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hello hello hello hello hello this is
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Matthew and Michael Clarke they're 42
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and 39 years old for the past four
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decades the two brothers live perfectly
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normal lives Dewar normal school kids
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you know Michael joined the RAF it's
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just been a normal growing up period
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really Matthew was the same
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he's worked every day of his life
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Matthew Rita job after job after job but
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you got married yet Lydia just perfectly
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normal until they reached their thirties
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now the two men are like toddlers and
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unable to look after themselves it's
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upsetting knowing that my dad is
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physically zelans or baby again in a
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cruel twist of fate the two brothers are
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in the clutches of a condition that's
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regressing their brains and their bodies
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back to a childlike state call it almost
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bars and keys prison from the devil
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I used to wish my sons were small again
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so I could have them back I got my wish
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this is the story of an extraordinary
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illness and how the Clark family cope
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with Matthew and Michael's journey from
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manhood back to childhood
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the clerk's live in a one-bedroom
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council flat in Lincoln they're one of
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the most unusual families in Britain
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hello I work alone hey this is a nun the
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little one
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and he says beat one the family are
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together 24 hours a day
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Christine and Tony now have to do
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everything for their son's day by day
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Michael and Matthew are getting less and
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less able to do things for themselves
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how was she very far right since
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returning from their retirement in Spain
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this tiny flat has been home to Tony
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Christine and their sons
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this is the boys bedroom room for the
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two bass Chester drawers they spend a
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lot of time in here watching DVDs so one
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of us has to be living all the time yes
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that's why Chris is in here she's not
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just having a day off or anything one of
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us is here all the time so so this is
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the living room she's where we where we
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eat she where we of CV it's where we
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socialize and this is where we're
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sleeping Christina and I Christina
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sleeps on this sofa actually pon this
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sofa it's been like this for 27 weeks
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now and we're just nowhere else to go
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stop
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no more accidents on these stairs family
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life this time round is very different
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Tony and Christine are having to relearn
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their parental skills they're not
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children you've got to treat them as
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adults with a problem
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Matthew he is not childlike he's in a
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lot of ways but to him me not
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Michael is very childlike but he he
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knows he's a man he knows he's lived all
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his life he's got memories
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we do things as a family again we have
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to do what the boys want to do and they
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enjoy such simple things but works both
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ways really I mean we don't get to do
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what we would like to do I would love to
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just go go out for a meal or whatever
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and just don't and be able to just stick
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tonyia like we used to but it's not
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possible now certainly it's not well
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there's a tendency to spill things and
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lock things you know make a mess we're
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all the time taking care of them we need
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to get out and it's a good thing to go
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this certainly is a big learning curve
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and I think some of the professionals
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are actually learning from us because
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they've never had to deal with this
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illness before either
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it's so rare and even even the doctors
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are saying well we didn't know that and
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we didn't know this and making notes and
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so maybe they're learning hopefully
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they're learning something from us as
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well
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as word began to spread about the
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mysterious condition of the Clark
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brothers the press compared them to the
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fictional Benjamin Button character who
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was born old and grew into a baby their
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stories about Benjamin Button really
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make me angry because my children are
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not they're not actually children
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they're the men are the men losing their
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abilities to do things they they're not
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going to get smaller and younger I'm not
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going to be able to pick them up and
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cuddle them as children that's fantasy
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this is not this is real and they're
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suffering whatever is happening in the
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boys brains is impacting on every aspect
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of their behavior Matthew now wakes up
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crying inconsolably nearly every day
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Tony's diary over the last few months
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charts how hard things have become to to
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the 42 awake three times in the night
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three o'clock Ewok it was to awake at
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5:30
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Sunday the 19th I walk every table
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distressed uncle death on the whole time
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it's like Oh last he doesn't know no
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it's just no walks trail at all Monday
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the 20th slept on four o'clock restless
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tossing and turning in his sleep
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irritable not good at all went out for a
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walk ahead a thirty just it's been an
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incredibly difficult few months but life
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is about to change for the better for
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the Clark family me wear a hat on way
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today they're moving house back to their
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hometown in Hull to a larger specially
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adapted property came back to the
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bedroom we were born in halls and that's
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the best place for all city
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for Tony and Christine the move to Hull
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symbolizes a fresh start and an
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opportunity to build a new life
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it's a big improvement where we coming
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from this is tiny well rhythm flat and
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now we'll all have a bedroom I can't
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wait 12 actually have a bed
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best night in bed sub-sigma Jesus
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Michael's rule like coming oh my god
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you're inviting come in i go in i put
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the nest back Michael and Matthew were
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brought up and went to school here so
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the move to Hull means the clerk's will
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have family and friends nearby more
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importantly for Matthew his daughter
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Lydia lives just a mile away
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Lydia my daughter she's 1819 pregnant -
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our little song then it's gonna be
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what's her name mom what he's going to
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be called Zakaria James Matthew Greene
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yes oh you're good to be a gun
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yeah and it got my name how do you feel
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about life oh it's amazing in it
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cousin Disick did under lunge speak he's
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faking I don't know what his plays
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played in his playing would bring in
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their intrusion frame rugby that's his
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home yeah never seriously they've said
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that there's a one in hundred files and
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chance that my baby could get it but I
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don't think I can have anything tested
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until he's born so when he is born I'll
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get been tested for obviously any sounds
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of it
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told you that when when you were in
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would William phone to ring
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m6 tomorrow so it's just way and we're
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in support good good good sir please
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round when you need a Bible and I'm
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Matthew
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Keith glad Michael and Matthew Clarke's
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lives are slowly unraveling bit by bit
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their bodies and their minds are
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unlearning everything they've ever known
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forty-two years ago when Michael was
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born there was no indication that
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anything was wrong it was magical it was
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you first baby absolutely wonderful when
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I think about it I can actually get the
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feeling back that I had when he was born
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and taking him home from the hospital
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and and everything it was absolutely
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wonderful he's something special
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three years later Matthew was born again
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everything seemed fine and as the
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brothers grew up they were great friends
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as far as was knew of them as healthy
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lads isn't we couldn't see any so
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outside of where there was anything
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wrong it's just everything was normal
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both boys started out in their careers
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Matthew working in semi skilled jobs and
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Michael serving in the RAF for 18 months
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both men married and divorced Matthew
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had a daughter Lydia who was six years
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old when her parents split up when imam
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imam first split up he got free jobs so
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that it could see me and afford to look
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after me he had me every Wednesday and
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every weekend
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it took me out go for dinner just made
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her a lifer it was proper dad proper how
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a dad should be but life for the Clark
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family was about to change radically
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tony had taken early retirement and five
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years ago he and christine moved to live
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permanently in spain it was my idea in
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the first place but going on and
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thinking that the boys would come
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for holidays once or twice a year and
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we'd come back and see them hmm it just
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didn't happen but while Tony and
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Christine were building a new life in
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Spain back home there were signs that
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something strange was happening to their
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sons it was about four years ago
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mom's funeral and started to notice a
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change in them and girls said in the
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back of the funeral car there wasn't
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talking like normal you know there was
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like a shadow his gibberish he was a
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little bit gibberish but the understood
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each other he said in the stead it was
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just really weird to see him like that
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used to ring the boys every every week
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at least twice a week and text them and
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send them photos on your phone and all
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this saw stuff and then it all stopped
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and I thought well there's something
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wrong now just why can't we get through
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and then it was a constant worry over
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what we thought they'd taking the hoof I
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was moving out to Spain so it finally
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got to the Melissa all em get on with it
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we know we're here in dreary old England
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let mom and dad get on with in Spain by
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the time Tony and Christine lost contact
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Matthew and Michael were living together
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in Matthews one-bedroom council flat in
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Lincoln Kevin Pound all lived below them
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I went upstairs to see delights the
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writers opened the door they were
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panicking there was water dripping down
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the side of a tree I was still on his
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walk dripping down the side of that and
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he was just totally unbelievable I could
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not believe what I was seeing
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it was absolutely what it's hard to
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describe I mean if you've seen grant
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fighters on tell you then you've seen it
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a phone call came through to the office
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to say that some workmen were working in
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Matt's bathroom and they'd been an
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instant and they weren't happy to work
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when I got there I was told that Matt
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had actually and defecated in the
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communal hallway
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the workmen wouldn't work in that
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environment and Matt when I got there
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was crying it was really really upset
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and he'd obviously needed to use the
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toilet they were working in the bathroom
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and for whatever reason he'd felt that
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he couldn't actually tell them that you
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need toilet and obviously decided that
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the only thing he could do was was go
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where he could go I'm shot a mafia well
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are you he's in the kitchen so I've gone
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into the kitchen and he's down there on
271
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his hands and knees and always scraping
272
00:16:49,190 --> 00:16:54,870
cheese slices off the floor and
273
00:16:52,278 --> 00:16:57,360
scribbling when he's mouth and he just
274
00:16:54,870 --> 00:16:58,620
looked up at me and you know they
275
00:16:57,360 --> 00:17:03,419
obviously thought what he was doing was
276
00:16:58,620 --> 00:17:05,689
normal to me at that point there's a
277
00:17:03,419 --> 00:17:08,609
nail on the summit definite right life
278
00:17:05,689 --> 00:17:12,360
he reminded me of somebody
279
00:17:08,609 --> 00:17:13,919
that would be mentally ill to be honest
280
00:17:12,359 --> 00:17:15,448
he was it presented in the same sort of
281
00:17:13,920 --> 00:17:16,920
way assembly there I'd been dealing with
282
00:17:15,449 --> 00:17:19,980
that was that was suffering mental
283
00:17:16,920 --> 00:17:22,829
illness Michael and Matthew's behavior
284
00:17:19,980 --> 00:17:24,990
was becoming more and more abnormal but
285
00:17:22,828 --> 00:17:26,789
no one really knew what to make of it or
286
00:17:24,990 --> 00:17:30,720
what was causing them to behave in this
287
00:17:26,789 --> 00:17:34,558
way he got to a point where Matthew as
288
00:17:30,720 --> 00:17:39,480
Matthew was getting worse and coming on
289
00:17:34,558 --> 00:17:41,069
worse Michael I think Michaels obviously
290
00:17:39,480 --> 00:17:42,808
not quite as bad as Matthew believe me I
291
00:17:41,069 --> 00:17:45,480
think my a lot of Michael's problem was
292
00:17:42,808 --> 00:17:47,190
he was embarrassed by all and he didn't
293
00:17:45,480 --> 00:17:49,558
want to necessarily bother as did he
294
00:17:47,190 --> 00:17:52,410
as such he uh try and sort things out of
295
00:17:49,558 --> 00:17:53,940
Matthew on his own and they got arguing
296
00:17:52,410 --> 00:17:56,730
and arguing and arguing that bad that
297
00:17:53,940 --> 00:17:58,410
mother Matthew came down one day and he
298
00:17:56,730 --> 00:18:00,589
just says what Michael out I want him
299
00:17:58,410 --> 00:18:00,590
gone
300
00:18:07,339 --> 00:18:15,119
when Matthew was born Michael was nearly
301
00:18:11,609 --> 00:18:17,939
three and Tony brought him to the
302
00:18:15,119 --> 00:18:22,439
hospital and we took him into the baby
303
00:18:17,940 --> 00:18:25,559
ward and said to him right
304
00:18:22,440 --> 00:18:30,360
pick a baby one of these you can have
305
00:18:25,559 --> 00:18:37,079
what about this one and he said yes that
306
00:18:30,359 --> 00:18:39,679
one my baby brother my little brother's
307
00:18:37,079 --> 00:18:39,679
stuck
308
00:18:41,378 --> 00:18:47,298
the brothers illness had destroyed the
309
00:18:44,148 --> 00:18:49,248
closeness they had once had Michael was
310
00:18:47,298 --> 00:18:51,168
living rough on the streets and on a
311
00:18:49,249 --> 00:18:53,769
freezing winters night he ended up in
312
00:18:51,169 --> 00:18:56,659
one of Lincoln's homeless shelters
313
00:18:53,769 --> 00:18:58,839
mental health worker Brenda Fitzpatrick
314
00:18:56,659 --> 00:19:01,789
just happened to be on duty that night
315
00:18:58,839 --> 00:19:03,709
her chance meeting with Michael would
316
00:19:01,788 --> 00:19:06,798
prove to be the key moment in the Clarke
317
00:19:03,710 --> 00:19:08,419
brothers story as soon as I met him was
318
00:19:06,798 --> 00:19:10,249
started getting a bit of his history
319
00:19:08,419 --> 00:19:12,889
there was sorts of things that weren't
320
00:19:10,249 --> 00:19:14,868
making any any sense to me I couldn't
321
00:19:12,888 --> 00:19:17,418
really understand what what was going on
322
00:19:14,868 --> 00:19:20,238
for this for this gentleman he just
323
00:19:17,419 --> 00:19:22,549
seemed to be very confused almost like
324
00:19:20,239 --> 00:19:24,619
he had some sort of learning issue and I
325
00:19:22,548 --> 00:19:26,898
just felt that I was really concerned if
326
00:19:24,618 --> 00:19:28,519
we left the night shelter he could
327
00:19:26,898 --> 00:19:31,099
disappear and we'd never see him again
328
00:19:28,519 --> 00:19:33,950
because I've got the shelter is a one
329
00:19:31,099 --> 00:19:37,368
night stopover only so Brenda had to act
330
00:19:33,950 --> 00:19:39,730
fast yeah okay when's when's one gonna
331
00:19:37,368 --> 00:19:39,730
be free
332
00:19:41,630 --> 00:19:47,419
Brenda found an emergency placement 40
333
00:19:44,630 --> 00:19:52,789
miles away in a Salvation Army hostel in
334
00:19:47,419 --> 00:19:56,150
skegness Michael was quite loud he
335
00:19:52,788 --> 00:19:58,329
enjoyed playing pool and he had his toy
336
00:19:56,150 --> 00:20:01,038
soldiers that used to paint in his room
337
00:19:58,329 --> 00:20:05,839
enjoyed in all activities of the center
338
00:20:01,038 --> 00:20:08,000
he quizzes pool competitions whatever
339
00:20:05,839 --> 00:20:10,519
was going on Mike was fully involved in
340
00:20:08,000 --> 00:20:12,640
he was also very very intelligent and
341
00:20:10,519 --> 00:20:15,740
that came across from day one even
342
00:20:12,640 --> 00:20:18,020
though Michael was intelligent the staff
343
00:20:15,740 --> 00:20:20,929
were becoming more and more concerned by
344
00:20:18,019 --> 00:20:22,849
his behavior there was a couple of major
345
00:20:20,929 --> 00:20:26,179
incidents that we had with Michael that
346
00:20:22,849 --> 00:20:28,668
were very concerning one was the fact
347
00:20:26,179 --> 00:20:30,530
that he was eating found eating a raw
348
00:20:28,669 --> 00:20:32,270
chicken one of the project workers were
349
00:20:30,529 --> 00:20:35,839
out to check on him he was actually
350
00:20:32,269 --> 00:20:38,240
eating raw chicken we tried to explain
351
00:20:35,839 --> 00:20:40,339
to him that you need to cook chicken but
352
00:20:38,240 --> 00:20:41,960
he'd lost that ability to understand
353
00:20:40,339 --> 00:20:45,379
that you couldn't just take something
354
00:20:41,960 --> 00:20:47,808
from the fridge then another more
355
00:20:45,380 --> 00:20:49,370
upsetting incident was when he'd been in
356
00:20:47,808 --> 00:20:50,928
the shower on room checks and then a
357
00:20:49,369 --> 00:20:52,219
couple of hours later when one of the
358
00:20:50,929 --> 00:20:55,250
project workers went out to check with
359
00:20:52,220 --> 00:20:59,240
me eaten and had his shower he was found
360
00:20:55,250 --> 00:21:01,308
in the shower and he'd actually he
361
00:20:59,240 --> 00:21:03,529
didn't understand that how to get out of
362
00:21:01,308 --> 00:21:05,000
the shower that was it he'd been in
363
00:21:03,529 --> 00:21:07,609
there a couple of hours we believe
364
00:21:05,000 --> 00:21:09,919
because the floor was flooded and he was
365
00:21:07,609 --> 00:21:15,109
actually curled up in fetal position in
366
00:21:09,919 --> 00:21:16,600
the shower base when we heat the project
367
00:21:15,109 --> 00:21:19,939
worker then had to try and help him out
368
00:21:16,599 --> 00:21:22,939
they seemed quite frightened and hadn't
369
00:21:19,940 --> 00:21:25,519
understood why he wasn't able to get out
370
00:21:22,940 --> 00:21:29,090
of the shower we never got a real
371
00:21:25,519 --> 00:21:29,629
explanation from him other than he'd got
372
00:21:29,089 --> 00:21:33,399
scared
373
00:21:29,630 --> 00:21:33,400
and couldn't get out of the shower
374
00:21:35,710 --> 00:21:39,798
by now mystery surrounded Matthew and
375
00:21:39,138 --> 00:21:42,138
Michael
376
00:21:39,798 --> 00:21:44,929
they had become alienated from each
377
00:21:42,138 --> 00:21:47,148
other they were hugely vulnerable and
378
00:21:44,929 --> 00:21:52,009
they were isolated from friends and
379
00:21:47,148 --> 00:21:53,808
family Matt told me that he wasn't in
380
00:21:52,009 --> 00:21:55,909
touch with his parents and that they
381
00:21:53,808 --> 00:21:57,019
lived away and he couldn't get in touch
382
00:21:55,909 --> 00:22:02,809
with them that he didn't know where they
383
00:21:57,019 --> 00:22:04,269
were and his reason for being if you
384
00:22:02,808 --> 00:22:08,418
like was his daughter
385
00:22:04,269 --> 00:22:11,239
it was weird the way it just changed
386
00:22:08,419 --> 00:22:13,940
from him being in touch every day to him
387
00:22:11,239 --> 00:22:17,239
slowly hearing less and less and less of
388
00:22:13,940 --> 00:22:21,528
him and then I wrote to him and then
389
00:22:17,239 --> 00:22:23,899
didn't get a reply he would show me
390
00:22:21,528 --> 00:22:25,940
Lydia's letters but they weren't current
391
00:22:23,898 --> 00:22:27,918
letters they were old so the address on
392
00:22:25,940 --> 00:22:31,099
them apparently was was no good he
393
00:22:27,919 --> 00:22:32,269
didn't know how to go back contacting
394
00:22:31,098 --> 00:22:34,939
her didn't know where to start looking
395
00:22:32,269 --> 00:22:37,579
for her I had no way of actually getting
396
00:22:34,940 --> 00:22:38,359
hold of Lydia I don't know if I had done
397
00:22:37,579 --> 00:22:41,088
something wrong
398
00:22:38,358 --> 00:22:44,118
topsail you know if there's something
399
00:22:41,088 --> 00:22:45,918
had happened to him and even know if he
400
00:22:44,118 --> 00:22:47,738
was still alive at one point I'd not
401
00:22:45,919 --> 00:22:50,859
heard from him for that long
402
00:22:47,739 --> 00:22:56,058
his desire to speak to her was
403
00:22:50,858 --> 00:22:59,898
overwhelming it was it was touching it
404
00:22:56,058 --> 00:23:02,239
was upsetting because you could say that
405
00:22:59,898 --> 00:23:05,898
he wanted nothing more but couldn't go
406
00:23:02,239 --> 00:23:07,460
about it none of the professionals
407
00:23:05,898 --> 00:23:09,618
working with Michael and Matthew
408
00:23:07,460 --> 00:23:10,249
initially realized the two men were
409
00:23:09,618 --> 00:23:12,888
brothers
410
00:23:10,249 --> 00:23:15,848
when Brenda found out they were related
411
00:23:12,888 --> 00:23:18,939
she referred them for medical assessment
412
00:23:15,848 --> 00:23:21,858
Michael was chosen to have a brain scan
413
00:23:18,940 --> 00:23:24,769
would this solve the mystery of what was
414
00:23:21,858 --> 00:23:27,798
happening to the Clarke brothers so just
415
00:23:24,769 --> 00:23:29,868
to show you my falls brain scan how
416
00:23:27,798 --> 00:23:32,358
abnormal it was I'll first show you our
417
00:23:29,868 --> 00:23:33,918
normal emetic business imaging or MRI
418
00:23:32,358 --> 00:23:35,598
brain scan looks like so this is a
419
00:23:33,919 --> 00:23:37,429
normal healthy individual that's
420
00:23:35,598 --> 00:23:37,889
providing us to left and scanning from
421
00:23:37,429 --> 00:23:40,679
there
422
00:23:37,890 --> 00:23:43,620
head of the head coming down when
423
00:23:40,679 --> 00:23:45,960
compared to a normal healthy scan dr.
424
00:23:43,619 --> 00:23:50,639
sake could see immediately the decay in
425
00:23:45,960 --> 00:23:55,470
Michaels brain you can clearly see this
426
00:23:50,640 --> 00:23:58,620
very high local high signal or very
427
00:23:55,470 --> 00:24:00,029
white part of the scan which is clearly
428
00:23:58,619 --> 00:24:03,509
abnormal compared to the previous scan
429
00:24:00,029 --> 00:24:04,558
and it's affecting all parts of the what
430
00:24:03,509 --> 00:24:08,298
we call the white matter or the
431
00:24:04,558 --> 00:24:11,099
connections the wiring within the brain
432
00:24:08,298 --> 00:24:14,339
the mystery of the Clark brothers was on
433
00:24:11,099 --> 00:24:17,579
the way to being solved both Matthew and
434
00:24:14,339 --> 00:24:19,678
Michael have leukodystrophy an extremely
435
00:24:17,579 --> 00:24:22,439
rare disease that attacks the protective
436
00:24:19,679 --> 00:24:25,740
myelin sheath and short circuits the
437
00:24:22,440 --> 00:24:28,558
nervous system the brothers have an
438
00:24:25,740 --> 00:24:33,179
unknown strain of the disease there is
439
00:24:28,558 --> 00:24:34,980
no known cure after the diagnosis Brenda
440
00:24:33,179 --> 00:24:37,259
and her team track down Tony and
441
00:24:34,980 --> 00:24:40,849
Christine in Spain to tell them what was
442
00:24:37,259 --> 00:24:42,990
happening to their sons yeah it's just
443
00:24:40,849 --> 00:24:44,459
it's just something that's gonna play on
444
00:24:42,990 --> 00:24:45,839
our minds forever more that we didn't
445
00:24:44,460 --> 00:24:47,730
come over Ali another word could have
446
00:24:45,839 --> 00:24:50,279
done anything other things would have
447
00:24:47,730 --> 00:24:51,808
been any different now but at least
448
00:24:50,279 --> 00:24:55,798
would have been would have been here a
449
00:24:51,808 --> 00:24:58,519
bit earlier and maybe helps out a bit
450
00:24:55,798 --> 00:24:58,519
more I don't know
451
00:24:59,618 --> 00:25:08,358
know what you do we knew leukodystrophy
452
00:25:06,200 --> 00:25:11,119
had brought Michael and Matthews parents
453
00:25:08,358 --> 00:25:13,398
home to look after them the Clark family
454
00:25:11,118 --> 00:25:29,898
were now facing an uncertain future
455
00:25:13,398 --> 00:25:42,108
together anything to do nobody is it
456
00:25:29,898 --> 00:25:44,238
what he's doing it after all it was
457
00:25:42,108 --> 00:25:46,398
yesterday
458
00:25:44,239 --> 00:25:47,929
the Clark family are learning to live
459
00:25:46,398 --> 00:25:51,678
with an extremely rare neurological
460
00:25:47,929 --> 00:25:53,570
condition called leukodystrophy when
461
00:25:51,679 --> 00:25:55,639
they moved to a specially adapted house
462
00:25:53,569 --> 00:25:59,749
they thought their lives would get
463
00:25:55,638 --> 00:26:02,238
better because the small area Julie
464
00:25:59,749 --> 00:26:05,028
agrees but five weeks after the move
465
00:26:02,239 --> 00:26:17,719
both Matthew and Michael's condition has
466
00:26:05,028 --> 00:26:20,298
taken a turn for the worse since their
467
00:26:17,719 --> 00:26:22,009
return from Spain Tony and Christine
468
00:26:20,298 --> 00:26:24,038
have taken responsibility for the
469
00:26:22,009 --> 00:26:26,868
round-the-clock care of their two sons
470
00:26:24,038 --> 00:26:29,259
keeping medical and social services at
471
00:26:26,868 --> 00:26:29,259
arm's length
472
00:26:31,890 --> 00:26:39,400
Chris thinks that all they want is hair
473
00:26:35,670 --> 00:26:42,519
you know Matthew only wants Chris but
474
00:26:39,400 --> 00:26:44,830
there's only so much Chris can do so
475
00:26:42,519 --> 00:26:47,680
before it's gonna start affecting hair
476
00:26:44,829 --> 00:26:49,869
health you know she's she's got to have
477
00:26:47,680 --> 00:26:52,390
a life outside of the boys what she did
478
00:26:49,869 --> 00:26:59,859
have before you know otherwise she's not
479
00:26:52,390 --> 00:27:01,900
going to be any good to him over the
480
00:26:59,859 --> 00:27:04,240
future of all of us when you had certain
481
00:27:01,900 --> 00:27:06,340
young dealing with you think of in the
482
00:27:04,240 --> 00:27:11,880
future no I want to think about the
483
00:27:06,339 --> 00:27:11,879
future sorry
484
00:27:15,470 --> 00:27:20,529
we're new who knows I'm gonna get worse
485
00:27:27,279 --> 00:27:32,910
and I can't I can't think about that
486
00:27:33,599 --> 00:27:43,209
we'll deal with it when it comes the
487
00:27:41,049 --> 00:27:43,960
future looks understandably bleak to
488
00:27:43,210 --> 00:27:46,210
Christine
489
00:27:43,960 --> 00:27:49,000
but the Clark family do have something
490
00:27:46,210 --> 00:27:53,009
to look forward to in a few weeks time
491
00:27:49,000 --> 00:27:53,009
Matthew's grandson will be born
492
00:27:54,720 --> 00:28:00,069
leukodystrophy is a genetic disorder and
493
00:27:57,460 --> 00:28:02,289
Lydia may have inherited or be a carrier
494
00:28:00,069 --> 00:28:03,639
of the condition as firts mogermond
495
00:28:02,289 --> 00:28:07,809
grounded about it and they've said
496
00:28:03,640 --> 00:28:10,380
there's like a 1 in 100,000 maybe more
497
00:28:07,809 --> 00:28:12,490
chance that he could get it as well so
498
00:28:10,380 --> 00:28:14,200
I'm going to get him checked for it boy
499
00:28:12,490 --> 00:28:17,589
it's not a big concern that I'm worried
500
00:28:14,200 --> 00:28:19,690
about at the moment no proper tests can
501
00:28:17,589 --> 00:28:22,240
be developed for Lydia or her unborn
502
00:28:19,690 --> 00:28:25,900
baby until Matthew or Michael go into
503
00:28:22,240 --> 00:28:28,240
hospital for further examination to get
504
00:28:25,900 --> 00:28:31,240
the exact diagnosis is to actually go to
505
00:28:28,240 --> 00:28:33,579
the actual problem so that would be
506
00:28:31,240 --> 00:28:35,289
actually going into his brain and taking
507
00:28:33,579 --> 00:28:37,480
a sample off the brain tissue that looks
508
00:28:35,289 --> 00:28:40,509
abnormal on the scan and looking at that
509
00:28:37,480 --> 00:28:42,490
under microscope but the trouble with
510
00:28:40,509 --> 00:28:43,599
that is you you do that you'll expect
511
00:28:42,490 --> 00:28:48,460
you know you'll you'll put him through
512
00:28:43,599 --> 00:28:50,259
such a complicated and very risky big
513
00:28:48,460 --> 00:28:54,730
operation just to get that tissue and
514
00:28:50,259 --> 00:28:55,930
you could ask to what benefit so it's
515
00:28:54,730 --> 00:28:57,759
not going to over boys and you go to
516
00:28:55,930 --> 00:29:00,250
things send them in for tests from now
517
00:28:57,759 --> 00:29:03,250
so Christmas and it's not going to do
518
00:29:00,250 --> 00:29:06,190
them any good so I appreciate that
519
00:29:03,250 --> 00:29:08,410
it may help people in the future
520
00:29:06,190 --> 00:29:11,710
especially as this seems to be an
521
00:29:08,410 --> 00:29:14,890
unknown strain of look at history fee
522
00:29:11,710 --> 00:29:19,440
and I wouldn't put them through some of
523
00:29:14,890 --> 00:29:21,190
the pain of some of the tests so
524
00:29:19,440 --> 00:29:23,190
somebody's now got him
525
00:29:21,190 --> 00:29:26,650
No
526
00:29:23,190 --> 00:29:28,450
in the absence of tests the baby's
527
00:29:26,650 --> 00:29:31,030
prospects remain a mystery
528
00:29:28,450 --> 00:29:34,120
but it's a risk Lydia and her boyfriend
529
00:29:31,029 --> 00:29:37,139
Adam seem willing to take I suppose I
530
00:29:34,119 --> 00:29:39,548
should I should maybe be a bit more
531
00:29:37,140 --> 00:29:41,710
worried about what's to come in the
532
00:29:39,548 --> 00:29:43,240
future but I think I'm just gonna take
533
00:29:41,710 --> 00:29:46,360
every day as it comes and if he shows
534
00:29:43,240 --> 00:29:49,240
any signs of anything then gets into a
535
00:29:46,359 --> 00:29:50,769
straightaway like I said though it's not
536
00:29:49,240 --> 00:29:55,058
going to change it and make them in
537
00:29:50,769 --> 00:29:56,558
different noses but it's still be
538
00:29:55,058 --> 00:30:01,139
something over there I know she's
539
00:29:56,558 --> 00:30:01,139
learning to cope with yeah whatever is
540
00:30:02,700 --> 00:30:08,390
but looking after a child with
541
00:30:04,619 --> 00:30:08,389
leukodystrophy is hugely challenging
542
00:30:12,769 --> 00:30:18,049
Linda Karthi is a mother living with
543
00:30:15,359 --> 00:30:18,049
that challenge
544
00:30:20,480 --> 00:30:31,589
hi are you hungry are you hungry
545
00:30:27,660 --> 00:30:35,460
I heard her phone
546
00:30:31,589 --> 00:30:38,490
go go go oh you got a tiger Milla
547
00:30:35,460 --> 00:30:41,940
why would lion it's a lion
548
00:30:38,490 --> 00:30:44,400
ah Linda's son Luke was diagnosed at the
549
00:30:41,940 --> 00:30:45,090
age of two when Linda was in her early
550
00:30:44,400 --> 00:30:50,430
20s
551
00:30:45,089 --> 00:30:53,299
Luke is now 11 years old she can start
552
00:30:50,430 --> 00:30:57,090
to panic which makes his breathing worse
553
00:30:53,299 --> 00:31:00,509
but if it was to put him down on this si
554
00:30:57,089 --> 00:31:02,490
and walk away then he'd go ape wouldn't
555
00:31:00,509 --> 00:31:06,329
you you don't like that and that would
556
00:31:02,490 --> 00:31:10,500
set one set wanna what the moment cause
557
00:31:06,329 --> 00:31:12,569
his spine so curved he can't sit in his
558
00:31:10,500 --> 00:31:15,170
wheelchair or is all the things for very
559
00:31:12,569 --> 00:31:15,169
long before
560
00:31:19,109 --> 00:31:24,209
while he was born normal
561
00:31:21,069 --> 00:31:27,250
no signs of illness whatsoever healthy
562
00:31:24,210 --> 00:31:31,809
met all these is milestones walking
563
00:31:27,250 --> 00:31:34,710
talking around 13 14 months old I
564
00:31:31,809 --> 00:31:37,950
noticed that he had shakes when he was
565
00:31:34,710 --> 00:31:41,610
drinking so he would have these tremors
566
00:31:37,950 --> 00:31:44,230
and then he started to fall over
567
00:31:41,609 --> 00:31:48,069
eventually and decided to test for rare
568
00:31:44,230 --> 00:31:49,420
genetic diseases which were I didn't
569
00:31:48,069 --> 00:31:51,939
know at the time but they were the
570
00:31:49,420 --> 00:31:57,480
leukodystrophies and unfortunately the
571
00:31:51,940 --> 00:31:57,480
diagnosis of infantile MLD came back
572
00:31:57,809 --> 00:32:04,179
from a small office in her home Linda
573
00:32:01,269 --> 00:32:06,309
runs the myelin project an organization
574
00:32:04,180 --> 00:32:09,700
which helps and advises families living
575
00:32:06,309 --> 00:32:12,849
with leukodystrophy is a very lonely
576
00:32:09,700 --> 00:32:14,890
time because it is such a rare condition
577
00:32:12,849 --> 00:32:16,509
that it's hard to even find a
578
00:32:14,890 --> 00:32:18,520
professional let alone someone else out
579
00:32:16,509 --> 00:32:21,309
there that's gone through it so I think
580
00:32:18,519 --> 00:32:23,559
this is my kind of coping mechanism also
581
00:32:21,309 --> 00:32:26,619
extremely lucky in the fact that I have
582
00:32:23,559 --> 00:32:28,419
a fantastic woman dad and without them I
583
00:32:26,619 --> 00:32:32,559
don't think I would have been able to
584
00:32:28,420 --> 00:32:35,380
have survived you do need support you do
585
00:32:32,559 --> 00:32:37,990
need help you need someone to go through
586
00:32:35,380 --> 00:32:40,170
it all you know you just have to get on
587
00:32:37,990 --> 00:32:40,170
with it
588
00:32:40,259 --> 00:32:44,650
another mother
589
00:32:41,769 --> 00:32:50,410
tackling leukodystrophy head-on is Sarah
590
00:32:44,650 --> 00:32:52,660
hunt from London someone refuses yeah
591
00:32:50,410 --> 00:32:55,720
now this is Alex's chase we got to be
592
00:32:52,660 --> 00:32:58,450
doing fresh fruit vegetable juice we
593
00:32:55,720 --> 00:33:01,390
call this weird green stuff it did not
594
00:32:58,450 --> 00:33:03,279
make his skin bogie sorrow refused to
595
00:33:01,390 --> 00:33:05,620
give up on her son and has done
596
00:33:03,279 --> 00:33:08,549
everything and anything she can to keep
597
00:33:05,619 --> 00:33:11,439
him alive as long as possible
598
00:33:08,549 --> 00:33:13,119
Alex was diagnosed at the age of 7 and
599
00:33:11,440 --> 00:33:15,190
given a year to live
600
00:33:13,119 --> 00:33:21,339
12 years on he needs round-the-clock
601
00:33:15,190 --> 00:33:25,029
care amazingly alex is still capable of
602
00:33:21,339 --> 00:33:26,959
communication Alex would you like your
603
00:33:25,029 --> 00:33:33,319
hair to look spiky today
604
00:33:26,960 --> 00:33:33,319
anacs unless he blinks once for yes and
605
00:33:33,440 --> 00:33:41,039
twice for no local but alex has lost the
606
00:33:38,190 --> 00:33:43,529
ability to swallow and sarah had a peg
607
00:33:41,039 --> 00:33:45,960
tube fitted so his food and medication
608
00:33:43,529 --> 00:33:49,379
can be injected directly into his
609
00:33:45,960 --> 00:33:51,960
stomach personally I'm probably quite
610
00:33:49,380 --> 00:33:53,850
unrealistically positive other people
611
00:33:51,960 --> 00:33:55,289
don't feel like that they feel that you
612
00:33:53,849 --> 00:34:00,000
know it might be better if they slipped
613
00:33:55,289 --> 00:34:02,490
away quickly or or whatever you know it
614
00:34:00,000 --> 00:34:05,400
doesn't really matter I don't think it's
615
00:34:02,490 --> 00:34:07,710
just whatever is right for you you know
616
00:34:05,400 --> 00:34:09,090
you can't judge people because they
617
00:34:07,710 --> 00:34:10,380
think could be very somebody died
618
00:34:09,090 --> 00:34:13,320
because they've got this horrible thing
619
00:34:10,380 --> 00:34:15,090
and you can't judge people because you
620
00:34:13,320 --> 00:34:17,460
know they're unrealistically positive
621
00:34:15,090 --> 00:34:21,960
and think oh no one day there might be a
622
00:34:17,460 --> 00:34:23,940
cure alex has a younger brother Aidan me
623
00:34:21,960 --> 00:34:29,070
and Alex always spending time together
624
00:34:23,940 --> 00:34:31,110
whenever we can and we've probably quite
625
00:34:29,070 --> 00:34:38,660
similar in that we're both really small
626
00:34:31,110 --> 00:34:43,320
and we both love the same condo TV shows
627
00:34:38,659 --> 00:34:47,250
he's just a great bother it's all those
628
00:34:43,320 --> 00:34:49,650
two at the age of 11 Aidan is already
629
00:34:47,250 --> 00:34:53,010
something of an expert on leukodystrophy
630
00:34:49,650 --> 00:34:57,800
I know that's a verb genetic brain
631
00:34:53,010 --> 00:35:03,720
disorder um if left untreated can lead
632
00:34:57,800 --> 00:35:06,840
to him getting disabled or or if left
633
00:35:03,719 --> 00:35:15,000
untreated for far too long can lead to
634
00:35:06,840 --> 00:35:18,300
death and well I had it by but I am
635
00:35:15,000 --> 00:35:23,280
managed to get a bone marrow transplant
636
00:35:18,300 --> 00:35:28,110
in 2008 which probably would have but
637
00:35:23,280 --> 00:35:29,970
probably saved my life Sarah does
638
00:35:28,110 --> 00:35:32,640
everything she can to give her two sons
639
00:35:29,969 --> 00:35:35,489
a normal life Alex goes to a
640
00:35:32,639 --> 00:35:37,949
special-needs College and Aiden a local
641
00:35:35,489 --> 00:35:40,569
school she spends the rest of her time
642
00:35:37,949 --> 00:35:42,730
raising funds for scientific research
643
00:35:40,570 --> 00:35:45,460
in the hope that one day her efforts
644
00:35:42,730 --> 00:35:47,740
could benefit other sufferers I just
645
00:35:45,460 --> 00:35:50,619
think it's really important that anybody
646
00:35:47,739 --> 00:35:51,429
with any luke history rare disease or
647
00:35:50,619 --> 00:35:53,650
what-have-you
648
00:35:51,429 --> 00:35:56,529
goes and gets all those annoying little
649
00:35:53,650 --> 00:35:59,139
tests done because without those facts
650
00:35:56,530 --> 00:36:01,000
and figures then the research is about
651
00:35:59,139 --> 00:36:02,829
nothing to base their research on the
652
00:36:01,000 --> 00:36:05,639
clinicians have got nothing to base
653
00:36:02,829 --> 00:36:08,199
their treatments on and for example
654
00:36:05,639 --> 00:36:10,869
Aidan wouldn't be having bone marrow
655
00:36:08,199 --> 00:36:12,849
transplant and he wouldn't you know he
656
00:36:10,869 --> 00:36:14,739
would now be the same day as Alex which
657
00:36:12,849 --> 00:36:17,079
would be heartbreaking but because
658
00:36:14,739 --> 00:36:18,759
somebody did a bit of research they
659
00:36:17,079 --> 00:36:20,650
found out that bone marrow transplant
660
00:36:18,760 --> 00:36:23,320
works I don't know how it works they
661
00:36:20,650 --> 00:36:25,300
just know that it does work then all
662
00:36:23,320 --> 00:36:28,420
those kids that we know have got the
663
00:36:25,300 --> 00:36:31,990
gene they've got a really really good
664
00:36:28,420 --> 00:36:33,940
chance of a life both these remarkable
665
00:36:31,989 --> 00:36:39,129
mothers will never give up their fight
666
00:36:33,940 --> 00:36:41,110
against the condition that was good but
667
00:36:39,130 --> 00:36:45,670
what does the future hold for Michael
668
00:36:41,110 --> 00:36:48,519
and Matthew like other families affected
669
00:36:45,670 --> 00:36:50,320
by leukodystrophy Tony and Christine
670
00:36:48,519 --> 00:36:58,630
will soon be forced to come to terms
671
00:36:50,320 --> 00:37:01,059
with their son's condition September the
672
00:36:58,630 --> 00:37:03,789
20th it's the event the Clark family
673
00:37:01,059 --> 00:37:07,679
have been waiting for Matthew's grandson
674
00:37:03,789 --> 00:37:07,679
baby Zachary has arrived
675
00:37:13,199 --> 00:37:16,980
latest member of the family
676
00:37:23,219 --> 00:37:29,039
but for Christine the birth of the baby
677
00:37:26,230 --> 00:37:33,579
is bittersweet
678
00:37:29,039 --> 00:37:37,269
it's beautiful is absolutely lovely but
679
00:37:33,579 --> 00:37:42,929
I think there's too many emotions going
680
00:37:37,269 --> 00:37:42,929
around in our family at the moment that
681
00:37:43,110 --> 00:37:53,800
I can't seem to feel how I should how I
682
00:37:48,579 --> 00:38:04,719
want to the memories it brings back of
683
00:37:53,800 --> 00:38:08,700
course our memories of my babies so the
684
00:38:04,719 --> 00:38:08,699
the baby also makes me feel sad
685
00:38:10,739 --> 00:38:18,989
it should be overjoyed and wanting to
686
00:38:16,239 --> 00:38:18,989
cuddle Hindman
687
00:38:21,440 --> 00:38:30,889
like we did with her and the
688
00:38:26,039 --> 00:38:37,559
opportunities there again to be part of
689
00:38:30,889 --> 00:38:40,489
Zak's life and we will be it's just it's
690
00:38:37,559 --> 00:38:40,489
a life for life
691
00:38:43,639 --> 00:38:54,000
please God don't take my sons Linda
692
00:38:51,630 --> 00:38:56,670
Kathy knows all about the isolation the
693
00:38:54,000 --> 00:38:58,309
loneliness and the despair of being a
694
00:38:56,670 --> 00:39:00,840
leukodystrophy parent
695
00:38:58,309 --> 00:39:03,630
Linda's on her way to visit the Clark
696
00:39:00,840 --> 00:39:06,750
family she's talked on the phone but
697
00:39:03,630 --> 00:39:10,710
never actually met them in person I have
698
00:39:06,750 --> 00:39:14,460
to admit it took me a while to be even
699
00:39:10,710 --> 00:39:15,690
want to talk to anybody else so it's not
700
00:39:14,460 --> 00:39:17,449
necessarily to bring them into the
701
00:39:15,690 --> 00:39:22,829
community but just so that they know
702
00:39:17,449 --> 00:39:26,429
that I am here we are here and sometimes
703
00:39:22,829 --> 00:39:37,769
it helps to just talk to somebody who's
704
00:39:26,429 --> 00:39:40,139
not directly involved for eight months
705
00:39:37,769 --> 00:39:42,409
Tony and Christine have tried to cope on
706
00:39:40,139 --> 00:39:45,089
their own looking after their two sons
707
00:39:42,409 --> 00:39:47,099
this is the first time anyone with
708
00:39:45,090 --> 00:39:50,640
specialist knowledge of leukodystrophy
709
00:39:47,099 --> 00:39:52,739
has been into their home that was taken
710
00:39:50,639 --> 00:39:58,349
last night while he was trying to be
711
00:39:52,739 --> 00:40:00,569
lovely boy mm-hmm Linda's pictures of
712
00:39:58,349 --> 00:40:04,049
her son give Tony and Christine a
713
00:40:00,570 --> 00:40:06,630
glimpse of what lies ahead regardless of
714
00:40:04,050 --> 00:40:11,550
age the effects of leukodystrophy are
715
00:40:06,630 --> 00:40:15,480
the same the Beast Tony and I were in
716
00:40:11,550 --> 00:40:17,490
touch about his sort and we had a chat
717
00:40:15,480 --> 00:40:20,039
about where they were and what was
718
00:40:17,489 --> 00:40:21,719
happening to them and how it transpired
719
00:40:20,039 --> 00:40:23,880
that they got the diagnosis of an
720
00:40:21,719 --> 00:40:28,679
unknown leukodystrophies
721
00:40:23,880 --> 00:40:30,720
I gave him advice of who should be
722
00:40:28,679 --> 00:40:32,879
involved with the cab and what they
723
00:40:30,719 --> 00:40:36,929
should be doing and to not be afraid of
724
00:40:32,880 --> 00:40:39,269
of asking for help do you know or your
725
00:40:36,929 --> 00:40:39,719
stylist told us about anything that will
726
00:40:39,269 --> 00:40:41,940
happen
727
00:40:39,719 --> 00:40:43,859
I mean Yugi he just know it's the
728
00:40:41,940 --> 00:40:48,329
breaking up of the myelin sheath yeah
729
00:40:43,860 --> 00:40:50,430
rom the brain and do you understand why
730
00:40:48,329 --> 00:40:53,059
the myelin sheath breaks or what the
731
00:40:50,429 --> 00:40:57,000
consequences of the myelin she no
732
00:40:53,059 --> 00:41:00,570
Matthew um in a morning when he wakes up
733
00:40:57,000 --> 00:41:02,610
you can't touch him yeah look out touch
734
00:41:00,570 --> 00:41:05,519
him especially because I think you're
735
00:41:02,610 --> 00:41:08,849
heavier handed it Nick honey it's really
736
00:41:05,519 --> 00:41:12,480
sensitive yeah go ahead and I just just
737
00:41:08,849 --> 00:41:14,489
very like that longer noon and be really
738
00:41:12,480 --> 00:41:16,619
quiet when he was at the peak of his
739
00:41:14,489 --> 00:41:19,229
deterioration if I just went in and were
740
00:41:16,619 --> 00:41:21,179
Luke might be eight scream in pain as if
741
00:41:19,230 --> 00:41:24,090
you'd thrown acid on him and that's all
742
00:41:21,179 --> 00:41:28,409
the nerve endings because you can do it
743
00:41:24,090 --> 00:41:31,289
just touch and and they go you that that
744
00:41:28,409 --> 00:41:35,099
you really help me they will lose the
745
00:41:31,289 --> 00:41:36,869
swallowing reflexes and I've noticed the
746
00:41:35,099 --> 00:41:39,809
way that they're eating at the moment is
747
00:41:36,869 --> 00:41:43,699
quite dangerous that eating far too much
748
00:41:39,809 --> 00:41:45,858
big is please consider
749
00:41:43,699 --> 00:41:48,500
you know what I'm saying to you today
750
00:41:45,858 --> 00:41:51,019
and get peg feeds for them in you know
751
00:41:48,500 --> 00:41:52,250
insert well they are still able I don't
752
00:41:51,019 --> 00:41:54,798
know it's just a few days in hospital
753
00:41:52,250 --> 00:41:56,719
and they absolutely hate it but the
754
00:41:54,798 --> 00:42:03,409
alternatives to sit and watch them
755
00:41:56,719 --> 00:42:05,058
started off and it's not nice I do think
756
00:42:03,409 --> 00:42:08,440
that you know you should be discussing
757
00:42:05,059 --> 00:42:08,440
this with your neurology
758
00:42:11,719 --> 00:42:16,289
unfortunately the end result will still
759
00:42:14,579 --> 00:42:18,359
be the same and that will be that they
760
00:42:16,289 --> 00:42:21,029
won't be able to communicate there won't
761
00:42:18,358 --> 00:42:25,049
be able to move and talk and eat and
762
00:42:21,030 --> 00:42:26,670
things like that you know and I know
763
00:42:25,050 --> 00:42:28,940
it's really I feel really awful I'm
764
00:42:26,670 --> 00:42:28,940
sorry
765
00:42:50,510 --> 00:42:56,750
as bad as it sounds you just get used to
766
00:42:54,050 --> 00:43:00,390
being like that and living like that and
767
00:42:56,750 --> 00:43:02,400
you do become stronger because as your
768
00:43:00,389 --> 00:43:06,349
children become weaker you've got no
769
00:43:02,400 --> 00:43:06,349
choice more than to become stronger I
770
00:43:06,650 --> 00:43:11,760
think I have a bit I think I have
771
00:43:09,210 --> 00:43:15,199
already become stronger than her then I
772
00:43:11,760 --> 00:43:18,540
was and I'm part when he goes through
773
00:43:15,199 --> 00:43:21,379
helps but that's part and parcel of
774
00:43:18,539 --> 00:43:23,820
partnership that's brilliant that's
775
00:43:21,380 --> 00:43:25,559
that's brilliant but you know you've got
776
00:43:23,820 --> 00:43:41,360
each other to be able to pull each other
777
00:43:25,559 --> 00:43:41,360
through finger the same way yeah yeah
778
00:43:54,150 --> 00:44:01,700
they've become my life again that's how
779
00:43:59,400 --> 00:44:01,700
it is
780
00:44:03,798 --> 00:44:14,818
and with see it through to the end
781
00:44:08,239 --> 00:44:17,278
whether it's our indoor there's Linda
782
00:44:14,818 --> 00:44:21,558
Cathy and her work at the myelin project
783
00:44:17,278 --> 00:44:21,559
has opened a door for the Clark family
784
00:44:23,820 --> 00:44:28,240
we're a very small community
785
00:44:25,949 --> 00:44:30,699
leukodystrophy parents and families and
786
00:44:28,239 --> 00:44:33,159
we've got to help everybody else we've
787
00:44:30,699 --> 00:44:35,259
got a kind of look towards the future
788
00:44:33,159 --> 00:44:38,109
and try and be as helpful and
789
00:44:35,260 --> 00:44:39,700
informative and stick together with the
790
00:44:38,110 --> 00:44:42,210
scientists and help them as much as
791
00:44:39,699 --> 00:44:42,210
possible
792
00:44:46,420 --> 00:44:53,320
we needed to know we really needed to
793
00:44:49,539 --> 00:44:57,219
know um to give us some idea of what
794
00:44:53,320 --> 00:45:01,360
we're facing but it's scary him
795
00:44:57,219 --> 00:45:05,769
really he's Gary you know that you know
796
00:45:01,360 --> 00:45:08,430
that what's going to happen but in
797
00:45:05,769 --> 00:45:12,039
detail like that was a bit bit shocking
798
00:45:08,429 --> 00:45:13,960
we needed to know us was the nature of
799
00:45:12,039 --> 00:45:16,420
the beast it and I know we do know we
800
00:45:13,960 --> 00:45:17,710
can actually see we can get the right
801
00:45:16,420 --> 00:45:20,680
doctors involved and get the
802
00:45:17,710 --> 00:45:22,630
physiotherapy involve we can get proper
803
00:45:20,679 --> 00:45:25,089
nursing organized for when we need in
804
00:45:22,630 --> 00:45:28,420
you know it's going to be it's helpful
805
00:45:25,090 --> 00:45:31,000
for the same time it is you're really
806
00:45:28,420 --> 00:45:38,170
damn scary even looking dogs you soy
807
00:45:31,000 --> 00:45:42,369
know my engine your moon we're nicer
808
00:45:38,170 --> 00:45:45,610
because the robe will you see the dog
809
00:45:42,369 --> 00:45:46,389
was that going the wrong way it's going
810
00:45:45,610 --> 00:45:49,510
the wrong way
811
00:45:46,389 --> 00:45:53,019
he's going that way the dog stay where
812
00:45:49,510 --> 00:45:58,170
is sniffing something and it's not his
813
00:45:53,019 --> 00:46:07,409
robot boy where's oh he sniffing Oh
814
00:45:58,170 --> 00:46:07,409
Daisy Lou he talked about us hell yes
815
00:46:11,338 --> 00:46:17,469
the clerk family having been forced into
816
00:46:14,800 --> 00:46:20,530
a remarkable journey are only partway
817
00:46:17,469 --> 00:46:23,108
through but now they can face their
818
00:46:20,530 --> 00:46:25,140
future knowing they are not traveling
819
00:46:23,108 --> 00:46:25,139
alone
820
00:46:49,570 --> 00:46:51,630
you
61803
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