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Since I sometimes wear my Cl and sometimes not
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there are some sounds that I recognize with the Cl.
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For example, the dishwasher is a familiar sound for me.
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But there are also situations where I don't know what kind of sound something is.
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And for hearing people it is of course clear what it is.
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So sometimes I just ask and check, what exactly is this sound?
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Because I can't immediately recognise or perceive it, what kind of sound it is.
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But when I'm not wearing my CI,
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I feel sound more,
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or perceive it more visually.
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I would say before the whole project, I would have said
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sound only comes to me through hearing with the Cls.
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I think now I perceive sound also through vibration.
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Yes, but I personally think I perceive most sounds through hearing,
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but also with sight, that is, with the field of vision.
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So, if you see now from a distance a bird, for example,
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yes, and you see that it flutters, then you know,
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or a tree, then you know that there's sound there.
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So, a prosthesis that...
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even if it's used voluntarily, and without coercion,
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it always has a psychological factor
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that needs to be considered somehow,
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because some people want to have this prosthesis, some don't,
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some want to perceive sound or not,
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and there are people who just don't want it,
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and people who do.
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And the people who don't want that
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have chosen the silent way for themselves,
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and that's fine too.
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It's just important
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that the person feels comfortable with it,
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and wants to accept and embrace it.
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For me sound is what reaches me,
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it can be very different.
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So, of course, I have hearing aids,
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so sound comes in, and then it builds up something inside,
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but it can also be that sound comes through the body.
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I remember very clearly, on a ship,
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these that have a diesel engine
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always on top of the stern,
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the ship wobbled all the time,
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it was a large ship sailing across the North Sea, from Denmark to England,
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and then in the evening - the sun on the deck of the ship,
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and then the whole ship vibrates so lightly,
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and it makes you so cozy, so sleepy, like when you're a baby,
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and you fall asleep, and then it vibrates so lightly.
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That's a sound for me, too.
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Yes
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so I can feel sound
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through the vibration on the skin, through the body,
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and I have the feeling that I
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can perceive very subtle and nuanced things
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I can perceive quiet or loud sounds,
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but I don't hear them at all,
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instead I perceive it through the sound itself,
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through the vibration
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and that is like hearing.
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I wonder if hearing and hard of hearing people also have this body experience.
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Sound for me can be
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many different things.
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So visual sound,
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for example,
when I see crops in a field
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and their stems swing in the wind.
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or...
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Music as sound.
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So I notice
that I recognize faster
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people that I meet by chance on the street,
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while those around me don't notice it as quickly,
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or I recognize also other things faster.
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And you can't stop that.
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So that's exactly the same as with sound, I would say.
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Also with sound
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You can't choose what you are hearing now.
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In fact, the sound of tinnitus is something that is often difficult to grasp.
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I think the metaphor of the fog fits really well.
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It is as if this sound slowly and steadily settles over your surroundings
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and veils it.
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Can a subjective sound like tinnitus also be considered a sound?
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I mean, in a way, it's like an orchestra in your head.
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These different tones, playing at different pitches and volumes,
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depending on how you're feeling that day.
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Sometimes it can feel like you're juggling between 10 and 12 different tinnitus tones -
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that is really an amazing performance.
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There is the silent world and the hearing world,
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which are separated from each other
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and unfortunately hearing people live only in one world.
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What is very important for a deaf person:
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to have a sense of self-worth,
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and then see and decide whether it feels like a right thing,
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to adapt or not.
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Because of course it is always
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a lot of effort
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and it really depends on it, whether it can work well
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this adaptation.
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An important topic for me is misunderstanding.
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Misunderstanding in combination with hearing, in the sense that you don't really understand the person across from you
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and perhaps that person does not understand you properly either.
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and therefore there are often misunderstandings with hearing people,
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that no one can sort out.
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And then people leave frustrated and unhappy with one another
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and each thinks to themselves,
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how unsympathetic,
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the other person doesn't respect me.
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At first
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one think of prostheses as something that
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has indeed quite a positive connotation.
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So one thinks,
"Oh, it's great that this exists.
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so someone who has lost a leg,
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one can just...
put another leg back on,
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and can walk again, like anybody else."
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But there is much more to it than that.
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One must not forget
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that health insurance companies,
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hospitals, doctors,
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are all part of an economic structure.
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And in the case of the economy, what goes into it?
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Power
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and profit.
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So at the core of the economy
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is of course always the profit.
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How much can learn from something?
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So for example
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we develop a hearing prosthesis, a Cl.
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Then, of course, one also has
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to compare the costs with the profit.
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If the Cl costs too much
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in development and in production
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and the health insurance companies say
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we won't pay that much for it,
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then, obviously, they will look for a way
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to make the production cheaper,
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so that the profit is greater in the end.
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My thought process on this is:
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are the prostheses as they exist today,
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really that optimal?
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Or is it perhaps
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a compromise between the cost,
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the profit
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and the idea?
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Is it too expensive?
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Is that why a prosthesis won't be made?
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There's someone who decides about it,
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who has the power over it,
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who has control over it.
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and says:
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"You as a d/Deaf or hard of hearing person can do this and that with it.
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But that's enough.
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You don't need anything else".
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It started in space.
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The first cyborg
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was an animal, actually.
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In the 1960s, when the space race began,
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two scientists were studying how the human body works in space,
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and how its self-regulatory processes could be modified and enhanced through technology.
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They referred to an experiment
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in which an osmotic pump was inserted into a laboratory rat.
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The goal of the experiment was to to introduce drugs into the intestines of farmed animals.
158
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But instead, the idea of a 'cybernetic organism', a cyborg, evolved from it.
159
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Later, the idea of a cyborg branched out and developed into many other themes.
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The figure of the cyborg plays an important role in feminist theories,
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which understand a prosthesis not only as an aiding tool,
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but above all as a machine that has a connection with a living body,
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with our psychological, physiological, and emotional relationships,
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with ourselves and with others.
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I personally live partly in the deaf world, in the hard of hearing world and in the hearing world.
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And I find that incredibly difficult.
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We always have to adapt,
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because with a prosthesis you can't hear everything, you have to put it back together somehow
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and of course that does a lot to you.
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You are somehow...
somehow you never really belong.
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I then think about the idea of a future prosthesis,
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that would allow people
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to put themselves into other roles with their own bodies.
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It would be very interesting, not only for us as deaf people,
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but also for the hearing world, to get to know the deaf world.
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Both sides could learn from each other,
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That could perhaps lead to a better understanding between the worlds.
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Does one even need a prosthesis?
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Does one want it at all?
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I for myself can say:
I need it, but I don't want it.
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The prosthesis is my connection with the hearing world.
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But the hearing world
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has no connection to me.
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Well,
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if I were to imagine right now I had a prosthesis
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to have the perception of a hearing person,
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I would imagine that my deafhood,
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my deaf identity would be gone,
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and I don't want that.
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But on the other hand,
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I also want to create the bridge
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from the hearing world to the Deaf world,
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to give the hearing people an insight into my world.
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Excerpts from the forthcoming album "Annihilating Despair" by
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Funded by the Ministry of Culture and Science of the State of North Rhine-Westphalia as a media art fell
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Funded by the Ministry of Culture and Science of the State of North Rhine-Westphalia as a media art fel
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Funded by the Ministry of Culture and Science of the State of North Rhine-Westphalia as a media art fellow
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