have been spent on
research, but is there any sign of a
453
00:37:37,980 --> 00:37:40,380
cure? There is no cure currently.
454
00:37:40,600 --> 00:37:44,240
Research teams in the USA have also
released details about new drugs that
455
00:37:44,240 --> 00:37:47,840
stopped the virus making copies of its
face. I feel very lucky and I feel
456
00:37:47,840 --> 00:37:49,860
blessed to still be here.
457
00:37:50,380 --> 00:37:55,960
and to be alive and to have lived long
enough to be able to experience the
458
00:37:55,960 --> 00:37:57,380
advancement in medication.
459
00:37:58,000 --> 00:38:02,900
You know, I have lost a lot of people in
my life.
460
00:38:04,340 --> 00:38:06,400
Yeah, I'm one of the lucky ones.
461
00:38:12,400 --> 00:38:17,040
Nowadays, a person can manage the
condition with as little as one pill a
462
00:38:17,120 --> 00:38:22,330
and that... medication will ensure that
they will reach an undetectable viral
463
00:38:22,330 --> 00:38:28,270
load. So essentially the medication will
reduce the amount of HIV in a person's
464
00:38:28,270 --> 00:38:30,890
system whereby it becomes undetectable.
465
00:38:31,490 --> 00:38:35,310
It's exceptionally important that people
understand what it means to be
466
00:38:35,310 --> 00:38:41,250
undetectable. Studies have shown that if
you are undetectable you cannot pass on
467
00:38:41,250 --> 00:38:44,910
HIV through sex to a sexual partner. It
cannot be done.
468
00:38:45,610 --> 00:38:49,110
Thanks for taking the call. I just
wanted to come back to you on the
469
00:38:49,110 --> 00:38:51,150
the mobile pet and van in 2024.
470
00:38:52,670 --> 00:38:56,830
HIV has changed because the technology
and the medication have changed. And a
471
00:38:56,830 --> 00:39:00,410
person now living with HIV can live a
full and healthy life.
472
00:39:05,750 --> 00:39:10,970
For a large majority of people living
with HIV, we tend to be healthier than
473
00:39:10,970 --> 00:39:13,630
people in the same category who are HIV
negative.
474
00:39:16,150 --> 00:39:19,150
Why? Because we undergo routine checks.
475
00:39:20,350 --> 00:39:23,890
Sometimes for the wrong reason, but we
end up doing it, taking more care of
476
00:39:23,890 --> 00:39:30,270
we eat and how we go on in life. So my
point is that living with HIV, the life
477
00:39:30,270 --> 00:39:34,950
expectancy is exactly the same or more
than a person in the same group, in the
478
00:39:34,950 --> 00:39:35,950
same category.
479
00:39:41,630 --> 00:39:44,750
Younger people that have HIV nowadays,
they didn't.
480
00:39:45,080 --> 00:39:48,260
go through this drama and pain of the
90s and stuff like this, for them it's
481
00:39:48,260 --> 00:39:49,260
different.
482
00:39:50,180 --> 00:39:52,320
And it's a completely different story.
483
00:39:55,040 --> 00:39:58,700
The stories of HIV now are stories of
people living with HIV, not dying with
484
00:39:58,700 --> 00:40:00,180
HIV, so we need to change the narrative.
485
00:40:05,180 --> 00:40:11,120
The only problem is societal, the only
problem is stigma, the only problem is
486
00:40:11,120 --> 00:40:14,280
misinformation, lack of information.
487
00:40:14,810 --> 00:40:16,230
So that's the only problem.
488
00:40:17,690 --> 00:40:21,390
But even removing the virus from
somebody's body will not fix society if
489
00:40:21,390 --> 00:40:22,450
don't focus on education.
490
00:40:25,850 --> 00:40:31,230
My house was egged and I was told to go
back to Dublin, back to where I
491
00:40:31,230 --> 00:40:34,150
belonged, and my children were spat at.
492
00:40:35,790 --> 00:40:42,450
I felt that the only way that I was
going to do this was to face this head
493
00:40:42,450 --> 00:40:47,040
on. and I became involved in education
and awareness.
494
00:40:48,980 --> 00:40:54,380
People started to understand what it was
like living with stigma.
495
00:40:55,660 --> 00:41:02,080
You know, you think about it, it's the
perfect mix of sex shaming, body
496
00:41:02,080 --> 00:41:06,800
transgressiveness, cultural
transgressiveness, criminality, taboo.
497
00:41:07,950 --> 00:41:10,790
There was a lot of silence and stigma.
498
00:41:11,070 --> 00:41:16,650
So, yeah, it wasn't really discussed
until somebody famous, they became
499
00:41:16,650 --> 00:41:17,650
infected.
500
00:41:17,970 --> 00:41:18,970
LAUGHTER
501
00:41:37,920 --> 00:41:41,000
So I've been living with that for the
last four years.
502
00:41:41,240 --> 00:41:44,840
So this is the big mystery of the
mysterious illness that has been written
503
00:41:44,840 --> 00:41:45,840
about.
504
00:41:48,540 --> 00:41:52,980
There were activists at the time, like
Tom Ginty, the Dice Man, who people will
505
00:41:52,980 --> 00:41:55,460
remember as a street artist in Dublin.
506
00:41:55,680 --> 00:42:00,040
And this was somebody who was living
with HIV, who used the platform that
507
00:42:00,040 --> 00:42:02,320
had to draw attention to the injustice.
508
00:42:02,840 --> 00:42:07,640
that existed around HIV and AIDS at the
time, whether it was lack of action,
509
00:42:07,760 --> 00:42:11,700
lack of political will to put forward on
treatment, to put forward on research,
510
00:42:12,040 --> 00:42:15,580
or to support the community of people
living with HIV and AIDS.
511
00:43:04,110 --> 00:43:10,710
It's quite extraordinary how the
government of the day dragged its feet
512
00:43:10,710 --> 00:43:12,510
intervening in this horror.
513
00:43:15,190 --> 00:43:21,030
When I look at specific examples of how
the government of the day let us down, I
514
00:43:21,030 --> 00:43:26,630
have to temper my anger at how the
government failed us.
515
00:43:28,050 --> 00:43:31,650
The government failed us by, first of
all, censoring access to information.
516
00:43:32,430 --> 00:43:35,030
being slow on funding and access to
information.
517
00:43:35,430 --> 00:43:39,210
But the disease has been in this country
for four years, and yet nothing's been
518
00:43:39,210 --> 00:43:41,350
done. The HEB haven't yet produced a
leaflet.
519
00:43:41,550 --> 00:43:45,690
Well, the HEB haven't produced a leaflet
on AIDS because it's very difficult to
520
00:43:45,690 --> 00:43:48,050
know exactly what kind of a leaflet you
can produce.
521
00:43:48,370 --> 00:43:51,310
As far as I know from the people at Gay
Health Action, there's only been about
522
00:43:51,310 --> 00:43:56,670
£700 allocated to help out with this
pamphlet, and that pretty grudgingly.
523
00:43:57,090 --> 00:43:59,090
So, you know, that's not going to do it.
524
00:43:59,400 --> 00:44:03,200
For people with AIDS and their families,
Cordia provides support and friendship.
525
00:44:03,600 --> 00:44:08,080
Cordia has received no state funding to
date. It's run on money raised through
526
00:44:08,080 --> 00:44:09,640
collections and private donations.
527
00:44:10,140 --> 00:44:13,880
Gay behaviour is still criminal. What is
to be done? Does it not require a great
528
00:44:13,880 --> 00:44:15,520
societal change in attitude?
529
00:44:15,820 --> 00:44:17,660
Like, I am a criminal in this society.
530
00:44:18,180 --> 00:44:22,660
Slow in addressing the decriminalisation
of condoms.
531
00:44:23,310 --> 00:44:26,690
The action was brought against the Irish
Family Planning Association for selling
532
00:44:26,690 --> 00:44:29,610
a condom at the Virgin Mega store on
January the 10th last.
533
00:44:29,890 --> 00:44:34,270
To actually discourage the use of
condoms is possibly going as far as
534
00:44:34,270 --> 00:44:35,270
some people to death.
535
00:44:35,430 --> 00:44:40,010
At least 50 % of pharmacists will not
stop them and many young people are not
536
00:44:40,010 --> 00:44:41,490
clear on how to use them safely.
537
00:44:41,710 --> 00:44:44,510
The best antidote to AIDS is virtue.
538
00:44:44,930 --> 00:44:51,690
We were clobbered with AIDS in 1981 and
condoms were
539
00:44:51,690 --> 00:44:54,760
only... Fully made legal a decade later.
540
00:44:57,940 --> 00:44:58,940
Excuse me?
541
00:45:02,180 --> 00:45:04,120
That is the dreaded object.
542
00:45:04,340 --> 00:45:06,180
There it is. That's what it looks like.
Out of the thing.
543
00:45:06,740 --> 00:45:10,920
People falling in a swoon all over
Ireland at this moment, looking at that.
544
00:45:11,240 --> 00:45:15,480
Okay. If you'll pardon the expression,
Roisin, would you roll it there, please?
545
00:45:18,120 --> 00:45:22,400
In 1988, we did a very complete survey
of all our members with HIV and we asked
546
00:45:22,400 --> 00:45:24,020
them what their needs were. Their needs
were apparent.
547
00:45:24,900 --> 00:45:29,140
So we sent in a submission to
government, which was ignored for
548
00:45:29,400 --> 00:45:32,680
So we had to go the media and political
route to try and raise awareness of
549
00:45:32,680 --> 00:45:37,000
this. And that subsequently led to a
debate in the Dáil after a private
550
00:45:37,000 --> 00:45:38,260
bill and the government were defeated.
551
00:45:38,500 --> 00:45:42,040
And that led to an establishment of a
trust fund. So we learned a lesson
552
00:45:42,460 --> 00:45:45,960
You're not going to get what you want
quietly and just by sending in a
553
00:45:45,960 --> 00:45:50,120
reasonable case. And if you don't put on
pressure, you just fall into a long
554
00:45:50,120 --> 00:45:52,160
list of other issues that they're trying
not to deal with.
555
00:45:55,240 --> 00:45:58,320
There was a lot of barbarism, there was
a lot of cruelty, there was a lot of
556
00:45:58,320 --> 00:45:59,320
exclusion.
557
00:46:01,080 --> 00:46:06,160
But there were also extraordinary
gestures of compassion and generosity.
558
00:46:07,540 --> 00:46:10,680
There was bravery, there was
resourcefulness.
559
00:46:12,040 --> 00:46:15,800
AIDS is a lonely illness, whether you
have the full -blown version or you've
560
00:46:15,800 --> 00:46:17,500
been diagnosed HIV positive.
561
00:46:18,120 --> 00:46:22,880
Those who've contacted the virus speak
of isolation and discrimination, and
562
00:46:22,880 --> 00:46:25,780
find it difficult to share their
suffering with family and friends.
563
00:46:26,720 --> 00:46:30,140
Cordia provides support and friendship
for these people by means of a
564
00:46:30,140 --> 00:46:34,440
befriending system based on volunteers
and those who wish to be befriended.
565
00:46:36,920 --> 00:46:41,180
A welter of voluntary organisations have
sprung up to give comfort and
566
00:46:41,180 --> 00:46:43,260
counselling to AIDS sufferers. The
567
00:46:43,260 --> 00:46:50,200
criminalisation of
568
00:46:50,200 --> 00:46:54,900
same -sex relationships and a ban on the
sale of condoms in Ireland paralysed
569
00:46:54,900 --> 00:46:56,440
any meaningful response from the state.
570
00:46:56,920 --> 00:47:01,460
Community groups, activists and
healthcare workers stepped in to provide
571
00:47:01,460 --> 00:47:02,460
information and care.
572
00:47:05,610 --> 00:47:11,270
And so we're here today on a chilly
December afternoon, experiencing the
573
00:47:11,270 --> 00:47:13,410
people's gardens in its winter shades.
574
00:47:14,270 --> 00:47:20,390
But as the seasons unfold, Embrace Loop
will be visited on warmer days, and it's
575
00:47:20,390 --> 00:47:25,130
my belief that this monument will become
an inclusive space for people to
576
00:47:25,130 --> 00:47:27,830
gather, to reflect, and to remember.
577
00:47:43,210 --> 00:47:48,250
nearly 4 ,000 new HIV infections are
transmitted every day. That's yesterday,
578
00:47:48,450 --> 00:47:51,290
today, tomorrow, globally every day.
579
00:47:51,590 --> 00:47:55,930
Just over 2 .5 new cases diagnosed now
every day in Ireland.
580
00:47:57,110 --> 00:47:58,270
It's too many.
581
00:48:12,810 --> 00:48:19,070
Let's concentrate on the future and what
we can do to make sure that
582
00:48:19,070 --> 00:48:22,750
nothing like that ever happens again.
583
00:48:47,880 --> 00:48:53,160
Right throughout the unveiling ceremony,
it felt like finally we've arrived at
584
00:48:53,160 --> 00:48:58,580
the point where Irish society is
allowing us to grieve. Irish society is
585
00:48:58,580 --> 00:49:05,580
allowing us to anchor some of the
sadness and the anger and the grief that
586
00:49:05,580 --> 00:49:08,600
we've carried with us over the years and
make some sense of it.
52101
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